The #1 thing that I have learned over almost a decade of living with dementia is that thinking in pictures (images, diagrams, doodles, etc.) is much more effective than using words alone. Hedge your bet. Use pictures that associate with words rather than just words. After all, in many types of dementia, you lose your words at the end while the pictures may escape loss.
Try it. You will probably like it. Creating visualizations of important events, ideas, feelings, and other information can be FUN.
I’ve been using visual thinking methods for the past 10 years. They work (for me).
I get in trouble when I make mind maps about Donald Trump. This is a mind map about processing repetitive TV cable news (on CNN and MSNBC and FOX) about the most televised story — Donald Tackles the USA and the World — at this point in late April 2017.
Mr Trump is just completing the first 100 days of his Presidency having accomplished less — according to the fact checkers from numerous news organizations — than any President since the index has been tracked from the beginning of Franklin Roosevelt’s Presidency in the 1930s. Mr Trump believes he has accomplished more than any president ever studied in his first 100 days.
I am a lover of news stories where the President gets bashed on TV. In the 1970s I watched (and read about) all the hearings focusing on Richard Nixon and Watergate. In the 1980s I watched huge amounts of TV about Reagan and Iran-Contragate. In the 1990s, I watched the hearings about Bill Clinton and the blue dress and impeachment and not inhaling. Nothing of a comparable nature occurred during either Bush presidency or that of Barack Obama. I almost didn’t know what to do with my spare time.
Now, I am watching numerous hours of TV/video on the major USA news channels (including CNN, MSNBC, Fox, CBS News online, New York Times, Washington Post, and of course the best news outlet for all news worldwide, BBC). And even ESPN has had a big Trump story about star players declining invitations to the White House to meet POTUS.
My dementia has been progressing at an ever increasing speed in a downward spiral during the past months. I remember (recall) less from current events and “work” and daily tasks. When I can retrieve information I do so very S—L—O—W—L—Y. Judgments are tougher, understanding sequences are harder, and writing down what I think is very slow as the length of my current journal entries (and al of the wurds nat spelled wrongly or too bigly) is increasing grately. Handwriting does not come with A spel chkr.
The current trend in cable TV news on MSNBC and CNN and others is to have one-hour shows where a moderator/commentator discusses all of the “important” news of the day with 2-5 different “self-styled” experts ranting from all political persuasions.
7 hours of liberal rantings about Trump is available on MSNBC and to a lesser degree on CNN; Fox News has 7 hours of conservative rantings about how terrible it is that the liberals are ranting about Trump.
I have repeatedly argued that inexpensive (or even free) visual thinking/mind modeling methods can help a person with dementia “rewrite the operating system” on that storage device we call the brain and think better, albeit in a different way.
As I was making the following mind model (AKA mind map) about Trump’s first 100 days yesterday, I was struck by how rapidly I could create this fairly complex model. I think it shows that the intrinsic interests and REPEATED exposures to structured, summary information can be well captured using visual thinking methods by a person who has lived with dementia for more than half a decade after diagnosis. While I understand that 40% of USA voters will find the content WRONG because it is very liberal rather than very conservative, I do propose the hypothesis that developing a fairly complex, fact-based mind map of current news shows the value of mind mapping for someone with dementia basing this conclusion only on my own experience. And it works no matter what you think about Trump.
I hope that as many conservatives as liberals will use these methods to study the facts of issues and their own conclusions and evaluate the completeness of what they know.
Examine your memories and conclusions in mind models. Political leanings and party do not matter because your mind model is for YOU as much as my mind model is for ME.
Should you find my political points to be in error, just use this as a template about what you would like to say about, for example, Hillary Clinton or a Democrat in Congress.
But remember that models like the one can be developed by a person living with dementia like me.
And most importantly, I hope that we — whether your political views are similar or dissimilar to mine — can come to an agreement that cognitive methods for supporting thinking for those with or at risk for dementia belong in the next version of ObamaCare or TrumpCare along with training, support, and respite services for unpaid dementia caregivers and especially COVERAGE OF COMPREHENSIVE HEALTHCARE FOR ALL AMERICANS.
Click on the image to expand it.
Oh … and let’s make sure that no President of any party ever uses the nuclear option. I hope we can all agree on that.
Want information you created or curated to have the greatest impact? Then put it into a mind map. Not a mono-toned mess of straight lines at right angles but curves with colors and an organic style. A mind map utilizing rules that follow what is fairly well known about visual thinking. A mind map like the one below.
People who learn to take responsibility for their own actions could save me a lot of money.
have less kids born into families that cannot support them saving me money on social programs
are less likely to contract STDs especially HIV thus saving me money on STD prevention and treatment programs
graduate from high school (and college and grad school) thus qualifying them to be in higher tax brackets and save me from higher tax rates and subsidizing their living costs
live longer because they forgo tobacco and drinking alcohol to excess thus saving the entire health care system from huge wasted services
pick up their garbage and put it in trash receptacles thus saving me having to pay someone to pick up after them
recycle thus cutting the bill for environmental cleanup
The USA should incentivize self responsibility by granting payments to
every student who ever graduates from high school
every student who ever graduates from college
every student who ever earns a graduate degree
every 18 year old who has never had an STD
every 18 year old woman who has never been pregnant
every 18 year old man who has never fathered a child
every 21 year old who has never been convicted of a DUI offense
every 21 year old who has never used tobacco
every 21 year old who has a “normal” weight and is neither obese nor dangerously underweight
every 40 year old who has a “normal” weight and is neither obese nor dangerously underweight
every 50 year old who has never been convicted of a DUI offense
every 60 year old who has a “normal” weight and is neither obese nor dangerously underweight
Incentives would be in the form of one-time tax credits for the individual or the individual’s family. This means that incentives are only paid to workers and their families.
Oh, the government would supply free voluntary services to all residents on birth control methods including condoms freely available to all children old enough to conceive, unlimited voluntary counseling on avoiding self destructive behaviors, unlimited voluntary counseling on leading a healthy life, and unlimited voluntary counseling for reasons of family instability, mental health, child rearing, and birth control. None of these free services would include any components related to any religion. And legitimate and effective education at all levels from preschool through college would be free to any American resident of any age and with support services to ensure anyone can graduate.
If the USA were to provide fairly significant incentives for learning and exercising self responsible behaviors we could produce a citizenry that creates less problems and is less dependent upon social network and support programs for themselves and their children. This will leave a lot of money to spend on those who truly cannot deal with their own medical and psychological problems no matter what they personally do and probably leave some over for lower tax rates.
Wow. Incentives for studying, working hard, becoming a productive member of society, and paying for needed and fully effective programs for all of those who have mental or physical or developmental disease and cannot legitimately assume full responsibility for all aspects of their lives.
I’d love to see a similar set of ways to incentivize healthcare and education workers. Small increases in productivity and job satisfaction among these critical citizens saves a lot of money and produces a much more healthy society.
Oh, I know, I am a dreamer. After all, my proposal could never make it through Congress. Even though it will save lots of money, promote better lives through self responsibility, and leave sufficient resources for those who truly need medical and mental health services because of factors beyond their control, this is truly an anti-American proposal that expects self responsibility and does not let big religion bully small religions, agnostics, or atheists around.
Every once in a while we need a little revolution.
[Musings of a very liberal, very capitalist, individual who believes in self responsibility and taking care of anyone who cannot take care of themselves with first-rate, state-of-the-art programs.]
The mind model (aka mind map) below discusses my vision in developing the dementia focus on this website. I started to build the web site about two years after being diagnosed with a neurodegenerative condition (2012). Thus the entire blog is the work of a developer experiencing dementia while designing and preparing the content for the site. The site discusses my progression through cognitive impairment and decline into dementia. More importantly it discusses how I tried to help myself coordinate and use to full advantage the support and professional expertise made available to me by family, friends, the community, my doctors, and the general world-wide of patients and professionals the major issues.
Nothing in this blog post (or any other on blog post or page on the site) is intended to be, or promoted as medical, psychological, or any other form of treatment. The ideas in this blog are about using some commonsense note-taking and visual thinking methods to possible help you live better with dementia. I tried it on myself (only) and I am encouraged although I freely admit that full scientific study is needed.
These methods and comments will not substitute for medical and other professional treatments. They do not cure dementia. They do not slow down the progress of dementia. For me, at least, the methods have sustained and increased my quality of life and I do spend more time with my family and am more independent and in my opinion think better. But my dementia is not being treated and getting better; what I propose are methods that may make it easier to independently manage selected parts of your life, be in a better mood because you are trying to help yourself, be less of a burden to your caregivers, and report better to doctor what your experiences have been since the last appointment.
Many people are miserable almost all days when they have dementia. If simple, inexpensive cognitive tools can improve some or many of those days, the development of such techniques is a huge step forward.
I hope that others will examine the information here and use it to improve the decisions they, their caregivers, and their doctors and nurses must make about their formal medical treatment.
Here is what appears in the blog posts and elsewhere on Hubaisms.com.
Click on the image to expand it.
Click here to see Part 2 of My Vision in a separate window.
Not the past, not what might happen in the future. Fuzzy, intuitive, today’s emotions. Nonlinear, visual, big picture. Attention flows toward good, bright, happy visualizations.
Opening your mind to nonlinear thinking may provide a cognitive reserve that helps you as cognitive functions start to decline perhaps precipitously into dementia. Neuroplasticity is a mechanism that the brain will use to reassign functional processing from one area to the brain as it is damaged by trauma or disease.
One very good way to encourage the development of cognitive reserve and neuroplasticity is to practice nonlinear thinking methods that can help promote mindful solutions. Should the brain become damaged, it may be able to use nonlinear, symbolic visual thinking to cope, at least for a while. And while you practice you may also experience strength in your resolve and understanding.
Do note that the above comments are speculative. There is NO formal research on mind mapping or other comments about this in the literature (other than my own). Also, this is based only on my own experience and generalizations from my earlier research on daydreaming and imagery. So do not go about thinking that this proven. Rather it is speculative.
While I theorize that mind mapping is related to mindfulness in SOME applications, even if it turns out that it is not — from the results of formal empirical studies — there are other demonstrated benefits from mind mapping, so the actual use of mind mapping should still be encouraged.
Yesterday I worked on my post about John Tukey and his contributions to statistics, data analysis, and my cell phone addiction.
As I did research to supplement my personal knowledge about Dr Turkey— near the end of his life, a good friend did work with him and one of my grad school professors (Bob Abelson) was one of his most influential students — I noticed the brevity of the bio in Wikipedia about him (less than a half a window on my computer) and contrasted this to the large number of screens of information available on the Kardashians, Justin Bieber, Rodrigo Borgia, Al Capone, and Richard Nixon. Even R2D2 has a much longer biographical entry.
At many times the Internet is like ancient Rome (bread and circuses) or an episode of (un)reality television.
I dread to think how the aliens in the next galaxy are going to react when the television waves hit their planets. The two likely responses I forecast will be to either classify humans as a lower life form or to be delighted they have all the episodes of the Kardashians. I am betting on the latter (or probably both).
The majority of the posts on this blog are about using visual thinking methods — of which I think that by far the best is #Buzan-style organic mind mapping — to understand, explain, evaluate, and communicate about healthcare. A lot of my own thinking has focused on using visual thinking techniques to potentially improve the quality of life of those with cognitive impairment and dementia.
Tony Buzan and Chris Griffiths and their colleagues and staff at ThinkBuzan have done a very comprehensive job at getting many of Buzan’s ideas embedded into a general purpose computer program (iMindMap) which provides a general visual thinking environment, of which mind mapping is a special part. There are many computer assisted mind mapping programs, but I have concluded that iMindMap is by far the best for creative visual thinking and communication, in no small part because it fully incorporates Buzan’s theory and theoretical implementation.
Like scientists and management consultants and educators and healthcare providers and patients and patient caregivers and students and many others, illustrators struggle with how to best use visual representations to support better thinking and communications.
Which brings up this beautifully conceived and executed little book that I have found to be mind expanding and liberating in how to develop and use a series of illustration techniques and “tricks” to look at things differently when trying to make creative breakthroughs.
Whitney Sherman is the author of the book “Playing with Sketches” which provides 50 exercises which collectively will change the way you think about creating images to understand and communicate ideas.While Ms. Sherman wrote the book for designers and artists, the techniques will be just as useful for visual thinkers in science, education, medicine, industry, and other fields. The beauty of Ms Sherman’s exercises is that in showing you fairly simple ways to make hugely informative and well designed images, the tools will themselves suggest many applications to visual thinkers of all types.
And, I have found that Ms. Sherman’s techniques can be used by the severely artistically challenged (of which I am one); the techniques are ones for Visual THINKERS, not necessarily artists and designers.
I have mentioned this book before in much less detail, but in the months I have used the methods, I have found that they WORK very well to facilitate creative visual thinking. For me they have promoted a breakthrough in how I see the visual thinking canvas.
Get the book, try some of the techniques (pick a random one here and there to start), discover that great artistic talent or aptitude is not required, and see how the techniques fit the information you study in search for better healthcare or disease prevention or decision making or facilitating creative group processes.
In partnership with Tony Buzan’s techniques for organic #mindmapping and Mike Rohde’s framework for #sketchnoting, the techniques codified by Whitney Sherman provide very powerful visual thinking tools.
I will be posting some examples of using the sketching techniques of Ms. Sherman to developing assistance and communication techniques for those with cognitive impairment or early-mid stages of dementia.
This is an old story often repeated as it was typed every few hours by telegraph operators in the 1800s to test the lines. And, everyone learned to type it. The story (sentence) of course was used because it contains every letter of the English language.
[My repeated attempts to come up with a short, single sentence that is hip, cool, trendy, and oh so 21st Century, and contains all 26 letters of the English alphabet has been a failure as of this date. I am working on it.]
At any rate, everyone knows that “The quick brown fox jumps over the lazy dog.”
But, do you know the background research?
The same “research notes” presented in summary or full form can present a sentence or a short story.
[OK, so it wasn’t really a Newfie. However my lazy, sleeping, snoring dog has been practicing for the part for years, so I let her have it. And yes — really, truly — I have had both foxes and coyotes in the front yard of my current house. I guess I could also have said that the fox was rabid (most are) but that would have changed the rating to PG-13.]
I would not write about this topic were I not convinced that a number of government agencies, hackers, and 12 year olds have already thought of this.
Today I was looking at the Mac App Store and saw a new featured program that automatically translates from one language to another. The program reportedly translates 80 languages into 80 languages. Since I do not know 80 (or even 2) languages I have no way of verifying this claim. Nor do I think that there is any problem with this app or others of the type. But the App Store stimulated me to think about something.
What if …
What if I an American security agency (NSA, CIA) wanted to slant American public opinion against the Arab World. It could (probably and extremely rapidly) change the translation dictionaries in a computer program to translate Arabic to English in a tone that subtly makes Arabic statements in public social media seem more aggressive and uncooperative than intended. Or conversely if I were an extremist organization that wished to slant opinion against the United States I might alter a translation dictionary to make English statements sound more negative or aggressive or dictatorial in Arabic. This can be done in any pair of languages in either direction.
I have looked for effective computerized translations to English (or more properly Americanish) for decades, primarily because I have no language skills (or abilities) but want to know what the writers in Arabic, Russian, Spanish, Hebrew, French, Italian, Chinese, Japanese, Korean, and other languages are saying on social media. I try to follow many tweeters in the Arab World because I think that Americans are fairly oblivious to the intellectual and medical advances made there as they also are to the peaceful political and religious views of virtually every practitioner of Islam or resident of an Arab country.
In the era of Twitter and numerous other social media services which are starting to provide automatic translations between languages, who tests to make sure that the auto translations do not intentionally or unintentionally slant public or scientific opinion. Obviously, those most dependent upon those translations are least able to judge this!
Anytime I read something that seems odd from a speaker of another language, I wonder if this is the result of an auto translation program unintentionally or intentionally trying to sway my opinion.
This is perhaps a compelling argument for visual thinking using minimal words.
[On the other hand, there is this Photoshop thing …]
Most other web sites that rank mind map apps carry advertising from at least several different producers of these programs while I do not. This may or may not explain my greater willingness to differentiate sharply between the apps.
Your idea of what a great mind map app should be may differ from mine resulting in different ratings. Mine are particularly relevant for scientific, health, education, and personal use rather than corporate outline formatting. In fact corporate outline formatting in “mind map” programs does not really produce true mind maps, but most corporate customers do not know the difference. Learn why Buzan-style mind maps will perform far better than the “formatted outline” maps produced by many of the best selling programs before committing to one model or the other.
The programs continuously change (most copy each new version of iMindMap after its release) and my ratings change fairly often.
I communicate with some of the app developers (as well as other independent reviewers) via email. I try not to let these interactions with nice people and arrogant people and people with crummy business models (and crummy customer support) and development geniuses color my ratings.
These ratings apply only to Mac software. I do not use any of these programs on a PC. After 25 years of 40-80 hours of PC use per week, I switched to a real computer and use Macs exclusively.
I will release separate ratings for iPad apps, but in general those programs that are especially good on the Mac tend to be especially good on the iPad. Note that while I do not believe that the Mac version of Inspiration is a particularly good app, I think that the iPad implementation is among the very best.
The apps I review are full commercial versions. I have yet to find a free mind map app that is even close to the best paid apps in quality and usability.
Virtually all of the paid apps have free evaluation periods. Most periods are 30 days which is plenty of time to form your own judgment. Make use of the opportunities provided by the developers and vendors.
And yes, the three programs that I intend to use 90% of the time or more are iMindMap, iMindQ, and iThoughtsX. My use is about 85% iMindMap and 2.5% each of the others. I spread the other 10% of my usage around, often experimenting with other programs just to see if they better fit specific uses or types of users.
This mind map that follows is the same as that above reformatted for “3D” presentation.
Back in 2012, I published a mind map on this blog suggesting that giving people one chance to learn (as in, you only get one taxpayer-subsidized educational opportunity) or to receive free treatment for drug abuse (as in, if you can’t quit the first time you are morally undeserving because you do not have the moral strength) or to receive specialized behaviorally-related healthcare (as in, you let yourself get fat or nicotine-dependent or out-of-shape so you pay the consequences) is an obscene abuse of other individuals,
It’s just as true now as it was then. I know more about mind mapping now and am even more irritated by those who want to balance the budget by not helping others enough, or even at all. So I thought I would revise my mind map and make this a post a lot more angry that we do not give people second (or even eighteenth chances).
Show me a drug abuse treatment provider who says you can go through treatment one time and it will “stick” and I’ll show you a snake oil salesperson who is trying to sell services to 18 year old entertainment industry billionaires surrounded by a media feeding frenzy. Do you really want to deny additional free education to someone who realizes in their 30s or after going to prison or after achieving a stabilized life without drugs or while serving our country in the Armed Services that they need more education to get good jobs and be successful and much better citizens? Mental health services should not be denied or limited to tossing people pills because someone lost the genetic lottery and has a life-time disease or experienced trauma (like a rape victim or maybe somebody unlucky enough to have lived in an earthquake or hurricane zone or in a dangerous neighborhood or in an Armed Services encampment in Afghanistan, Iraq, or Vietmam).
Enough said. The picture will tell more than 100,000 words ever could. And if one fails after 18 chances?
Well, there’s always a 19th chance or a 36th chance waiting. [And a special ring in hell waiting for those who would only offer people one chance at happiness or productivity or health. Or the politicians who supported this position to get (re)elected.] Oh, and if you were one who denied others a second chance, you have a second chance to act in a more moral and supportive way and give others that second or 18th chance.
Click on the image to expand. Then think about whether we should invest in people and families or in creating the wealthiest uber-class in the history of the United States?
There are more than 7,000 rare diseases in the world, almost all of which lack any type of medical treatment. Were every religious congregation in the world to “adopt” a disease and do what it can to help find and provide a cure for that one disease, it is quite possible that the hundreds of millions of people (in aggregate across all rare diseases) could be helped in small and large ways.
I think that it is very possible that organized religions can put away their ideological differences and work cooperatively through information sharing, advocating, raising monies, and demanding progress from governments and corporations to fight rare diseases. After all, most of these diseases are genetic in origin and more than 50% of those who suffer from rare diseases are children. And, central values in the organized religions are showing compassion, helping, and supporting those in need.
I am not naive enough to believe that religions, religious leaders, and religious congregations working together in small ways is enough to solve religious bigotry, the hot points in Jerusalem, or prevent future ethnic-religious cleansing by horrible people deceiving their own citizens. But let’s at least try to start in the small ways of learning about one or two rare diseases and pooling creativity, resources, and prayers for the energy and stamina to find cures. Religious congregations and their energy directed by the desire to help are almost unstoppable forces.
February 28 is Rare Disease Day.
It is also a day when the religious peoples of the world can unite to plan to make small and large steps to acknowledge and cure at least some of the rare diseases.
I pray that it will happen.
And should you not believe in organized religions, I hope you will nonetheless join in an organized search for effective treatments.
Developing effective sketchnotes and synthesizing knowledge into accessible mind maps can be complementary processes. Information captured in the sketchnoting process might be best expressed later as a series of mind maps. Some thoughts about combining Tony Buzan‘s work on mind mapping with Mike Rohde‘s break through creative work on sketch noting. Combining these methods can result in exceptional ways of communicating knowledge one well-conceived page at a time.
This post does not contain medical advice. None of the methods described are known to be therapeutic. What is described are possible note-taking or information-sharing models for patient-client-self management.
For the past few months, I have been focusing on the use of mind maps to assist people with dementia, cognitive impairment, or cognitive decline deal with various issues that arise as they work hard to maintain independence.
You can access those posts simply by using the search box at the bottom of each post with keywords like “dementia” or “cognitive.” Several dozen blog posts will pop up with most very recent.
But the reality is that as dementia or other cognitive problems progress, many patients will require increasing amounts of supervision and care. Mind maps may prove to be useful in assisting a caregiver to help in a more effective, and cost–effective, manner.
Just as those with cognitive decline may be able to remember, plan, express themselves, and document their lives in maps, caregivers may be able to use these techniques themselves to provide better care and client management. Mind maps may potentially help the caregiver recall the preferences of the client, as well as the client’s life history, important events, significant people, and life style
Caregivers may find that visual information recorded in mind maps provides a good way for the caregiver and the client to start discussions.
Caregivers may find that clients can express themselves better with pictures, drawings, doodles than in words.
Caregivers may find that their own notes from each day are more useful if captured in the format of mind maps.
Caregivers may find that mind maps may be used for brainstorming by themselves, with healthcare providers, with family members, and with the client ways to organize daily events, select food and clothing, remember medications, and organize social events.
Caregivers may find it useful to record their own feelings in mind maps as a way of dealing with the emotional and physical stress of caregiving.
The daily calendar — including doctor visits and other appointments and visitors — may be easier to prepare as a mind map and much more useful to the client.
There are dozens of other ways mind maps might be useful in caregiving. I am going to write many posts on this topic in the next months. For now, here are a few examples with many more to come.
Click on each of the images to expand it.
Preparing a Mind Map (with the help of the client or family members) of the Client’s Preferences.
Preparing a Mind Map (with the help of the client or family members) of the Client’s Religious Beliefs.
Preparing a Mind Map (with the help of the client or family members) of Things the Client Especially Enjoys.
Preparing Mind Maps from the Warning Brochure that Comes with Each Prescription Refill.
Preparing a Mind Map of Each Day for Your Use and That of the Client.
Technical notes. The sample mind maps here were all prepared in the computer program iMindMap, which I strongly prefer both for the way it facilitates mapping and the way it typically produces maps that can be very useful. There are alternate programs that can be used, although perhaps not with the same level of good results possible with iMindMap. Because the maps will be used by caregivers and clients, they will tend to be most effective if colorful, “bold,” graphically interesting, and with large typefaces all of which are easily done in iMindMap. Acceptable alternatives to iMindMap would be iThoughts, Inspiration on the iPad (but not on the PC or Mac), MindNode, and XMIND, although each of the alternatives will be more difficult to use to produce maps for clients with cognitive decline than is iMindMap. There are free mind map programs available or free demo versions. This is a case, however, where paid versions are far more cost-effective than the free versions or most free programs. There is a second type of mind mapping program more suitable for business purposes (the major one is MindJet MindManager and also MindDomo and MindMeister) than those caregiving applications discussed here.
The only way I see to develop effective medical treatments and care models for many of the thousands of rare diseases is to pool the RESEARCH resources that individual countries are spending and the data countries are collecting about individual rare diseases and put those research resources under international control for prioritizing research agenda and ensuring public access to ALL results and research data.
Yes, I know the USA (probably the largest resource contributor) Congress will go in front of the television cameras and say that the failure of the United Nations and the disproportionate contributions to a pooled resource fund will ensure failure. They will point to the failure of the world to effectively coordinate collaborative research on HIV/AIDS and point to politics, homophobia, disrespect, and the hatred of American politics by certain national and fundamentalist groups and say we would be wasting our money by letting Africans and Arabs and the Russians and Chinese and Indians and Asians and South Americans collaborate with the USA on research and ensuring that research leads to effective treatments for at least some rare diseases.
Enough already. Let’s rise to the occasion of solving resource limitations in studying rare diseases and get an effective mechanism in place for expanding the impact of admittedly small research efforts by individual countries through international cooperation. I trust the governments of the world to collaborate, contribute as they can, and help us start to get some of these diseases treatable. Disease knows no boundaries.
In the last century we collectively developed very advanced medical research techniques. In this century we need to use these methods to solve all of the medical problems possible by putting aside the nonsense politics and nationalism and individual egos and predatory profits and focus on solving many medical issues and ensuring access to effective treatment world wide.
Here’s a way to start. Any yes, this is a test of our humanity and commitment to universal human rights of which medical treatment is but one. But let’s start somewhere that should be relatively easy to agree on (and let a few hundred angry politicians in the USA know that the world considers them bratty children and cannot tolerate their obstructionist and oppositional behavior).
Click on the image to expand. And let’s start the process of collaboration.
THAT (clip from information sheet attached to prescription refill)
OR THIS (pictures could be added, fonts could be changed, colors could be changed, style could be changed)? [I am NOT advocating any specific design without pilot testing although I tend to like some of the designs near the top and near the bottom better, especially since I believe they will communicate more effectively to all ages but note that this has not been proven. And, note that a professional designer could undoubtedly do a better job on the artistic elements and a neurocognitive specialist would be quite valuable as a reviewer to maximize impact.]
Click on any image to expand through several levels of zooming.
The information in this post derives from very credible web sites. [As a note, much of the information about Alzheimer’s disease and “normal” or typical aging appears to be accurately derived from the public domain information put online by various departments of the US government.]
I believe that the following mind map is better for explaining the information.
[I acknowledge the fact that various mind map “artists” can make this map more visually appealing and I see this as a first draft.]
The Alzheimer’s Association has posted this professionally valid information on its web site designed in a way as to be compelling through its high density of high quality warnings.
The “problem” with this brochure is that it is “too dense” for me (and probably anyone else without a professional background in medicine) to be able to understand and remember the information. How about including this graphic as a third page (ideally as the ENTIRE page 2) in the brochure. I would bet that the outcomes from the extra understandability and memory retention for this critical information would prove to far offset any additional printing costs.
[I acknowledge the fact that various mind map “artists” can make this map more visually appealing and I see this as a first draft.]
Mind mapping is a wonderful tool. Many use it to inform others of important facts and make sure those facts are remembered, understood within context, associated as appropriate with other knowledge, communicated well, and result in learning. I endorse the successful use of mind mapping.
Mind mapping is a wonderful tool for informing.
Mind mapping is a wonderful tool for misinforming.
Think about this. If the method makes the learning of “good” information faster and more accurate, it does the same thing for “bad” information, idea garbage, or propaganda.
You need good information to map. You know, the kind that is scientifically proven, well interpreted, important, replicable, unbiased. You know what I mean. (The kind of good information that would never make it onto the Fox Cable network.)
So it is really simple. Show me the source of the information and what evidence supports it. I will decide if it is a diamond or zirconium. Nourishing or poison. Message from heaven or hell. Mac or PC.
Do not tell me you have a map of some important psychological issue when you do not have a single citation to replicable science, or at least well-accepted theory, anywhere in the map or the accompanying text.
The problem of presenting bad information and helping others learn it well is probably the most important when the content is derived from medicine, healthcare, psychology, or education. Personally I care less if a business person hires the wrong management consultant and buys the Brooklyn Bridge, but that is a matter of personal preference and I still would not like to see shareholders hurt. You want to teach it in a way that improves the chances that it is learned? Make sure it is true.
A mind map is a METHOD. The mind map should be used as a METHOD to accurately report correct, important information. A mind map may make information look more valid or important than it is, so the author of the map has to be responsible fully researching the information to be presented BEFORE MAPPING. To map information that you do not fully understand is doing a disservice both to the reader and to your reputation.
The links page on websites is dead. Why have boring links that nobody understands on a links page when you can provide links with pictures and context (comments) that are automatically integrated with great formatting and pictures?
These external sites work well and contain my curation work. Both have free versions that probably are within your scope of individual information. All you need to do to integrate these with your blog/website is create the custom graphic for your page and set up a link.
Of the two currently predominant web sites for content curation, I prefer Scoop.it (at least this week) although Pinterest does permit more categorization and also has a great working tools.
Click on the images below to open a new window for each of the external sites.
Kidspiration Maps for iPad came out about a month ago. This is an adaptation of the Kidspiration and Inspiration 9 software available on PC/Mac and the iPad Inspiration app (for tweens to adults). Inspiration is a (concept but also mind) mapping program widely used in schools, and as my friend Hans Buskes (@hansbusked) has demonstrated, management consulting. So for the K-3 set and $350,000+ set, a new tool is available to combat Powerpoint and crayon fatigue.
I am not sure how I feel about using concept mapping at such a young age. I am inclined to want to see the huge research studies of efficacy school systems and educational psychologists are likely to prepare first. On the other hand, I would rather have my own children using this app than most of the so-called “educational” apps or just zapping Zombies.
I think I can say without reservation that the first time an audience sees a Kidspiration concept map presented with high level scientific results at a professional association convention, everybody will wake up laughing in the middle of their Powerpoint fueled naps.
The developers of Kidspiration Maps believe this is a Pre-K to Grade 5 product. I think it is probably best used in Grades K-3.
Some snaps from Kidspiration mapping from when I was playing around. All mapping was done by a retired 62 year old on an iPad 4. A 6 year old is more artistic and accomplished at using an iPad and probably would get better results.
I periodically make recommendations of apps on the Mac, iPad, and iPhone that I find exceptionally useful.
For the 2013 “back-to-school-edition” I picked a rather eclectic group of apps that I use all day as a knowledge worker. Are these the only programs I use a lot. No. But these are the third-party apps I use all day, usually immediately start every time I restart my MacBook Pro, and find very helpful in the generation of new content.
These will actually be a fairly controversial set of program choice. I suggest using a fancy text editor rather than a word processing program for all but the final draft (when it should be polished in Word or Pages). A mind mapping program is continuously open on the MacBook and used to develop ideas, remember thoughts, make lists and schedules. An electronic white board or pin board is indispensable to what I do on the computer all day.
The entire suite of programs I suggest in this #mindmap cost less than $200 in their PRO versions as I write this. In all cases, get the PRO versions and skip the freebie, lite versions.
This set of software selections will probably surprise you.
Click on the image to increase its size.
THIS IS THE ORIGINAL MIND MAP.
The second version has identical content to the first one but uses formatting to make the map more “memorable” (or attention grabbing). In visual thinking, small changes in graphics may make large differences in understanding and remembering.