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social, health, political imagery through the lens of George J Huba PhD © 2012-2019

Posts tagged cooperation

The only way I see to develop effective medical treatments and care models for many of the thousands of rare diseases is to pool the RESEARCH resources that individual countries are spending and the data countries are collecting about individual rare diseases and put those research resources under international control for prioritizing research agenda and ensuring public access to ALL results and research data.

Yes, I know the USA (probably the largest resource contributor) Congress will go in front of the television cameras and say that the failure of the United Nations and the disproportionate contributions to a pooled resource fund will ensure failure. They will point to the failure of the world to effectively coordinate collaborative research on HIV/AIDS and point to politics, homophobia, disrespect, and the hatred of American politics by certain national and fundamentalist groups and say we would be wasting our money by letting Africans and Arabs and the Russians and Chinese and Indians and Asians and South Americans collaborate with the USA on research and ensuring that research leads to effective treatments for at least some rare diseases.

Enough already. Let’s rise to the occasion of solving resource limitations in studying rare diseases and get an effective mechanism in place for expanding the impact of admittedly small research efforts by individual countries through international cooperation. I trust the governments of the world to collaborate, contribute as they can, and help us start to get some of these diseases treatable. Disease knows no boundaries.

In the last century we collectively developed very advanced medical research techniques. In this century we need to use these methods to solve all of the medical problems possible by putting aside the nonsense politics and nationalism and individual egos and predatory profits and focus on solving many medical issues and ensuring access to effective treatment world wide.

Here’s a way to start. Any yes, this is a test of our humanity and commitment to universal human rights of which medical treatment is but one. But let’s start somewhere that should be relatively easy to agree on (and let a few hundred angry politicians in the USA know that the world considers them bratty children and cannot tolerate their obstructionist and oppositional behavior).

Click on the image to expand. And let’s start the process of collaboration.

rare diseases time for effective international cooperation

EU rare disease rare disease

For many years, I was a heavy consumer of cable network news. I had (and still have) a TV in my home office that used to run all day on one or more cable news networks. As I started to participate in social networks and blogs and following the links for news suggested by others, I found social networks a much better delivery system for high quality news, comment, discussion than cable news. “Twitter killed the Cable Network News Star.” My observations about social media and cable network news are shown in the mind map below.

Cable News Versus Social Media

Keyword Boardtopics and subtopics: Cable News Versus Social Media My Conclusions Social Media (Twitter) consensus better less acrimony more cooperative participatory more interesting Traditional Cable News not participatory not multidisciplinary contentious more dogmatic boring talking points Discussed Here cable news Fox NBC CNN CNBC others content knowledge current facts debates learning process issues debates learning acrimony vs harmony consensus cooperation vs competition social media Twitter Google+ LinkedIn Facebook Social Media multiple views citizens professionals politicians students stakeholders repeats short time amplification repetition greater audience greater involvement emotionality controversy no $s most participants no fame illusory illusory in social media factual preferred fosters democratization stakeholder consensus process minimal polarization learning 360 degree knowledge views emotional reactions biases desired outcomes functional reasonably polite positions stated 140 characters news link blog link see many views short time disciplinary stakeholders potential further process steps resolutions solutions in selected networks Cable News divisive competing politicians talking heads financial incentive abrasiveness disagreement politicians attorneys repeats same video clip arguments arguments new video clip interview controversy = profits ratings business plan future fosters competition acrimony polarization selfishness silo thinking dysfunctional group consensus information source not balanced fair valid

In November 2011, I first distributed a framework for getting rid of HIV/AIDS once and for all. Yes, it will be expensive. Yes, it will take international cooperation. Yes countries, agencies, and individuals have to stop behaving like spoiled children. Yes, it can be done. My ideas are shown below in a slight update made in July 2012.