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social, health, political imagery through the lens of George J Huba PhD © 2012-2017

Posts tagged Socialcare

ObamaCare revised/enhanced?

Trump/RyanCare another draft not submitted to Congress?

Within the extant and mythical healthcare plans, additional dementia care services need to be included. Most are cost-neutral or may actually save money while providing better patient outcomes.

Case Management makes existing healthcare services (doctor visits, medications, emergency care) work better. At a very small cost that should actually SAVE money, case management can provide better total patient care, cut unnecessary emergency room visits, and achieve better medication outcomes. What isn’t there to like?

Dementia Caregivers are most often UNPAID, female family members forced to juggle their own jobs/finances, families, and general lives to care for a loved one. Support is required for Dementia Caregivers in the forms of training, support, advice, and FINANCIAL COMPENSATION for their services. They do the work, they should get paid for their time. An upgraded system of paid family caregivers should make DementiaCare more effective and reduce other costs in the healthcare system to such a degree that it will be cost-neutral. An unnecessary hospital stay or emergency room visit can cost as much as $10,000 — $20,000. A family caregiver could be paid for 500 hours at $20 per hour for $10,000. Train family caregivers, pay them, and you have a cost neutral system. What isn’t there to like?

Mental Health issues often lead to huge patient distress, anxiety, and medical management problems. They can frustrate caregivers and lead to nonadherence to medication recommendations. Therapy and counseling can help patients and caregivers as well as cutting overall medical costs. What isn’t there to like?

Group Adult Daycare can provide needed respite for family caregivers as well as important social and recreational experiences for patients, thus enhancing their lives and to some degree ability to function independently. What isn’t there to like?

The following mind model provides some details. Click the image to expand it.

 

People who learn to take responsibility for their own actions could save me a lot of money.

They

  • have less kids born into families that cannot support them saving me money on social programs
  • are less likely to contract STDs especially HIV thus saving me money on STD prevention and treatment programs
  • graduate from high school (and college and grad school) thus qualifying them to be in higher tax brackets and save me from higher tax rates and subsidizing their living costs
  • live longer because they forgo tobacco and drinking alcohol to excess thus saving the entire health care system from huge wasted services
  • pick up their garbage and put it in trash receptacles thus saving me having to pay someone to pick up after them
  • recycle thus cutting the bill for environmental cleanup

The USA should incentivize self responsibility by granting payments to

  • every student who ever graduates from high school
  • every student who ever graduates from college
  • every student who ever earns a graduate degree
  • every 18 year old who has never had an STD
  • every 18 year old woman who has never been pregnant
  • every 18 year old man who has never fathered a child
  • every 21 year old who has never been convicted of a DUI offense
  • every 21 year old who has never used tobacco
  • every 21 year old who has a “normal” weight and is neither obese nor dangerously underweight
  • every 40 year old who has a “normal” weight and is neither obese nor dangerously underweight
  • every 50 year old who has never been convicted of a DUI offense
  • every 60 year old who has a “normal” weight and is neither obese nor dangerously underweight

Incentives would be in the form of one-time tax credits for the individual or the individual’s family. This means that incentives are only paid to workers and their families.

Oh, the government would supply free voluntary services to all residents on birth control methods including condoms freely available to all children old enough to conceive, unlimited voluntary counseling on avoiding self destructive behaviors, unlimited voluntary counseling on leading a healthy life, and unlimited voluntary counseling for reasons of family instability, mental health, child rearing, and birth control. None of these free services would include any components related to any religion. And legitimate and effective education at all levels from preschool through college would be free to any American resident of any age and with support services to ensure anyone can graduate.

If the USA were to provide fairly significant incentives for learning and exercising self responsible behaviors we could produce a citizenry that creates less problems and is less dependent upon social network and support programs for themselves and their children. This will leave a lot of money to spend on those who truly cannot deal with their own medical and psychological problems no matter what they personally do and probably leave some over for lower tax rates.

Wow. Incentives for studying, working hard, becoming a productive member of society, and paying for needed and fully effective programs for all of those who have mental or physical or developmental disease and cannot legitimately assume full responsibility for all aspects of their lives.

I’d love to see a similar set of ways to incentivize healthcare and education workers. Small increases in productivity and job satisfaction among these critical citizens saves a lot of money and produces a much more healthy society.

Oh, I know, I am a dreamer. After all, my proposal could never make it through Congress. Even though it will save lots of money, promote better lives through self responsibility, and leave sufficient resources for those who truly need medical and mental health services because of factors beyond their control, this is truly an anti-American proposal that expects self responsibility and does not let big religion bully small religions, agnostics, or atheists around.

Every once in a while we need a little revolution.

Imagine.

[Musings of a very liberal, very capitalist, individual who believes in self responsibility and taking care of anyone who cannot take care of themselves with first-rate, state-of-the-art programs.]

The mind model (aka mind map) below discusses my vision in developing the dementia focus on this website. I started to build the web site about two years after being diagnosed with a neurodegenerative condition (2012). Thus the entire blog is the work of a developer experiencing dementia while designing and preparing the content for the site. The site discusses my progression through cognitive impairment and decline into dementia. More importantly it discusses how I tried to help myself coordinate and use to full advantage the support and professional expertise made available to me by family, friends, the community, my doctors, and the general world-wide of patients and professionals the major issues.

Nothing in this blog post (or any other on blog post or page on the site) is intended to be, or promoted as medical, psychological, or any other form of treatment. The ideas in this blog are about using some commonsense note-taking and visual thinking methods to possible help you live better with dementia. I tried it on myself (only) and I am encouraged although I freely admit that full scientific study is needed.

These methods and comments will not substitute for medical and other professional treatments. They do not cure dementia. They do not slow down the progress of dementia. For me, at least, the methods have sustained and increased my quality of life and I do spend more time with my family and am more independent and in my opinion think better. But my dementia is not being treated and getting better; what I propose are methods that may make it easier to independently manage selected parts of your life, be in a better mood because you are trying to help yourself, be less of a burden to your caregivers, and report better to doctor what your experiences have been since the last appointment.

Many people are miserable almost all days when they have dementia. If simple, inexpensive cognitive tools can improve some or many of those days, the development of such techniques is a huge step forward.

I hope that others will examine the information here and use it to improve the decisions they, their caregivers, and their doctors and nurses must make about their formal medical treatment.

Here is what appears in the blog posts and elsewhere on Hubaisms.com.

Click on the image to expand it.

why-i-developed-the-hubaisms-com-focus-on-dementia

Click here to see Part 2 of My Vision in a separate window.

still-crazy-after-all-these-years

There are many problems that can plague a person with dementia. Some of these are easily detected but others may be “hidden” because of the nature of the major symptoms of the disease or “hidden” because the person with dementia (or caregiver or in some cases family members) is trying to hide some of the problems from outside observers.

For instance physical, psychological, or financial abuse will be hidden by the abuser and perhaps the person with dementia. Memory loss may make it difficult for the person with dementia to accurately report accidents.

It is important that healthcare providers, caregivers, and family members be trained to identify the hidden problems.

To some degree or another, it is likely that most persons with dementia have some of these hidden problems. For instance, I bump against things all day long, usually because I am rushing around or not paying attention because I am trying to multitask. When asked by a family member or friend where the bruise came from, I have to try to reconstruct where the accident must have happened by thinking through a lot of alternatives for a bruise half-way between my ankle and knee.

Click image to expand.

some-hidden-problems-among-persons-with-dementia

I expect to be adding a lot of posts about (or using) sketchnotes in the next few months to Hubaisms.com. Here is how to find the existing ones and the ones I will add. The information as a sketchnote. Click on the images to expand them.

 

sk-pg-1

 

sk-page-2

Since the beginning of this blog in 2012, I have consistently — with each new version — concluded (from dozens of comparisons with other programs) that iMindMap is the single best program for developing mind maps. Period.

With version 8.0, iMindMap is no longer the world’s best mind mapping program. Rather, it is the world’s best mind mapping program PLUS additional features that make it the world’s best visual thinking environment (or VITHEN using my coined term). Period.

What makes iMindMap 8.0 so valuable as an overall mind mapping and visual thinking tool is that it encourages you to use iterative, hierarchical, nonlinear, big-picture, creative ways of generating ideas, communicating those ideas, and integrating the ideas with the data of images and statistics. There is no tool I know of that is better for these overall tasks and the building of creative models.

I use iMindMap between 3 and 10 hours per day on the Mac, iPad, and iPhone 6 Plus.

Version 8 exceeds Version 7 in that the program has been significantly speeded up both for computer processing and in general usability of all of its advanced formatting features. The increased speed with which advanced formatting can be done encourages more precise and creative visual thinking.

Did I mention it has a very good (becoming excellent) 3 dimensional display mode and provides a much better presentation tool than the PowerPoint standard? The new Brainstorming Mode (file cards on a corkboard metaphor) allows those who like to see words rather than images to brainstorm in the mode most natural to them. I’ll never use the mode but I project many will embrace it.

The iMindMap program has been the best tool I have had to allow me deal with a neurocognitive neurodegenerative disorder and continue to be productive over the past five years. The program permits me to think at a very high level which I cannot do nearly as well with other techniques or other mind mapping programs.

All seven maps shown here are identical except for their format.

[I intentionally did not use any clipart because I did not want distract from the basic creative thinking and model development-presentation functions of iMindMap that are the real core of the program. With any of the variations of this map, if you spend 10 minutes adding selected included clipart or icons, the map will be even more visual.]

The remainder of my review is — appropriately — presented as a mind map.

Click images to expand.

Three styles provided with the iMindMap program.

1iMindMap 8.02iMindMap 8.03iMindMap 8.0




4 Custom Styles I Use in My Own Work and 4 Variations on the Same 3D Mind Map

gh1Imindmap 8.0gh2Imindmap 8.0gh3Imindmap 8.0gh4Imindmap 8.0

Imindmap 8.0 3D4Imindmap 8.0 3D3Imindmap 8.0 3d2Imindmap 8.0 3D

 










bolero cover 3 parts FINAL

 

Living independently or semi-independently with cognitive impairment and early stage dementia is an admirable goal. Remember, however, that there are many cautions and possible problems that you, your caretaker, your family, and your doctors need to be aware of and monitor.

Plan to discuss these (and other) issues with your doctors and others on a regular basis. It is an important part of trying to stay as independent as possible.

Read the warnings. This is CRITICAL information.

Click image to expand.

3Life with  Dementia  Cautions  and Warnings

 

 

 

Blockheads-01 Blockheads-02 Blockheads-05 Blockheads-10 Blockheads-15 Blockheads-21

Sometimes the following trick helps me both code notes (or task lists) and grabs my attention when the ignored task list is floating around on my desk or becomes part of the wad of notes, receipts, and other small pieces of paper that accumulate in my pockets. I review the wad of paper regularly (hopefully finding it before I put the pants or shirt in the laundry and being transformed to lint in the dryer).  This little trick is used by people who make sketchnotes for a living (see the wonderful books by Mike Rohde on sketchnoting). Sketchnoters — because of their business and professional audience — tend to use a more subtle and artistic version of what I do (after all their audience is wearing suits while my audience is me wearing shorts and an old T-shirt). Same principle though.

2014_08_06_09_09_47

[Star Trek may have incorporated the following idea into some of its episodes.]

2014_08_06_09_09_54

2014_08_06_09_10_08

The thick-thin pens are called Fude de Mannen by their manufacturer Sailor and fairly inexpensive. A much more elegant and expensive option that does the same thing is any Sailor fountain pen with a Zoom nib. You can also do the same shift between thick and thin inexpensively with a Noodler’s flex pen or many calligraphy pens (the Japanese ones are best and brush pens work even better) or much more elegantly and expensively with either a Pilot Falcon pen or any Pilot pen equipped with an FA nib. I have no commercial relationship to any of these companies. The odds of finding any of these pens in a brick-and-mortar store in the USA are fairly low but they are available widely on the Internet with many coming directly from Japan (yup, they ship anywhere).

2014_08_06_09_10_01

I use different writing implements to vary things, color code, and even slow myself down (like the decorative fonts do) in order to increase the time for memory encoding, to build in uniqueness that grabs attention, and to amuse myself (I am easy to amuse).

Many of these “tricks” are the same as those as used in mind mapping without the most important feature of structuring, restructuring, and formally associating many ideas.

The next logical step after these kind of notes is mind mapping which I strongly endorse. On the other hand, some people just want to takes notes and may not want to take the time to carefully think through them or organize their thoughts, and for those folks at least remember this.

&&& the purpoSe of noteS is to REmemBER in parT because the noteS are MEMOR(Y)able and you pay more attention to them ***

While I cannot prove this, it is my guess that these techniques will also be useful for those with memory and attention problems like normal aging, cognitive impairment, dementia, Alzheimer’s, and ADHD. But all of these conjectures require empirical research to substantiate and are just WAGs (Wild Ass Guesses) on my part at this time.

Click image to expand.

JULY 4 THOUGHTS  FOR A BETTER  USA

Click on image to expand.

Drum roll please …

Mac Mind Map  App Ratings  June 2014  g j huba phd  ✮✮✮✮✮

 

Notes

  1. Most other web sites that rank mind map apps carry advertising from at least several different producers of these programs while I do not. This may or may not explain my greater willingness to differentiate sharply between the apps.
  2. Your idea of what a great mind map app should be may differ from mine resulting in different ratings. Mine are particularly relevant for scientific, health, education, and personal use rather than corporate outline formatting. In fact corporate outline formatting in “mind map” programs does not really produce true mind maps, but most corporate customers do not know the difference. Learn why Buzan-style mind maps will perform far better than the “formatted outline” maps produced by many of the best selling programs before committing to one model or the other.
  3. The programs continuously change (most copy each new version of iMindMap after its release) and my ratings change fairly often.
  4. I communicate with some of the app developers (as well as other independent reviewers) via email. I try not to let these interactions with nice people and arrogant people and people with crummy business models (and crummy customer support) and development geniuses color my ratings.
  5. These ratings apply only to Mac software. I do not use any of these programs on a PC. After 25 years of 40-80 hours of PC use per week, I switched to a real computer and use Macs exclusively.
  6. I will release separate ratings for iPad apps, but in general those programs that are especially good on the Mac tend to be especially good on the iPad. Note that while I do not believe that the Mac version of Inspiration is a particularly good app, I think that the iPad implementation is among the very best.
  7. The apps I review are full commercial versions. I have yet to find a free mind map app that is even close to the best paid apps in quality and usability.
  8. Virtually all of the paid apps have free evaluation periods. Most periods are 30 days which is plenty of time to form your own judgment. Make use of the opportunities provided by the developers and vendors.
  9. And yes, the three programs that I intend to use 90% of the time or more are iMindMap, iMindQ, and iThoughtsX. My use is about 85% iMindMap and 2.5% each of the others. I spread the other 10% of my usage around, often experimenting with other programs just to see if they better fit specific uses or types of users.

This mind map that follows is the same as that above reformatted for “3D” presentation.

Mac Mind Map  App Ratings  June 2014  g j huba phd  ✮✮✮✮✮ 3d

 

I frequently tweet about neurological diseases, sending out links to US government and major foundation web sites. These tweets are among the most retweeted and favorited of those I distribute.

As you may have inferred as you look at the fact sheets distributed, there are commonalities among many of these diseases above and beyond the fact that these are all diseases of the nervous system.

Very few of these diseases have treatments. Most of these diseases are rare and often not detected by primary care physicians or even related specialists like psychiatrists. Medications are frequently used off-label for controlling symptoms like depression, anger, tremor, and many others but these treatments are rarely effective for a long time, if at all, for most patients. Because these are rare diseases and neurological research itself is quite expensive, a small portion of the US medical research budget is spent looking for cures or effective symptom control.

The following mind map shows some of the commonalities among the neurological diseases. Click on the image to expand it.

neurological diseases features common to many conditions

The next mind map is identical to that above. The formatting has been changed so that you (and I) can judge if an alternate format is more useful for certain audiences.

neurological diseases features common to many conditions2

Here is a technique I would try with someone with cognitive impairment. It might also work well with a child, an elder, or anyone else in-between who needs a little help with organization and planning. A caregiver can prepare a mind map or you can prepare one for yourself.

I find the size of standard business envelopes (#10 in the USA) to be just about perfect as a daily information catcher. You can write your schedule on the front and slide the envelope in a pocket, small bag, or the inner pockets of most men’s jackets either unfolded or folded. And since this is an envelope, throughout the day as you pick up receipts, reminder cards for your next appointment with the dentist, a flyer about a concert and all the other little tidbits of life that get lost in your pocket and end up in the clothes washer you can insert them into the envelope and have a good chance of not losing some important information.

Using a mind map instead of a list on the front of the envelope can engage the user, permit color coding, and makes it easier to remember the content.

Takes a couple of minutes.

Yup boss, I have the receipt from lunch.

Notes:

  1. I printed the mind map on an actual business envelope and then scanned it. The green paper was just a background for the scan.
  2. You can use any style you like for the mind map. I chose a font designed for individuals with dyslexia just to illustrate tailoring the content and style of the map to the individual using it.
  3. This mind map was designed in iMindMap. If you wish you can add clipart or photos to the branches; typically I would not just because of the small size of the envelope. Bright colors can substitute for images to engage attention and color code sections.
  4. One can change the map simply by crossing out information that has changed and making notes on the map with a pen.

I think that this can be a very good technique for a paid or family caregiver of someone with cognitive impairment. Prepare the envelope in the morning or preceding evening and go over it with the patient when it will be used (mornings are preferable). I did not put the person’s name on the envelope since the front or inside may contain private information (names of doctors and similar information like medication reminders). I would not put medications in the envelope as they fall out too easily. It may be useful, however, to carry a small amount of paper money in the envelope. Also a standard card with the the caregiver’s first name and telephone-email may prove helpful should there be a health or other problem.

Click the image to expand it.

Scan2014  26

 

Governments and other public entities are increasing their use of web sites as the primary publication outlet for medical, human services, and research information.

The transition to electronic publication saves money as well as other resources and at the same time is much more environmentally-friendly. At least a few forests in the world owe their lives to the decision of some of the largest paper users in the world to move to electronic publishing.

Electronic publishing offers a special advantage not generally available in traditional publishing on paper. On the Internet it costs no more to include colors, simple and complex images, and images that expand to show greater detail. And it is much less expensive for publications to present, in addition to their traditional text, graphics maximized facilitate creative thinking, memory retention, “big picture thinking,” and explanations that may be easier for individuals using other languages and from other cultures to understand.

Not everyone in the world does their primary thinking using words. Many — including me — find visual information more valuable, easier to assimilate, and more supportive of creative insights.

How often do you see a #MindMap, #ConceptMap, #FlowDiagram, or other visual representation on a government web site? While there are plenty of pie diagrams and line charts, such representations of data are quite limited and do NOT incorporate informed interpretation of information. Also, while there are plenty of pictures on government web sites, these images do NOT incorporate informed interpretation of information and they may give a quite biased view of data.

I do not recall ever seeing a #MindMap, #ConceptMap, or #FlowDiagram on the (otherwise extremely useful and high quality) web sites of the US Social Security Agency, the abstracts in the PubMed medical and scientific information databases, and the US government’s explanations of research and social programs, diseases and social conditions, and social service eligibility forms.

World-wide thinking is increasingly visual. Official information should be presented using both the traditional text-based methods currently employed AND newer, very effective methods of visual thinking. The brain is not limited to a single form of thinking and in fact research shows clearly that some of us (including me) handle visual data far more effectively and perform some of our best work using visual thinking techniques. Research also suggests that as the brain changes through disease processes such as Alzheimer’s disease and other more rare neurodegenerative conditions, as verbal centers suffer damage, visual centers may assume increasing importance.

While I strongly prefer #MindMaps as the method of presenting visual information, I could accept #ConceptMaps, #FlowDiagrams, and other visual thinking representations as at least a first start.

Of the mind mapping methods, I strongly believe that the Buzan-style organic mind maps including color-coding, size-coding, radiant information structures, and methods designed to optimize memory retention, memory retrieval, creativity, and cross-cultural communication are the most effective. A recent addition to mind mapping has been Huba’s method of mind modeling that adds all of the components shown in the figure below.

Click image to expand.

IMPROVING GOVERNMENT INFORMATIONAL WEB SITES

Comedy and tragedy theatrical masks

Part 1 of this series of posts can be accessed in a separate window by clicking here.

Art therapy is fairly well established as a non-medical intervention that can be made for those living with dementia in order to improve certain aspects of quality of life.

My hypothesis is that if individuals with dementia or other levels of cognitive impairment can be taught to use (and possibly create) ORGANIC mind maps, it is likely that the patient will receive more than just the benefits of standard art therapy. Major cognitive refinements from mind mapping such as maximizing creativity, memory processes, organization, and visual thinking can be added “on top of” the creation of one’s own drawings or paintings. At one level, mind mapping is disciplined and expansive creation of art. It is likely that at least some of those living with cognitive impairment can use the visual thinking tools offered by Buzan-style ORGANIC mind mapping to improve their optimism and creativity and other aspects of quality of life.

You might want to consider acquiring visual thinking skills before you have the onset of possible cognitive impairment as you age.

Click on the mind map image to expand.

Hypothesis  Mind Map = Art Plus  for those with  cognitive impairment

To understand the mind map better from the clinical experiences of the patient, family, and healthcare providers, you may wish to …

view this trailer …

or this excerpt

https://www.youtube.com/watch?v=qqQ6JNnNiNg

Search the Internet to buy the whole video or the book as pictured below  …

bothcovers

 

The book and the video have complementary information and both should be studied.

Aaahh … “hard science double-blind” research designs.

How do you apply such a design to determine if visual thinking-art therapy-visual cognitive remapping strategies help those who live with cognitive impairment? Do you put a paper bag over the head of the patient and over the head of the healthcare provider-art therapist-social worker? Or blind them.

I don’t think so. Even scientists who bow to the Science God (often noting the relationship to Thor) are not that dum or stoopid. Scientists willing to accept “softer” data and designs like clinical observations, case studies, interviews, and knowledgeable peer judgments are willing to accept the relationship found for some people showing mind mapping is an effective (and cost-effective) way of making some situations less stressful and more productive and life quality enhancing for those living with cognitive impairment.

However, try searching the scientific literature with Google or PubMed for studies of mind mapping and cognitive impairment-dementia. Not a lot of “hard science” results to be found. I see this not as a failure of the efficacy of the method of mind mapping but rather the fact that the brick walls of hard science are not broken down by the sound of trumpets or the roar of a lion. There is a missing link and probably many studies that indirectly demonstrate that mind mapping works well with cognitively impaired patients but are not labeled as such.

Last week I read what I judge to be a highly credible and careful study by two neurologists and an art therapist that was published in April 2014. I think they found the missing link and data supporting it, although they did not call the intervention technique mind mapping for those with cognitive impairment. Instead they called the intervention-life skill to be ART THERAPY for those with Alzheimer’s disease and other dementias.

There is a LOT of literature showing that Art Therapy increases social interactions, understanding, motivation, enjoyment of life, associations, and perhaps memory among those living with dementia, and even for those in the latter stages of the disease.

What is Art Therapy? Applying color, form, creative ideas, social interactions (with a teacher and other participants) and positive psychological states to try to understand the world better and communicate the perceptions of the artist.

What is ORGANIC (Buzan-style) mind mapping? Applying color, forms, creative ideas, interactions, and positive psychological states PLUS radiant, hierarchical, and nonlinear organization to try to understand the world better and communicate the perceptions of the artist.

Is this conceptualization of mind mapping with and by the cognitively impaired as an enhanced formulation of ART THERAPY (conducted by a professional, family or friends, caregivers, the patient her- or himself) to help individuals use visual thinking strategies to navigate their world a break through one? I think it is the scientific missing link and we can bootstrap from the findings that Art Therapy is a good intervention for dementia to ORGANIC mind mapping may be a good intervention for dementia and perhaps will achieve a greater effect than less focused “art.”

Here is a link to the paper. Click on it to retrieve the article.

screen_0050

As a technical note, the authors’ use of meta-analysis to combine the results from a number of independent studies selected for their methodological soundness is an accepted one which has become popular in the past three decades.

I want to see much more research on this topic. BUT, I think that we are currently moving in the correct direction in a “leap frog” way with great speed.

Keep both eyes open and click on the image below to expand it.

When you are done, part 2 can be accessed in a new window by clicking here.

Missing Link  Reducing the Effects  of Dementia with  Mind Mapping  (Huba's Theory)

 

If you are becoming cognitively impaired or transitioning into full blown dementia, mind maps MIGHT be useful for you to communicate, think, and remember.

Many different sources can help you prepare maps and use them to communicate with you. Or, you can make them for yourself and to inform others. For instance, I usually take a mind map along when I have a routine medical appointment. All of the doctors I have used them with has commented that the maps are a very easy and thorough way to understand what has been going over 3-, 6-, or 12-months. Probably quite useful for those with cognitive impairment/demential or those visiting a doctor for an infection, skin examination, or just a regular physical exam.

Click image to expand.

MIND MAPS THAT MAY BE VERY USEFUL  FOR THOSE WITH  COGNITIVE IMPAIRMENT  CAN BE MADE BY ...

 

Back in 2012, I published a mind map on this blog suggesting that giving people one chance to learn (as in, you only get one taxpayer-subsidized educational opportunity) or to receive free treatment for drug abuse (as in, if you can’t quit the first time you are morally undeserving because you do not have the moral strength) or to receive specialized behaviorally-related healthcare (as in, you let yourself get fat or nicotine-dependent or out-of-shape so you pay the consequences) is an obscene abuse of other individuals,

It’s just as true now as it was then. I know more about mind mapping now and am even more irritated by those who want to balance the budget by not helping others enough, or even at all. So I thought I would revise my mind map and make this a post a lot more angry that we do not give people second (or even eighteenth chances).

Show me a drug abuse treatment  provider who says you can go through treatment one time and it will “stick” and I’ll show you a snake oil salesperson who is trying to sell services to 18 year old entertainment industry billionaires surrounded by a media feeding frenzy. Do you really want to deny additional free education to someone who realizes in their 30s or after going to prison or after achieving a stabilized life without drugs or while serving our country in the Armed Services that they need more education to get good jobs and be successful and much better citizens? Mental health services should not be denied or limited to tossing people pills because someone lost the genetic lottery and has a life-time disease or experienced trauma (like a rape victim or maybe somebody unlucky enough to have lived in an earthquake or hurricane zone or in a dangerous neighborhood or in an Armed Services encampment in Afghanistan, Iraq, or Vietmam).

Enough said. The picture will tell more than 100,000 words ever could. And if one fails after 18 chances?

Well, there’s always a 19th chance or a 36th chance waiting. [And a special ring in hell waiting for those who would only offer people one chance at happiness or productivity or health. Or the politicians who supported this position to get (re)elected.] Oh, and if you were one who denied others a second chance, you have a second chance to act in a more moral and supportive way and give others that second or 18th chance.

Click on the image to expand. Then think about whether we should invest in people and families or in creating the wealthiest uber-class in the history of the United States?

18th Chance 2014

 

 

Just seeing this set of pictures and the brief comments will probably elicit a large number associations and feelings you have about each of these public figures. The pictures make the associations strong and emotional.

I also expect that today’s Boomer Generation will have a very broad range of reactions to these stimuli for extracting memories. I certainly find the memories flooding back as I look at this map.

I believe that picture mind maps are very powerful tools for helping people recall memories from throughout their lives. Many maps of this type might be quite useful to those experiencing cognitive impairment or early-mid stages of dementia. The pictures can be associated with many events in a lifetime, most of which have nothing at all to do with the president’s smoking behaviors. [And yup, in addition to claiming “I did not have sex with that woman,” Bill also claimed he did not inhale [marijuana].)

potus  smokus

You heard it here first …

Taking information from a dubious (wrong!) source and putting it into a mind map does not make the information more credible. Bad advice is bad advice whether is is well-formatted and pretty or not.

Talk to a healthcare provider or seek medical and psychological information, whether in a traditional form or a mind map, from a highly credible online source or a highly credible book.

P T Barnum would have used mind maps. After all, there is a sucker born every minute.

Know the source behind the map.

Click image to expand.

2Who are You   Most Information  in Psychological  or Medical Mind Maps  on the Internet  is Garbage

 

The golden rule of using mind maps in healthcare settings is to provide information to a patient, the patient’s family, or another service provider. It’s all about customizing any “standardized” templates used to fit the patient’s needs, beliefs, behaviors, priorities, and background. Click mind map to expand.

FINAL Mind Mapping for a Patient  from the  Patient's Perspective  It's All About Me,  Stoopid

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stop making publicizing your disease your end goal. You and the other 350 or 3,000 or 25,000 or 199,999 people with the disease will hardly be heard above the shouts of those advocating for funds for cancer, coronary disease, diabetes, HIV/AIDs and other diseases affecting many medically and/or politically.

And in the current system of new drug development, Big Pharma is going to be more interested in developing treatments for gastroenterological disease (heartburn), STDs (avoidable), erectile dysfunction, safer birth control, cancer, heart disease, and obesity.

Get smart.

Your 5,000 sufferers should collaborate with the 350 individuals with another disease and the 199,999 with another and all of the rest of them to be a large and huge advocacy group for encouraging change. Your illness group may not be the first to get attention if changes are made, but somebody will be and as treatments are developed for one rare disease they might also be applicable to other related rare diseases.

This is clearly a situation in whch cooperating with those with other rare diseases will ultimately yield better results for all than screaming ME FIRST on the Internet in social media.

The existing laws and administrative rules probably do not go far enough in encouraging drug companies to develop pharmaceuticals for rare and orphan diseases. Advocate for better incentives and decreased bureaucracy for developing new pharmaceuticals to treat a few thousand. Maybe even the staid Nobel Prize committee will even make an award to somebody who makes a huge research contribution that advances the development of treatments for a rare disease and top research universities will create endowed professorships for high talented physicians and others who study a rare disease.

Click image to expand.

ENCOURAGE MORE RESEARCH  ON RARE AND ORPHAN DISEASES

Rare diseases  are often overlooked in the public’s collective mind and the priorities of elected officials, at least in part because many do not know about the diseases and the lack of effective treatment for most.

Spread the knowledge. Click the image for more information.

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I put the first version of the mind map shown below on Twitter about 3 years ago. Several revised (evolving) versions have been posted on this blog site. The map is about the rights we all should be guaranteed no matter where we live, our color and gender, our sexual orientation, our religion, our beliefs, and our genetic gifts and challenges.

I keep working on this map because it might help at least 1 of the 90% of the world’s leaders who trample on human rights daily to at least start to realize what universal human rights are. [And I concede that the USA where I have lived my whole life has a very big foot and a heavy shoe and does a lot of stomping all around the world as well as in our 50 states.]

Is there some part of providing every world citizen with enough healthy food, clean water, healthcare, safety, education, shelter, basic freedom, and hope for a brighter future that is hard to understand? Do you really think a strong military presence so that you can plunder the human rights and resources of another country or your own population is acceptable?

Click on the mind map to expand it. The current version was developed in the new iMindMap 7 release.

UNIVERSAL  HUMAN  RIGHTS 2013

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https://twitter.com/kim4Commission/status/407296707928403968

https://twitter.com/nakedken/status/407278523666427904

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This post does not contain medical advice. None of the methods described are known to be therapeutic. What is described are possible note-taking or information-sharing models for patient-client-self management.

For the past few months, I have been focusing on the use of mind maps to assist people with dementia, cognitive impairment, or cognitive decline deal with various issues that arise as they work hard to maintain independence.

You can access those posts simply by using the search box at the bottom of each post with keywords like “dementia” or “cognitive.” Several dozen blog posts will pop up with most very recent.

But the reality is that as dementia or other cognitive problems progress, many patients will require increasing amounts of supervision and care. Mind maps may prove to be useful in assisting a caregiver to help in a more effective, and cost–effective, manner.

  1. Just as those with cognitive decline may be able to remember, plan, express themselves, and document their lives in maps, caregivers may be able to use these techniques themselves to provide better care and client management. Mind maps may potentially help the caregiver recall the preferences of the client, as well as the client’s life history, important events, significant people, and life style
  2. Caregivers may find that visual information recorded in mind maps provides a good way for the caregiver and the client to start discussions.
  3. Caregivers may find that clients can express themselves better with pictures, drawings, doodles than in words.
  4. Caregivers may find that their own notes from each day are more useful if captured in the format of mind maps.
  5. Caregivers may find that mind maps may be used for brainstorming by themselves, with healthcare providers, with family members, and with the client ways to organize daily events, select food and clothing, remember medications, and organize social events.
  6. Caregivers may find it useful to record their own feelings in mind maps as a way of dealing with the emotional and physical stress of caregiving.
  7. The daily calendar — including doctor visits and other appointments and visitors — may be easier to prepare as a mind map and much more useful to the client.

There are dozens of other ways mind maps might be useful in caregiving. I am going to write many posts on this topic in the next months. For now, here are a few examples with many more to come.

Click on each of the images to expand it.

Preparing a Mind Map (with the help of the client or family members) of the Client’s Preferences.

Preferences  Hypothetical  Individual

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Preparing a Mind Map (with the help of the client or family members) of the Client’s Religious Beliefs.

Religious Beliefs

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Preparing a Mind Map (with the help of the client or family members) of Things the Client Especially Enjoys.

SPECIAL TREATS

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Preparing Mind Maps from the Warning Brochure that Comes with Each Prescription Refill.

possible  side effects winter

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Preparing a Mind Map of Each Day for Your Use and That of the Client.

Today  Tuesday  November 12

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Technical notes. The sample mind maps here were all prepared in the computer program iMindMap, which I strongly prefer both for the way it facilitates mapping and the way it typically produces maps that can be very useful. There are alternate programs that can be used, although perhaps not with the same level of good results possible with iMindMap. Because the maps will be used by caregivers and clients, they will tend to be most effective if colorful, “bold,” graphically interesting, and with large typefaces all of which are easily done in iMindMap. Acceptable alternatives to iMindMap would be iThoughts, Inspiration on the iPad (but not on the PC or Mac), MindNode, and XMIND, although each of the alternatives will be more difficult to use to produce maps for clients with cognitive decline than is iMindMap. There are free mind map programs available or free demo versions. This is a case, however, where paid versions are far more cost-effective than the free versions or most free programs. There is a second type of mind mapping program more suitable for business purposes (the major one is MindJet MindManager and also MindDomo and MindMeister) than those caregiving applications discussed here.

The only way I see to develop effective medical treatments and care models for many of the thousands of rare diseases is to pool the RESEARCH resources that individual countries are spending and the data countries are collecting about individual rare diseases and put those research resources under international control for prioritizing research agenda and ensuring public access to ALL results and research data.

Yes, I know the USA (probably the largest resource contributor) Congress will go in front of the television cameras and say that the failure of the United Nations and the disproportionate contributions to a pooled resource fund will ensure failure. They will point to the failure of the world to effectively coordinate collaborative research on HIV/AIDS and point to politics, homophobia, disrespect, and the hatred of American politics by certain national and fundamentalist groups and say we would be wasting our money by letting Africans and Arabs and the Russians and Chinese and Indians and Asians and South Americans collaborate with the USA on research and ensuring that research leads to effective treatments for at least some rare diseases.

Enough already. Let’s rise to the occasion of solving resource limitations in studying rare diseases and get an effective mechanism in place for expanding the impact of admittedly small research efforts by individual countries through international cooperation. I trust the governments of the world to collaborate, contribute as they can, and help us start to get some of these diseases treatable. Disease knows no boundaries.

In the last century we collectively developed very advanced medical research techniques. In this century we need to use these methods to solve all of the medical problems possible by putting aside the nonsense politics and nationalism and individual egos and predatory profits and focus on solving many medical issues and ensuring access to effective treatment world wide.

Here’s a way to start. Any yes, this is a test of our humanity and commitment to universal human rights of which medical treatment is but one. But let’s start somewhere that should be relatively easy to agree on (and let a few hundred angry politicians in the USA know that the world considers them bratty children and cannot tolerate their obstructionist and oppositional behavior).

Click on the image to expand. And let’s start the process of collaboration.

rare diseases time for effective international cooperation

EU rare disease rare disease