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social, health, political imagery through the lens of George J Huba PhD © 2012-2017

Posts tagged SocialCare

I have been a HUGE fan of the Olympics since I was a very little kid. In 1984 I got to go to the Olympic events in Los Angeles every day for two weeks, on many days with my father. That was the year that the Soviet Union boycotted the games because the USA had boycotted the Moscow Olympics in 1980. Heck, I thought it was great — the USA and East Germany (who came) won all of the gold medals! Months earlier when local pundits in Los Angeles said Los Angelenos were too apathetic to purchase expensive Olympic tickets especially with the Soviets and most of the Eastern Bloc boycotting as it would not be a real sporting event, I had bought as many tickets for the “finals” as I could get my hands on. Later I sold the extra tickets as Los Angeles fell in love with the games. I made so much money that the expensive tickets I had bought for the entire family of 7 that we used ended up were effectively free since the profits covered the cost of the tickets we used. Street enterprise at its best. My tickets became worth more because the Soviets didn’t come as all Americans became Olympic fans the year we won all the golds.

Winning the race to live well with dementia is like running the 10K race at the Olympics. Everybody has to pace themselves at the beginning so that they can learn about their opponents. In the final stages of the race they speed up and sprint their fasted the last 200 meters.

A mind model of the dementia race strategy is shown below. Click the image to expand it.

I think I am winning my race to live life to its fullest while having dementia. I’m getting ready to claim that gold medal. You can win your race too. Think about what you are doing and strategize like a 10K runner. Learn all you can in the beginning and then speed up later as your new knowledge kicks in.

race-2-bigger

 

3d-race

 

Blockheads-23

 

Eldercare. Elder care.

Needed. Big bucks.  Always millions of new customers. Monthly. Government pays bills.

Many needed products useful in all cultures. Sell in all countries.

Duh. Go start up a start up. Don’t gouge patients. Get rich. Do good.

Anything you don’t understand?

 

Eldercare  Start-ups

 

Living independently or semi-independently with cognitive impairment and early stage dementia is an admirable goal. Remember, however, that there are many cautions and possible problems that you, your caretaker, your family, and your doctors need to be aware of and monitor.

Plan to discuss these (and other) issues with your doctors and others on a regular basis. It is an important part of trying to stay as independent as possible.

Read the warnings. This is CRITICAL information.

Click image to expand.

3Life with  Dementia  Cautions  and Warnings

 

 

 

Blockheads-01 Blockheads-02 Blockheads-05 Blockheads-10 Blockheads-15 Blockheads-21

It you go back a few posts you will see that I have been pretty sure recently that creative visualization (through drawing, sketching, doodling, painting, finger painting, etc.) has a strong link to creative organic (Buzan-style) mind mapping.

Scan2014  33

I don’t consider myself “artistic” in the traditional sense although I have been drawing a bunch of inky squiggle marks, cartoons, and emphases in my notes for as long as I can remember (back to elementary school 55 years ago). When I was in college I sometimes felt overwhelmed by the “pictures” I had doodled on my notes in my math and science courses and recopied the notes so that others would not see the open pages of my notebook with the doodled smiling faces, arrows, “middle fingers,” large letter expletives,” dollar signs, Greek letter shortcuts (in my profession I have an affinity for the Greek letter psi 𝚿 used as psychology, and the Greek letter sigma 𝝨 used in statistics to signify the sum of numbers and in my notes next to summations I make), traffic lights, stop signs, and lots of different kinds of squiggles and arrows. I also draw lots of cartoon faces that look nothing like anyone I know.

On a typical page of my notes two-thirds of the page is usually covered with cartoony figures and symbols and I begrudging print in some of an outline of what is being said along with color annotations. My typical notes use at least three colors.

Yeah, but my artistic ability still stinks. Can’t even draw my dog so that she will look like my dog but I do know that any cartoon figures in my notes that look anything at all like a black dog are my beloved Newfie.

2014_05_27_21_09_01

Deborah Putnoi’s book The Drawing Mind shares much with the organic mind mapping theory of Tony Buzan. There is an emphasis on coding information in multiple channels (as in her exercises in drawing scents and sounds), using visual thinking methods, employing emotionally meaningful symbols, and not worrying about “photographic” drawing.

Putnoi’s approach is on meaningful, creative, visual coding of information. She emphasizes the process of coding information that may not be visual into visual symbols and grouping those symbols (“marks”) together to create visual meaning. This type of encoding is an important part of visual thinking.

If you like organic mind mapping and want to explore extensions that can go far beyond adding some clipart to a computer generated mind map, this book is extremely useful. I see a great degree of complementarity between Buzan’s radiant thinking theory and Putnoi’s theory of coding information into a visual form. Historically, Buzan’s theory has incorporated “hand drawn” (that is creative, personally meaningful) elements since it’s earliest development.

And, the subtitle on Putnoi’s book — Silence You Inner Critic and Release Your Creative Spirit — gets a “four thumbs up” (actually two thumbs and two big toes, visualize signaling that) rating for its significance to both her work on drawing and Buzan’s theory of mind mapping.

Highly recommended. And bring your pencil as that is needed to read the book.

It is my personal belief that Putnoi-type symbolizations may be very useful those in early stages of Alzheimer’s disease and other types of dementia as a way to code and save visual information and potentially express this information to others. But that is my hypothesis, and whether it is true or not, Ms Putnoi’s book is an exceptional one that teaches some critical skills in visual thinking through a series of “exercises” or studies of process..

Available at major Internet book sellers.

Scan2014  32

Here is a technique I would try with someone with cognitive impairment. It might also work well with a child, an elder, or anyone else in-between who needs a little help with organization and planning. A caregiver can prepare a mind map or you can prepare one for yourself.

I find the size of standard business envelopes (#10 in the USA) to be just about perfect as a daily information catcher. You can write your schedule on the front and slide the envelope in a pocket, small bag, or the inner pockets of most men’s jackets either unfolded or folded. And since this is an envelope, throughout the day as you pick up receipts, reminder cards for your next appointment with the dentist, a flyer about a concert and all the other little tidbits of life that get lost in your pocket and end up in the clothes washer you can insert them into the envelope and have a good chance of not losing some important information.

Using a mind map instead of a list on the front of the envelope can engage the user, permit color coding, and makes it easier to remember the content.

Takes a couple of minutes.

Yup boss, I have the receipt from lunch.

Notes:

  1. I printed the mind map on an actual business envelope and then scanned it. The green paper was just a background for the scan.
  2. You can use any style you like for the mind map. I chose a font designed for individuals with dyslexia just to illustrate tailoring the content and style of the map to the individual using it.
  3. This mind map was designed in iMindMap. If you wish you can add clipart or photos to the branches; typically I would not just because of the small size of the envelope. Bright colors can substitute for images to engage attention and color code sections.
  4. One can change the map simply by crossing out information that has changed and making notes on the map with a pen.

I think that this can be a very good technique for a paid or family caregiver of someone with cognitive impairment. Prepare the envelope in the morning or preceding evening and go over it with the patient when it will be used (mornings are preferable). I did not put the person’s name on the envelope since the front or inside may contain private information (names of doctors and similar information like medication reminders). I would not put medications in the envelope as they fall out too easily. It may be useful, however, to carry a small amount of paper money in the envelope. Also a standard card with the the caregiver’s first name and telephone-email may prove helpful should there be a health or other problem.

Click the image to expand it.

Scan2014  26

 

Governments and other public entities are increasing their use of web sites as the primary publication outlet for medical, human services, and research information.

The transition to electronic publication saves money as well as other resources and at the same time is much more environmentally-friendly. At least a few forests in the world owe their lives to the decision of some of the largest paper users in the world to move to electronic publishing.

Electronic publishing offers a special advantage not generally available in traditional publishing on paper. On the Internet it costs no more to include colors, simple and complex images, and images that expand to show greater detail. And it is much less expensive for publications to present, in addition to their traditional text, graphics maximized facilitate creative thinking, memory retention, “big picture thinking,” and explanations that may be easier for individuals using other languages and from other cultures to understand.

Not everyone in the world does their primary thinking using words. Many — including me — find visual information more valuable, easier to assimilate, and more supportive of creative insights.

How often do you see a #MindMap, #ConceptMap, #FlowDiagram, or other visual representation on a government web site? While there are plenty of pie diagrams and line charts, such representations of data are quite limited and do NOT incorporate informed interpretation of information. Also, while there are plenty of pictures on government web sites, these images do NOT incorporate informed interpretation of information and they may give a quite biased view of data.

I do not recall ever seeing a #MindMap, #ConceptMap, or #FlowDiagram on the (otherwise extremely useful and high quality) web sites of the US Social Security Agency, the abstracts in the PubMed medical and scientific information databases, and the US government’s explanations of research and social programs, diseases and social conditions, and social service eligibility forms.

World-wide thinking is increasingly visual. Official information should be presented using both the traditional text-based methods currently employed AND newer, very effective methods of visual thinking. The brain is not limited to a single form of thinking and in fact research shows clearly that some of us (including me) handle visual data far more effectively and perform some of our best work using visual thinking techniques. Research also suggests that as the brain changes through disease processes such as Alzheimer’s disease and other more rare neurodegenerative conditions, as verbal centers suffer damage, visual centers may assume increasing importance.

While I strongly prefer #MindMaps as the method of presenting visual information, I could accept #ConceptMaps, #FlowDiagrams, and other visual thinking representations as at least a first start.

Of the mind mapping methods, I strongly believe that the Buzan-style organic mind maps including color-coding, size-coding, radiant information structures, and methods designed to optimize memory retention, memory retrieval, creativity, and cross-cultural communication are the most effective. A recent addition to mind mapping has been Huba’s method of mind modeling that adds all of the components shown in the figure below.

Click image to expand.

IMPROVING GOVERNMENT INFORMATIONAL WEB SITES

Comedy and tragedy theatrical masks

Part 1 of this series of posts can be accessed in a separate window by clicking here.

Art therapy is fairly well established as a non-medical intervention that can be made for those living with dementia in order to improve certain aspects of quality of life.

My hypothesis is that if individuals with dementia or other levels of cognitive impairment can be taught to use (and possibly create) ORGANIC mind maps, it is likely that the patient will receive more than just the benefits of standard art therapy. Major cognitive refinements from mind mapping such as maximizing creativity, memory processes, organization, and visual thinking can be added “on top of” the creation of one’s own drawings or paintings. At one level, mind mapping is disciplined and expansive creation of art. It is likely that at least some of those living with cognitive impairment can use the visual thinking tools offered by Buzan-style ORGANIC mind mapping to improve their optimism and creativity and other aspects of quality of life.

You might want to consider acquiring visual thinking skills before you have the onset of possible cognitive impairment as you age.

Click on the mind map image to expand.

Hypothesis  Mind Map = Art Plus  for those with  cognitive impairment

To understand the mind map better from the clinical experiences of the patient, family, and healthcare providers, you may wish to …

view this trailer …

or this excerpt

https://www.youtube.com/watch?v=qqQ6JNnNiNg

Search the Internet to buy the whole video or the book as pictured below  …

bothcovers

 

The book and the video have complementary information and both should be studied.

Aaahh … “hard science double-blind” research designs.

How do you apply such a design to determine if visual thinking-art therapy-visual cognitive remapping strategies help those who live with cognitive impairment? Do you put a paper bag over the head of the patient and over the head of the healthcare provider-art therapist-social worker? Or blind them.

I don’t think so. Even scientists who bow to the Science God (often noting the relationship to Thor) are not that dum or stoopid. Scientists willing to accept “softer” data and designs like clinical observations, case studies, interviews, and knowledgeable peer judgments are willing to accept the relationship found for some people showing mind mapping is an effective (and cost-effective) way of making some situations less stressful and more productive and life quality enhancing for those living with cognitive impairment.

However, try searching the scientific literature with Google or PubMed for studies of mind mapping and cognitive impairment-dementia. Not a lot of “hard science” results to be found. I see this not as a failure of the efficacy of the method of mind mapping but rather the fact that the brick walls of hard science are not broken down by the sound of trumpets or the roar of a lion. There is a missing link and probably many studies that indirectly demonstrate that mind mapping works well with cognitively impaired patients but are not labeled as such.

Last week I read what I judge to be a highly credible and careful study by two neurologists and an art therapist that was published in April 2014. I think they found the missing link and data supporting it, although they did not call the intervention technique mind mapping for those with cognitive impairment. Instead they called the intervention-life skill to be ART THERAPY for those with Alzheimer’s disease and other dementias.

There is a LOT of literature showing that Art Therapy increases social interactions, understanding, motivation, enjoyment of life, associations, and perhaps memory among those living with dementia, and even for those in the latter stages of the disease.

What is Art Therapy? Applying color, form, creative ideas, social interactions (with a teacher and other participants) and positive psychological states to try to understand the world better and communicate the perceptions of the artist.

What is ORGANIC (Buzan-style) mind mapping? Applying color, forms, creative ideas, interactions, and positive psychological states PLUS radiant, hierarchical, and nonlinear organization to try to understand the world better and communicate the perceptions of the artist.

Is this conceptualization of mind mapping with and by the cognitively impaired as an enhanced formulation of ART THERAPY (conducted by a professional, family or friends, caregivers, the patient her- or himself) to help individuals use visual thinking strategies to navigate their world a break through one? I think it is the scientific missing link and we can bootstrap from the findings that Art Therapy is a good intervention for dementia to ORGANIC mind mapping may be a good intervention for dementia and perhaps will achieve a greater effect than less focused “art.”

Here is a link to the paper. Click on it to retrieve the article.

screen_0050

As a technical note, the authors’ use of meta-analysis to combine the results from a number of independent studies selected for their methodological soundness is an accepted one which has become popular in the past three decades.

I want to see much more research on this topic. BUT, I think that we are currently moving in the correct direction in a “leap frog” way with great speed.

Keep both eyes open and click on the image below to expand it.

When you are done, part 2 can be accessed in a new window by clicking here.

Missing Link  Reducing the Effects  of Dementia with  Mind Mapping  (Huba's Theory)

 

Google Glass can almost immediately be used as a technology to help those living with dementia and cognitive impairment recognize faces and associate names and other information, know their location, and make associations between environments and their own life experiences. The software needed to be used along with Google Glass is, in most cases, existing and needs to simply be modified for individuals.

Click image to expand.

Google Glass &  Cognitive Impairment  Early Dementia

Blog posts and other information about the use of Google Glass with those living with Alzheimer’s as well as other types of dementia can be accessed by clicking here. A new window will open with current suggestions from a Google search.

This YouTube video shows the national award winning science project of four sixth grade girls. The future of Alzheimer’s care is in good hands.

 

This is my second post on the world-wide social brain. Click here to see the first post.

Click on the image to expand it.

 

THE WORLD-WIDE  SOCIAL BRAIN  PRIMARILY UTILIZES  VISUAL THINKING

Have any recent pictures of your family or cat or car or your vacation last summer? With the exception of the cat pictures I would love to see them. (I am a dog person, no cat pictures from me.)

If you are becoming cognitively impaired or transitioning into full blown dementia, mind maps MIGHT be useful for you to communicate, think, and remember.

Many different sources can help you prepare maps and use them to communicate with you. Or, you can make them for yourself and to inform others. For instance, I usually take a mind map along when I have a routine medical appointment. All of the doctors I have used them with has commented that the maps are a very easy and thorough way to understand what has been going over 3-, 6-, or 12-months. Probably quite useful for those with cognitive impairment/demential or those visiting a doctor for an infection, skin examination, or just a regular physical exam.

Click image to expand.

MIND MAPS THAT MAY BE VERY USEFUL  FOR THOSE WITH  COGNITIVE IMPAIRMENT  CAN BE MADE BY ...

 

You heard it here first …

Taking information from a dubious (wrong!) source and putting it into a mind map does not make the information more credible. Bad advice is bad advice whether is is well-formatted and pretty or not.

Talk to a healthcare provider or seek medical and psychological information, whether in a traditional form or a mind map, from a highly credible online source or a highly credible book.

P T Barnum would have used mind maps. After all, there is a sucker born every minute.

Know the source behind the map.

Click image to expand.

2Who are You   Most Information  in Psychological  or Medical Mind Maps  on the Internet  is Garbage

 

stop making publicizing your disease your end goal. You and the other 350 or 3,000 or 25,000 or 199,999 people with the disease will hardly be heard above the shouts of those advocating for funds for cancer, coronary disease, diabetes, HIV/AIDs and other diseases affecting many medically and/or politically.

And in the current system of new drug development, Big Pharma is going to be more interested in developing treatments for gastroenterological disease (heartburn), STDs (avoidable), erectile dysfunction, safer birth control, cancer, heart disease, and obesity.

Get smart.

Your 5,000 sufferers should collaborate with the 350 individuals with another disease and the 199,999 with another and all of the rest of them to be a large and huge advocacy group for encouraging change. Your illness group may not be the first to get attention if changes are made, but somebody will be and as treatments are developed for one rare disease they might also be applicable to other related rare diseases.

This is clearly a situation in whch cooperating with those with other rare diseases will ultimately yield better results for all than screaming ME FIRST on the Internet in social media.

The existing laws and administrative rules probably do not go far enough in encouraging drug companies to develop pharmaceuticals for rare and orphan diseases. Advocate for better incentives and decreased bureaucracy for developing new pharmaceuticals to treat a few thousand. Maybe even the staid Nobel Prize committee will even make an award to somebody who makes a huge research contribution that advances the development of treatments for a rare disease and top research universities will create endowed professorships for high talented physicians and others who study a rare disease.

Click image to expand.

ENCOURAGE MORE RESEARCH  ON RARE AND ORPHAN DISEASES

In a prior post, I discussed issues about fonts and their use in mind maps for people with varying types of cognitive impairment. In a second prior post, I showed examples of  using free fonts thought to be useful for individuals with dyslexia.

I spent a lot of time today looking at recommendations about fonts. Generally there seems to be a general consensus that the following fonts may be useful for individuals with dyslexia.

  • OpenDyslexic (one of three variations)*
  • Lexia Readable*
  • Dyslexie**
  • Ventana***
  • Trebuchet***
  • Lucida Grande***
  • Georgia***
  • Comic Sans***
  • Arial***
  • Times Roman***

*free for individuals
**paid
***common and probably on your computer already

Another recommendation is to use a light (beige, pastel) background with a very dark text color (black, navy blue).

Finally, size is an issue with the general recommendation being that it is desirable that the font size be larger than usual.

Would you like to see how different combinations of fonts and color and size work. Click on the image link below and change the fonts, size, and colors and see what happens.

grab64

In a prior post, I discussed issues about fonts and their use in mind maps for people with varying types of cognitive impairment. This post contrasts an original mind map from another recent post to four variations which use different “dyslexia” fonts. Note that the four dyslexia fonts are all available without cost to individuals.

First, the original mind map with an “artistic” professionally drawn font. There is no claim that this font helps or hinders those with dyslexia from reading the map rapidly and accurately.

Click images to expand.

mapvocacy

Here is the same mind map in three variations of the OpenDyslexia font (free).

mapvocacy opendyslexic mapvocacy opendyslexicalta mapvocacy opendyslexicmono

The final example uses the font Lexia Readable, another free font created for those with dyslexia.

mapvocacylexireadable

Of the four “dyslexic” fonts, I prefer the final variant (Lexia Readable). But I do not have dyslexia and so cannot say anything about how well it will work for even one individual (me).

None of the fonts illustrated nor a quite expensive professional one (Dyslexie; not shown here but very similar to the free OpenDyslexia) has strong empirical evidence that it helps those with dyslexia read faster or with more accuracy. Some tiny and flawed studies do suggest efficacy for these fonts for dyslexia, but I do not take the evidence seriously and much more study is needed.

[Note that this post has NOT addressed the issue of whether curved branches should be used or avoided for maps that may be used by dyslexics.]

What do you think?

MAPVOCACY with straight lexia

My personal plan is to provide a second version of some of my mind maps that eliminates curved branches and uses the Lexi Readable font. I do not know if these changes will make the map more readable for those with cognitive impairments (primarily dyslexia), but it certainly does not hurt to put in a little extra effort.

I wish somebody had taken notice of the things I said in the past 45 years of my life about

  • peace
  • universal human rights
  • healthcare reform
  • free education
  • equal opportunity
  • equal access
  • fairness

Better late than never, here is a new tool that might help ensure that people listen …

mapvocacy

This post does not contain medical advice. None of the methods described are known to be therapeutic. What is described are possible note-taking or information-sharing models for patient-client-self management.

For the past few months, I have been focusing on the use of mind maps to assist people with dementia, cognitive impairment, or cognitive decline deal with various issues that arise as they work hard to maintain independence.

You can access those posts simply by using the search box at the bottom of each post with keywords like “dementia” or “cognitive.” Several dozen blog posts will pop up with most very recent.

But the reality is that as dementia or other cognitive problems progress, many patients will require increasing amounts of supervision and care. Mind maps may prove to be useful in assisting a caregiver to help in a more effective, and cost–effective, manner.

  1. Just as those with cognitive decline may be able to remember, plan, express themselves, and document their lives in maps, caregivers may be able to use these techniques themselves to provide better care and client management. Mind maps may potentially help the caregiver recall the preferences of the client, as well as the client’s life history, important events, significant people, and life style
  2. Caregivers may find that visual information recorded in mind maps provides a good way for the caregiver and the client to start discussions.
  3. Caregivers may find that clients can express themselves better with pictures, drawings, doodles than in words.
  4. Caregivers may find that their own notes from each day are more useful if captured in the format of mind maps.
  5. Caregivers may find that mind maps may be used for brainstorming by themselves, with healthcare providers, with family members, and with the client ways to organize daily events, select food and clothing, remember medications, and organize social events.
  6. Caregivers may find it useful to record their own feelings in mind maps as a way of dealing with the emotional and physical stress of caregiving.
  7. The daily calendar — including doctor visits and other appointments and visitors — may be easier to prepare as a mind map and much more useful to the client.

There are dozens of other ways mind maps might be useful in caregiving. I am going to write many posts on this topic in the next months. For now, here are a few examples with many more to come.

Click on each of the images to expand it.

Preparing a Mind Map (with the help of the client or family members) of the Client’s Preferences.

Preferences  Hypothetical  Individual

***

Preparing a Mind Map (with the help of the client or family members) of the Client’s Religious Beliefs.

Religious Beliefs

***

Preparing a Mind Map (with the help of the client or family members) of Things the Client Especially Enjoys.

SPECIAL TREATS

***

Preparing Mind Maps from the Warning Brochure that Comes with Each Prescription Refill.

possible  side effects winter

OR

SEg

***

Preparing a Mind Map of Each Day for Your Use and That of the Client.

Today  Tuesday  November 12

***

Technical notes. The sample mind maps here were all prepared in the computer program iMindMap, which I strongly prefer both for the way it facilitates mapping and the way it typically produces maps that can be very useful. There are alternate programs that can be used, although perhaps not with the same level of good results possible with iMindMap. Because the maps will be used by caregivers and clients, they will tend to be most effective if colorful, “bold,” graphically interesting, and with large typefaces all of which are easily done in iMindMap. Acceptable alternatives to iMindMap would be iThoughts, Inspiration on the iPad (but not on the PC or Mac), MindNode, and XMIND, although each of the alternatives will be more difficult to use to produce maps for clients with cognitive decline than is iMindMap. There are free mind map programs available or free demo versions. This is a case, however, where paid versions are far more cost-effective than the free versions or most free programs. There is a second type of mind mapping program more suitable for business purposes (the major one is MindJet MindManager and also MindDomo and MindMeister) than those caregiving applications discussed here.

The only way I see to develop effective medical treatments and care models for many of the thousands of rare diseases is to pool the RESEARCH resources that individual countries are spending and the data countries are collecting about individual rare diseases and put those research resources under international control for prioritizing research agenda and ensuring public access to ALL results and research data.

Yes, I know the USA (probably the largest resource contributor) Congress will go in front of the television cameras and say that the failure of the United Nations and the disproportionate contributions to a pooled resource fund will ensure failure. They will point to the failure of the world to effectively coordinate collaborative research on HIV/AIDS and point to politics, homophobia, disrespect, and the hatred of American politics by certain national and fundamentalist groups and say we would be wasting our money by letting Africans and Arabs and the Russians and Chinese and Indians and Asians and South Americans collaborate with the USA on research and ensuring that research leads to effective treatments for at least some rare diseases.

Enough already. Let’s rise to the occasion of solving resource limitations in studying rare diseases and get an effective mechanism in place for expanding the impact of admittedly small research efforts by individual countries through international cooperation. I trust the governments of the world to collaborate, contribute as they can, and help us start to get some of these diseases treatable. Disease knows no boundaries.

In the last century we collectively developed very advanced medical research techniques. In this century we need to use these methods to solve all of the medical problems possible by putting aside the nonsense politics and nationalism and individual egos and predatory profits and focus on solving many medical issues and ensuring access to effective treatment world wide.

Here’s a way to start. Any yes, this is a test of our humanity and commitment to universal human rights of which medical treatment is but one. But let’s start somewhere that should be relatively easy to agree on (and let a few hundred angry politicians in the USA know that the world considers them bratty children and cannot tolerate their obstructionist and oppositional behavior).

Click on the image to expand. And let’s start the process of collaboration.

rare diseases time for effective international cooperation

EU rare disease rare disease

In the past I have blogged about my suggestion that Public Health students learn to use methods like mind maps and other visualizations to make health brochures and posters more informative and compelling to the public. Here I am going to show some examples.

The information in this post derives from very credible web sites. [As a note, much of the information about Alzheimer’s disease and “normal” or typical aging appears to be accurately derived from the public domain information put online by various departments of the US government.]

For each image, click to expand.

The American Medical Association has this very informative page on its web site.

Voila_Capture91

I believe that the following mind map is better for explaining the information.

Typical Aging or Dementia

[I acknowledge the fact that various mind map “artists” can make this map more visually appealing and I see this as a first draft.]

*********

The Alzheimer’s Association has posted this professionally valid information on its web site designed in a way as to be compelling through its high density of high quality warnings.

screenshot9

The “problem” with this brochure is that it is “too dense” for me (and probably anyone else without a professional background in medicine) to be able to understand and remember the information. How about including this graphic as a third page (ideally as the ENTIRE page 2) in the brochure. I would bet that the outcomes from the  extra understandability and memory retention for this critical information would prove to far offset any additional printing costs.

10  Warning  Signs of  Alzheimer's  Disease

[I acknowledge the fact that various mind map “artists” can make this map more visually appealing and I see this as a first draft.]

Mind mapping is a wonderful tool. Many use it to inform others of important facts and make sure those facts are remembered, understood within context, associated as appropriate with other knowledge, communicated well, and result in learning. I endorse the successful use of mind mapping.

Mind mapping is a wonderful tool for informing.

Mind mapping is a wonderful tool for misinforming.

Think about this. If the method makes the learning of “good” information faster and more accurate, it does the same thing for “bad” information, idea garbage, or propaganda.

You need good information to map. You know, the kind that is scientifically proven, well interpreted, important, replicable, unbiased. You know what I mean. (The kind of good information that would never make it onto the Fox Cable network.)

So it is really simple. Show me the source of the information and what evidence supports it. I will decide if it is a diamond or zirconium. Nourishing or poison. Message from heaven or hell. Mac or PC.

Do not tell me you have a map of some important psychological issue when you do not have a single citation to replicable science, or at least well-accepted theory, anywhere in the map or the accompanying text.

The problem of presenting bad information and helping others learn it well is probably the most important when the content is derived from medicine, healthcare, psychology, or education. Personally I care less if a business person hires the wrong management consultant and buys the Brooklyn Bridge, but that is a matter of personal preference and I still would not like to see shareholders hurt. You want to teach it in a way that improves the chances that it is learned? Make sure it is true.

A mind map is a METHOD. The mind map should be used as a METHOD to accurately report correct, important information. A mind map may make information look more valid or important than it is, so the author of the map has to be responsible fully researching the information to be presented BEFORE MAPPING. To map information that you do not fully understand is doing a disservice both to the reader and to your reputation.

Click on the image (twice) to fully expand.

Hypocrisy  of Some  Mind Map Users

Recently I discussed fighting backing against cognitive aging with mind mapping, a cognitive-behavioral technique.

Lets take a look at the how and why.

  1. Most neurodegenerative diseases that cause dementia have no cure nor particularly effective way of controlling the symptoms of the disease.
  2. Most individuals use notes and checklists and reminders and calendars — fancy or simple — to help deal with loss of memory or the ability to make decisions or prioritize tasks and remember people.
  3. There are better ways to take notes and manage calendars and enhance-stimulate memory and other cognitive functions. I think mind mapping (Buzan-style) is the best way to perform these tasks.
  4. Although better note-taking will not cure brain degeneration, it may increase quality of life and the ability to remain independent or mildly dependent for a longer time. Even a few better days in a month is a huge improvement for individuals with neurodegenerative diseases and something to be treasured.

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Cognitive-Behavioral Tools for Fighting Cognitive Decline

As is said (albeit in a quite different context) “use it or lose it.”

You age and people tell you to start doing crossword puzzles (I’ve never liked them) or to do simple arithmetic on an iPad (hhmmm… I prefer advanced mathematics) or to get your pictures together in a box (I prefer slide shows from a high-end photo processing app).

Use it or lose it.

Why start doing baby mental exercises as you get older? Why not use a better way of organizing information, planning, making decisions, and actively thinking about things around you, your life, or advancing a new intellectual hobby (mine are visual thinking research and great mandolin and ukulele players of the world)?

Use it or lose it.

Many people look at mind maps and think they are pretty pictures or formatted outlines. In fact many so-called “mind mappers” pass off work that is not mind mapping as mind mapping.

One of the most frequently ignored or missed parts of Tony Buzan’s seminal writings on mind mapping is that mind mapping requires active thinking. It is not a passive process of formatting an outline of the same-old, same-old, same-old information.

Mind mapping is really a combination of using the pretty tools in mind mapping programs to facilitate active thinking about something and to develop actively a summary model of how all the thoughts go together.

Do you think active learning through mind mapping is a better way of thinking that for many older adults is new and novel and might be a way to “use it and not lose it?”

I think so. Use it and don’t lose it.

An example. Click on image to expand.

3G Organized Thinking with Mind Maps

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Also see, “Running Away to the Circus”

Also see “Cognitive and Behavioral Tools for Dealing with Cognitive Decline: A #MindMap”

This mind map was originally prepared in MindManager in the late 2001 for an evaluation of an initiative to increase the capacity of US Nursing Schools to meet the need for graduate-trained gerontological/geriatric nurses. I spent 10 minutes running the original file through iThoughtsX to add some color hues.

This was an evaluation of an important initiative funded by the John A Hartford Foundation (Building Academic Geriatric Nursing Capacity).

Click on the image to expand.

BAGNC

I corrected a huge mistake in my thinking about mind maps during 2010.

I had started using the program Mindjet MindManager for mind maps at the time version 2 of the program was released. Over almost 20 years I used occasionally used MindManager, alternating periods of a few days of intensive use with months of ignoring mind mapping.

I hardly considered organic mind mapping in the early days because: a) I cannot draw clearly or even print clearly even though Tony #Buzan says everyone can; b) I am a “tech guy or nerd” and damn it, why would I hand draw something if a computer program was available to turn my brilliant thoughts and words into pictures.

Secondarily, how could I possible use wavy lines with labels in all kinds of orientations and colors best-reserved for a child’s coloring book or a circus? I worked with groups of federal/state health policy makers, physicians, psychologists, social workers, nurses, counselors, grant funders, politicians, and public advocacy groups. Colors that looked like they came from a crayon box and drawings that looked like they were drawn by a second grader would be seen as childish, silly, not useful, and (most importantly) disrespectful by a group of senior professionals in the health/social care areas.

Idiot.

I bought every upgrade of MindManager over 20 years. Those upgrades were pretty expensive for a small consulting firm charging public sector fees less than half of those of private-sector companies.

I had strong misgivings about the MindManager mind maps I presented in meetings about HIV/AIDS services, research designs, elder abuse, optimally training geriatric nursing leaders, statistical analyses, and the many related topics I worked on during my career. Nonetheless I kept presenting the maps and using them in written reports.

I came to the conclusion that the method of mind mapping was primarily a way of presenting outlines in a somewhat novel way that introduced a lot of “white space” into diagrams typically plagued with too many words on a boring and ignored PowerPoint slide. Business executives liked the MindManager approach since it was in their comfort zone (outline in a picture).

I was becoming a Bleeping Idiot for continuing to use MindManager style Outline Mapping.

2010

I read about the iMindMap program in a variety of tweets from individuals I followed on Twitter and started trying the program and then reading much of the collected writings of Buzan; I watched some of the YouTube videos derived from his telecasts.

I thought organic mind mapping was kind of cool. It interested me at first because it would lead to presentations that were far more interesting than the ones with PowerPoint I suffered through 100 times a year (and gave myself to large audiences at least 50 times a year).

A couple of months later I decided that I would give an entire presentation (and the final report) using iMindMap 5 maps to a group at the US Health Resources and Services Administration, the major US government agency for financing public healthcare clinics and programs (and especially those targeted to HIV/AIDS services).

The project was to develop a framework for teaching program managers of US-funded, locally-administered African projects on increasing the number of nurses trained in and providing clinical services for treating HIV/AIDS. The topic was about program evaluation theory and implementation. Program evaluation can be a very technical area dominated by methodologists who speak “numbers” not concepts, acronyms, and is often perceived as excruciating by its participants.

The meeting was with two senior federal grant administrators and USA-funded program managers and service providers, half from the Columbia University (USA) and half from Africa who were part of a six African-nation collaborative team.

I developed a dozen pretty large mind maps on evaluation goals and results, ways to conduct the evaluation and why, how to improve services using the results, respecting clients, and other issues including ethics and reporting results to the funders. The general topics were ones I had discussed with hundreds of groups in the prior 20 years.

All of the mind maps were developed in iMindMap using circus colors, curves, cartoony clip art provided in the program, font coding, and a nonlinear organization. I wanted to animate the presentation by jumping around the map “automatically.” This was before mind mapping programs in general (and iMindMap specifically) included presentation animations. At the suggestion an expert on visual thinking, Roy Grubb (a Twitter buddy from Hong Kong — @roygrubb), I used the program Prezi to animate the jumps around the map into to what could be a presenter-guided talk or a self-running kiosk video.

To say that the presentation was well received by the audience of program managers, senior policy makers, and medical professionals from the USA and various African nations) would be a gross understatement. The presentation was praised, a couple of physicians said this was the first time they really understood what evaluation was, and perhaps more concretely, the participants insisted on having the one-hour presentation evolve into a two-hour greatly interactive and animated group problem solving session that pissed off the US State Department because the participants arrived to their meeting at State an hour late. The evaluation for the next five years of an extremely large funding program in Africa on HIV/AIDS treatment capacity was altered. A subsequent program evaluation project for the African project was funded to our company.

I was just presenting the same-old/same-old conclusions I had evolved over two decades. But the information after I reformatted it into a #Buzan style mind map using the iMindMap program forced me to re-think the overall system of evaluation I believed in so as to prepare a liberating and valuable experience for the audience. The new mind maps were nonlinear THEORETICAL MODELS accessible to individuals with training neither in program evaluation nor mind mapping.

By contrast, the old way i would have presented the same information in MindManager or as bullets in PowerPoint was as nothing more than a formatted outline (or what I now call an Outline Map) and my thinking and that of the participants would not have gone in such creative directions.

I was pleased to find out that one of the meeting participants had been trained in a workshop by Mr. Buzan and that she felt that the presentation mind maps were the most Buzan-like she had seen since the training.

The hundreds of mind maps I have made for this blog have reinforced the conclusion I reached from that HRSA meeting on HIV/AIDS that computer-assisted, Buzan-style organic mind maps and visual thinking methods are far superior to the “traditional” linear methods that are forced by some computer programs that do not encourage Buzan-style thinking and mapping.

Bright colors, contrasting fonts, curvy lines, cartoon graphics, one word per branch, nonlinear organization …

I joined the Circus.

Big Data Train Wreck DSM5 Tournament huba's laws of  mind mapping

Coke does it. BMW does it. Lexus doe it on the Food Network cooking shows. Thousands of others do it. Product placements are now one of the highly profitable parts of modern movie and television film making.

Wouldn’t it be nice if the film studios “donated” some product placements in their movies and television shows to healthy behaviors like selecting a healthy diet or exercising after a hectic day of crime fighting to relax or drinking water. Heck, I would even give them a tax deduction for the minutes in the film “promoting” healthy behaviors.

Heck, even the villans could be healthy, or alternately die off because they eat too many hamburgers.

health promotion product placements

 

a HubaMap™ by g j huba phd

 

I guess it’s just me … I search Google for sites with “psychology mind maps” and I get lotsa pages returned. Of course very FEW of these pages let you know where the ideas, recommendations, and organization comes from. That makes me pretty pissed off.

I have a simple rule for evaluating psycho-pop, psycho-babble, psycho-art, and psycho-schmaltz: if the author (artist, developer) cannot prove to me that the information came from a credible source and is being communicated by a credible source, I assume it is psycho-fantasy and just walk (actually run) away.

Here’s a few things to ask about before you go ahead and change your job, spouse, running shoes, or haircut because somebody gives you some magic MBTI letters, a number on a test published in a self-magazine, or advice that must be right because it appears in a pretty mind map.

I love great psychology content conveyed in an easy to understand manner. I hope I produce some. Most do not produce anything except profits. Know what you are buying (and staking your life on) when you get information from a book, TV, the Internet, text, or a graphic.

Please click on the diagram to zoom in.

Don't Believe a Psychology (Self Help) Mind Map Unless it Tells You

Irv Oii is known to many international news organizations and researchers as a star data journalist. Being a home worker (although home may be the UK, Ohio, the Middle East, Central Africa, Hong Kong, or Antartica) and a fairly reclusive person, nobody seems to have met Irv. Some speculate that he might be a Jewish Asian-American. Others believe Irv is short for Irvelina, a Russian immigrant physician who went to Ohio (or was it Ojai, California) when the Soviet science programs collapsed and turned into the lower funded Russian collaborative efforts with the EU and USA. The collapse of the Soviet Union resulted in the closing of her laboratory in Minsk. Some even think Irv Oii is an acronym.

Irv is thus an enigma and no pictures of her/him seem to exist. An artist’s conception (mine) based on the writings and consultations of Irv Oii on healthcare breakthroughs is shown below. My belief is that a portrait of Irv should hang over the desk of every data journalist and researcher.

Please click the image to zoom.

Irv Oii