social, health, political imagery through the lens of G J Huba PhD © 2012-2021
I have been living well with dementia for 12 years. Different from the time before dementia was diagnosed. With a plan of medications, several gifted doctors, behavioral change, and a lot of introspection I think that I was able to enjoy my life and will continue to do so.
I am publishing a series of interrelated blog posts.
Click the mind map to expand its size.
Let me start by saying that we are not in the stage of AFTER the recent pandemic COVID pandemic. Rather, much of the world still needs help to address COVID vaccines and other issues like the poverty that lets a pandemic spread. But some countries — and the US is one — are now at the stage where we can start to evaluate and understand our shortcomings to prepare for the future. At the very least, a careful analysis of the problems in the COVID pandemic needs to be done so that rich and poor nations can benefit in the future. And the richer nations need to stockpile medicines and medical supplies and needs for permanent and temporary hospitals and clinics and the poorer nations. And we also need to analyse how and why UNICEF failed the poorer countries.
Bill Gates — the noted fanboy of getting publicity through plagues and pandemics — always runs to the news outlets and says that his approach of giving some of the money he stole from the world through exploitative business practices to medical experts (of which he is not one in spite of the fact he plays one in the media),
The approach of having medical experts lead the fight on a pandemic has been found to be lacking since a pandemic is much more than a medical event. Medical experts provided excellent services and produced the research that led to successful vaccines are a key part. But much more is needed in order to address a fast-moving pandemic. People need to be informed in ways they understand. Medical and social service workers need to quickly retrained in the special skills needed to identify and treat infections. Resources — money, medical providers, medical supplies, training, the poverty of many that limits access to healthcare, how the medical and social systems efficiently perform in a coordinated way, education to children when they cannot go to school because of the risk to themselves and others of exposure to a virus, and many other forms of service and help — need to be shared between the rich nations and the poor nations. And the sharing of resources cannot always start in the rich nations with services provided in the poorer nations last.
Effective prevention and treatment services needs to be provided in fairer and more useful forms in the next pandemic.
The following mind map lists some of the issues that must be identified and fixed for a proactive fight against infectious diseases. People will need to be far more cooperative than during COVID, the rich who pay for most of the fight on emerging pandemics must not always get in line to be first, drug companies and many other businesses must not be allowed to make exploitive profits, and religion and gender and poverty and race must not affect whether a needed service is provided.
Please expand the mind map by clicking on it.
We are the United States of America. We think we invented democracy while we struggle to exist as a poorly conceived republic riddled with historical entitlements. Our Legislative Branch of government is totally convoluted with a lack of logic, fairness, honesty, and all kinds of other need processes within a functioning government.
The COVID pandemic in the USA and globally is not over. It is hidden. And i’t th’t t will be back in its current form or others. Don’t throw away your N95 respirators (masks).
Follow highly credible health and medical experts with decades of experience in infectious diseases to make sure that you are approaching the covid pandemic correctly. Don’t just pick-up the TV remote and assume any old pundit that wants to talk about the covid pandemic knows something. Most governors of US states know little about health issues.
And even if those giving you information about what you should do in the upcoming new stages of the pandemic.
Do you really want the bozos on Fox TV and its ilk to provide information that is incorrect and can put your family and you at high risk for covid?
Click on the image to expand it.
Get vaccinated. Your risk of getting Covid-19 is going way up if you are unvaccinated. If you do not have access to vaccine, wear a mask, stay six feet away from others, stay out of crowds, and wash your hands.
Variant Delta (D or the Indian variant also well-established in the UK) is the most severe of all variants to date, and is becoming the dominant version of Covid-19 in many countries. Many public health professionals predict that within a few months Variant Delta will the dominant strain globally and in the USA, much as it is currently dominant in India and the UK..
If you want to see the most current information about Covid-19, Variant Delta, search with Google or an alternative search engine. As I write this on June 19, 2021, there is a huge amount of news stories available. CNN has had good coverage on Variant Delta.
Current information is that Variant Delta is the most problematic and deadly Covid-19 variant yet.
Expand the mind map by clicking on it.
The vaccines work if administered to ALL very soon.
The vaccines are currently available widely only in rich, larger countries.
In poor countries, vaccine access is available only to the rich and politically connected.
Even the largest current donation of vaccines (500 million doses by the USA) is woefully inadequate.
Here’s why. Click the image to expand it.
Donald Trump and his followers have cost the United States good relationships with our international friends and allies, the welfare of the citizens of the United States and the world, help to people from war zones and areas of natural disasters, and the consequences of our global population facing a pandemic spread around the world by the denial of Trump that the covid-19 virus exists.
The failures have occurred at a time when our friends and enemies are coping well with these problems.
This week, Trump incited a riot when he tried to take over the democratically elected government by force.
The United States has been a big loser in the war between the fascist government envisioned by Trump and our history of democracy.
Click the image to expand it.
In the next 20 years, the world will experience significant change. After the shock of the coronavirus pandemic and its consequences, everyone alive knows that significant changes must be made in the next 20 years to our governments, distribution of services and wealth and opportunities. We must integrate all global development with a restoration of the global environment as it was before the industrial revolution.
It’s a hard job. The change itself will provide numerous opportunities. The creative destruction of what is wrong and the creative building of what is right will be fun to observe and participate in. Hope will spring out as we get a lot of the things right that we screwed up the first time.
Here’s what we gotta do. It’s possible. It will be fun and rewarding to fix.
Click on the mind map to expand the start of a plan and an emerging roadmap.
This is what we have to achieve this time. The inclusion of all. The distribution of services to all. A high-quality of life for all.
The COVID-19 pandemic and all of the problems it has exposed or created in 2020 is far more than the transmission of the coronavirus.
It is my belief that COVID-19 is but one part of the pandemic. In the mind map diagram below I listed 14 plagues of the pandemic.[I rarely write about my personal religious beliefs but in this case, explaining mine is necessary to explain how I feel about the pandemic. I am sorry if you are offended.]
No matter how much individuals and communities pray to a Divine Being, it is my belief that Divine Intervention is not going to solve these problems whether you believe in Agnosticism, Animism, Atheism, Buddhism, Chinese Traditional Religion, Christianity, Hinduism, Islam, Judaism, Shinto, Sikhism, as well as any other major religions (or their non-religious but humanistic alternatives) that I have inadvertently omitted from the list.
We created all of the plagues that relate to COVID-19 and I believe we need to get ourselves out of them. It is not enough to rush to do medical research to eliminate the pandemic. We need to solve the problems of food insecurity, violence, poverty, intolerance, inadequate mental health, non-belief in science, and many others on my list of 14 plagues of which COVID-19 is but one.
We created this current mess. We need to solve it. Then we will have a kind and productive world that meets the needs of all. It is my belief that the Divine Beings and humanist non-religious congregations all require this commitment on our part. So if you are not working on eliminating one or more of these plagues, get off your butt. We would all benefit from your commitment and hard work. And I believe the Divine Being(s) you worship will all smile at the kindness and hard work.
Click on the image to expand it.
As the assault of the pandemic contiunues unabated, I find that I am getting increasingly numb to the causes and the effects. Some call this pandemic fatigue. Others call it trauma. Or overstimulation or shutdown on sensitivity to the continuing clatter. Yeah, I know a vaccine is supposed to save us, but I am so screwed by up by thoughts of what it means that 250,000 souls have been lost in 10 months, I casnnot even envision what it will feel like when 500,000 have died, a marker I think we will hit before the US population has all be vaccinated.
NUMB. No Understanding of the Many Battles.
Why do we fight about whether to wear a mask? The scientific research unequivocally shows masks save lives (including that of the wearer). Will we fight in a few months whether to get vaccinated? Probably so many will refuse that the overall protection for all of our citizens will be limited.
Why do we fight about dealing with the economy? We have far too many people crushed by unemployment. We can create millions of useful jobs that would improve the infrastructure of the country.
Why do we ignore the mental health and psychological processes injured by the ongoing pandemic? I feel crummy from the pandemic, your family and friends do, and you do. We should be able to agree it is a high priority to repair the damage the pandemic is doing to all of us. And, make even more jobs to achieve this.
Why are we so divided as a society? We have brutual political divisions affecting the healthcare and financial systems. We have racism, the denial of equal opportunity, gender and sexual orientation bias, and many other problems that are growing almost as fast as the virus spread.
I am trying hard to get over my own feelings of being NUMB. Maybe you should also try to stop being NUMB.
Click on the image to expand it.
by George J Huba PhD (Psychology)
Dementia is a time that gets extremely complicated for a person with dementia and their spouse, family, friends, new social acquaintances, healthcare providers, and caregivers.
Probably the biggest issue is that those who interact with the person with dementia expect the PWD to communicate in a way that is diminished but still like the way a typical person without dementia communicates just now at a lower level.
It is difficult to communicate with a person with dementia because their own experience of communications is now shaped by the brain changes and other symptoms of dementia. What about your Mom who no longer smiles when you say something she has always liked or when you bring her the pistachio ice cream she has always loved? Ever consider the possibility that she thinks she is smiling but has no control over nonverbal communication such as her smile. Brain damage of various types can cause the loss of nonverbal communication abilities or control of facial muscles.
Why does your friend always get overwhelmed and say something stupid when there are lots of other people around? Perhaps they can’t focus on what you are saying because there is so much noise and motion from distracting sources?
Ever wonder why your friend with dementia comes back with an answer to a question five minutes after you asked the question? Brain changes and damage during dementia may make it hard to retrieve information or think and a loss of a sense of time may mean your friend keeps working on answering the question long after the conversation has moved on.
In dementia, a daydream may be as vivid as something in the real world, and just as distracting. In dementia, you can’t deal with too much information because it distracts you and can’t “fill in the blank spaces” if you receive too little because your “executive functioning” has been destroyed. You tend to get anxious during a conversation not only from unpleasant topics but also from worrying so much about missing a word or forgetting a name or misinterpreting a suggestion as hostile when it was just a normal joke.
The physical and psychological consequences of dementia combine to make it seem that a person with dementia is speaking a different language. They are.
And yes, those 20 or more pills the person with dementia may take daily can affect the ability to speak clearly, pay attention, be sleepy, look like they are bored when they are not, or become even more anxious.
Additional thoughts are arranged on the mind map below.
Click on the image to expand it.
Always try to remember that the person with dementia is often not disinterested or misunderstanding you or too tired to think or extremely distracted in what you think is a peaceful environment.
And if you are a person with dementia, remember that your friend is not trying to mislead you or express hostility and disapproval. They are not trying to trick you or harm you or pick a fight. You might not remember a conversation your caregiver says you had 10 minutes ago, so get over it and trust the other person. Nobody is criticizing you as a person because you can no longer tie your shoelaces or your necktie.
All parties in a conversation with a person who has dementia need to realize that the “rules” for the social encounter have changed because of the disease. Both persons with dementia and their families and friends and caregivers need to realize that is just as hard for all parties to figure out this new “language of dementia.” But it can be done and when mastered can liberate everyone to some degree.
Learn to laugh and smile and enjoy the company of each other again. The positive emotions are still there but they may have to be expressed in different ways. Learn how to express oneself when one or more parties has dementia. It’s worth the time. For everyone.
#mindmap #mindmapping #dementia #Alzheimers @DrHubaEvaluator
The #1 thing that I have learned over almost a decade of living with dementia is that thinking in pictures (images, diagrams, doodles, etc.) is much more effective than using words alone. Hedge your bet. Use pictures that associate with words rather than just words. After all, in many types of dementia, you lose your words at the end while the pictures may escape loss.
Try it. You will probably like it. Creating visualizations of important events, ideas, feelings, and other information can be FUN.
I’ve been using visual thinking methods for the past 10 years. They work (for me).
If you have not read the Introduction to this series of posts, it is important that you read it before this post. Click here for the Part 00 Introduction. This post is part of a series of more than a dozen posts.
I worked on understanding health and social service programs, especially for the disabled, poor, disenfranchised, and traditionally underserved as a program evaluator for about 25 years. I was very good at it and worked with hundreds of programs spread over most US states.
In writing about my activities to achieve stability in my dementia and maximize my quality of life, I am going to employ the tools of program evaluation to describe what I was trying to achieve, what I did to achieve my goals, why I did various activities, and which parts of my interventions seemed to help me the most. No, not in this post but in a series of more than a dozen posts.
In this post I will start by describing the activities I designed for myself and did throughout my period of diagnosed dementia over six years of living with the disease. In subsequent posts, especially Posts 02 and 03, I will discuss the outcomes of my activities. After that, I will address some of my activities — and especially those that “worked” extremely well for me — and describe them in depth, show how other individuals might use these methods, and how dementia caregiver and healthcare systems might be built around them.
The image below is a mind map. Should you not be familiar with how a mind map is drawn and read, please search this website for posts on mind mapping using the search box. Or, go to the home page by clicking here and look at the list of pre-defined searches.
A very simple set of rules for reading a mind map is as follows.
Click on the mind map to expand its size and zoom to various portions of the map.
As you can see, I tested app after app after app on my Mac and iPhone to see which could help me. I read all about how to mindmap and draw sketchnotes and I practiced and practiced. I learned to read “dog” and taught my Newfie to understand “people.” I doodled, watched the news, built a highly-rated social media following of more than 140,000 individuals interested in healthcare, dementia, visual thinking, and 100s of other topics from around the world. I went to concerts, watched movies, and cheered for the two local universities with huge sports programs. I engaged some new parts of my brain. I thought in pictures.
Stay tuned, the interesting stuff starts next.
In 2010 I was diagnosed with neurodegenerative brain disease with the initial diagnosis being supranuclear palsy which was later amended to the highly related frontotemporal dementia, behavioral type. Some believe that PSP and FTD are variants of the same disease.
I started to examine Mac and iPhone/iPad apps that might be useful early in 2010. After I retired in 2011 I started to use a number of the apps for such things as calendars, task lists, alarms, reminders, and other business-like functions. The business-like apps failed to motivate me to use them continuously nor could they address executive functioning problems that were at the core of my disease. As early as late 2011 I had concluded that mind maps and other visual thinking methods could be very helpful.
As I read about every mind map book around by dozens of authors and bloggers, including the majority of those written by Tony Buzan who makes the claim he is the “inventor” of mind mapping (it is a silly claim no matter who makes it), I rapidly discovered that virtually all visual thinking work focuses on lucrative management consulting that few who use it have strong background in substantive areas like medicine, healthcare, psychology, and related disciplines. What little work exists in mind mapping and other visual techniques within the health and medicine areas indicates a total lack of understanding of visual thinking and is generally painful to read.
I wasn’t scared off by the fact that there was no clear guide to what a person with cognitive impairment and later dementia could do with visual thinking procedures and computer apps to try to improve the ability to cope with dementia. I had, after all, spent 35 years of a successful career as a (nonclinical) psychologist and much of my career had focused on developing new applications of psychological knowledge to addressing medical, psychological and social disorders. And much of the 35 years were spent studying the service care system for those who were least connected with society and traditional healthcare.
I am writing a series of posts (currently more than a dozen) evaluating my experiences during the last six years with a progressive brain disease. Each will focus on a specific test of methods and outcomes I think were achieved.
My studies are one-subject research (often called N=1). I will present results that I believe can be inferred from specific indicators. However, what I discuss is DERIVED FROM MY EXPERIENCE AND MY INTERPRETATIONS OF THE OUTCOMES OF WHAT I DID. I do not claim that any of what I write about is applicable to all people or that what I did should be considered to prove anything as opposed to simply observing it in myself validly or not. And, I see no evidence that the outcomes from what I did have done suggest I found anything to treat or cure or slow the progression of dementia: I never expected them to do so. What I do believe that I have demonstrated for myself is that these methods have helped me maintain a much higher quality of life. Not more days in my life, but many more good days while having dementia. I feel blessed to have received those extra good days.
Most of my “writing” is in pictures. That’s the point of visual thinking.
The following mind map is a general introduction to my work over the past six years. I call it Part 00. Starting with Part 01, I am going to start to present both observations and objective indicators of what happened for me.
Should you not be familiar with how a mind map is drawn and read, please search this website for posts on mind mapping using the search box. Or, go to the home page by clicking here and look at the list of pre-defined searches.
A very simple set of rules for reading a mind map is as follows.
Click on the mind map below to expand it and let’s start the process of understanding of what visual thinking methods help me to do.
Have a good day.
A phrase you have heard thousands of times (especially if you have lived in California as I did for 30 years). If you have dementia you may groan or the statement may make you angry or you might make a pointed comment back.
Chill, Dudes and Dudettes.
OK, I get it (well actually have gotten it for a number of years since diagnosis). There may not be a 100% good day for you anymore if you have dementia. But how about a perfect (or even good) 20 minutes having coffee with a friend or an hour solving a puzzle with a grandchild or 100 minutes watching Guardians of the Galaxy 2 complete with a refillable tub of popcorn. Yup, these periods of a good day may be followed by a period of frustration or not being able to remember something or difficulty doing a task of daily living.
Use the Force, Luke.
Good moments can be great moments if you let them be. They may last only for few minutes or an afternoon, but given that your brain is “sick” they are a huge gift and blessing. Focus on what is happening to you now, try to not let the bad upset you unduly, and try to enjoy every moment for every second possible.
You may master the Force. You may feel better. Is there a better use of your time?
Focus on what is, not what was.
Click the image of the mind model (mind map) to expand it.
I get in trouble when I make mind maps about Donald Trump. This is a mind map about processing repetitive TV cable news (on CNN and MSNBC and FOX) about the most televised story — Donald Tackles the USA and the World — at this point in late April 2017.
Mr Trump is just completing the first 100 days of his Presidency having accomplished less — according to the fact checkers from numerous news organizations — than any President since the index has been tracked from the beginning of Franklin Roosevelt’s Presidency in the 1930s. Mr Trump believes he has accomplished more than any president ever studied in his first 100 days.
I am a lover of news stories where the President gets bashed on TV. In the 1970s I watched (and read about) all the hearings focusing on Richard Nixon and Watergate. In the 1980s I watched huge amounts of TV about Reagan and Iran-Contragate. In the 1990s, I watched the hearings about Bill Clinton and the blue dress and impeachment and not inhaling. Nothing of a comparable nature occurred during either Bush presidency or that of Barack Obama. I almost didn’t know what to do with my spare time.
Now, I am watching numerous hours of TV/video on the major USA news channels (including CNN, MSNBC, Fox, CBS News online, New York Times, Washington Post, and of course the best news outlet for all news worldwide, BBC). And even ESPN has had a big Trump story about star players declining invitations to the White House to meet POTUS.
My dementia has been progressing at an ever increasing speed in a downward spiral during the past months. I remember (recall) less from current events and “work” and daily tasks. When I can retrieve information I do so very S—L—O—W—L—Y. Judgments are tougher, understanding sequences are harder, and writing down what I think is very slow as the length of my current journal entries (and al of the wurds nat spelled wrongly or too bigly) is increasing grately. Handwriting does not come with A spel chkr.
The current trend in cable TV news on MSNBC and CNN and others is to have one-hour shows where a moderator/commentator discusses all of the “important” news of the day with 2-5 different “self-styled” experts ranting from all political persuasions.
7 hours of liberal rantings about Trump is available on MSNBC and to a lesser degree on CNN; Fox News has 7 hours of conservative rantings about how terrible it is that the liberals are ranting about Trump.
I have repeatedly argued that inexpensive (or even free) visual thinking/mind modeling methods can help a person with dementia “rewrite the operating system” on that storage device we call the brain and think better, albeit in a different way.
As I was making the following mind model (AKA mind map) about Trump’s first 100 days yesterday, I was struck by how rapidly I could create this fairly complex model. I think it shows that the intrinsic interests and REPEATED exposures to structured, summary information can be well captured using visual thinking methods by a person who has lived with dementia for more than half a decade after diagnosis. While I understand that 40% of USA voters will find the content WRONG because it is very liberal rather than very conservative, I do propose the hypothesis that developing a fairly complex, fact-based mind map of current news shows the value of mind mapping for someone with dementia basing this conclusion only on my own experience. And it works no matter what you think about Trump.
I hope that as many conservatives as liberals will use these methods to study the facts of issues and their own conclusions and evaluate the completeness of what they know.
Examine your memories and conclusions in mind models. Political leanings and party do not matter because your mind model is for YOU as much as my mind model is for ME.
Should you find my political points to be in error, just use this as a template about what you would like to say about, for example, Hillary Clinton or a Democrat in Congress.
But remember that models like the one can be developed by a person living with dementia like me.
And most importantly, I hope that we — whether your political views are similar or dissimilar to mine — can come to an agreement that cognitive methods for supporting thinking for those with or at risk for dementia belong in the next version of ObamaCare or TrumpCare along with training, support, and respite services for unpaid dementia caregivers and especially COVERAGE OF COMPREHENSIVE HEALTHCARE FOR ALL AMERICANS.
Click on the image to expand it.
Oh … and let’s make sure that no President of any party ever uses the nuclear option. I hope we can all agree on that.
The title of this post is the #1 question (comment) I receive on Twitter when I make a post about content on this site.
The answer to the question is a guarded yes. Most (in excess of 85%) cover basic issues in caregiving, healthcare, patient management, note-taking, self description, cognitive issues, case management, family management, and resources within the healthcare system. Some is specific to dementia (mind maps on types, treatments, research, experiences of those with dementia).
My expertise, research and personal interests, and personal theories derive from within the context of dementia in terms of my professional interests, experience as a caregiver for my mother and grandfather, research, test development and personal experiences. So I always present my ideas targeted toward persons living with dementia, their caregivers and medical providers, dementia care/case managers, and those adults concerned with improving and or maintaining their own cognitive skills or preparing for cognitive decline.
There are many applications of my ideas to many chronic and acute healthcare conditions. Caregiving issues are in many cases the same, healthcare management of different conditions may be fairly similar, and nobody has enough resources to do what they actually want to do.
Where I have great reservations in applying (or extending) my ideas about cognitive skills and quality of life is in understanding and intervening in cognitive and the other medical, and mental health issues of children and adolescents. ADHD, adolescent suicide prevention, youthful problem behaviors, dyslexia, and many other conditions require very specialized professional training. Caregiving by family members and paid trained-paid caregivers often requires different skills, knowledge, and emotional supports than it may for adult patients. While many trivialize the issues and state that declining older adults are like children, such a statement makes minimizes (in a way both pathetic and potentially dangers) the very real and large differences in the care of these groups at either end of the age spectrum.
NO posts or mind models in this blog are specialized for the very real unique needs of children, adolescents, and sometimes younger adults.
Click on the image to expand.
NOTE: Version 11 OF iMindMap was released the first week of May 2018. At this time (7-1-18) I have been using the program for about two months. I will have a full review posted within a week or two. As a brief note, Version 11 includes a number of enhancements. The program remains the best one for mind mapping and the updates made from Version 10 to 11 are significant and worth the upgrade price.
I doubt that there are many people expert in mind mapping who would disagree with me that iMindMap is the most feature-laden of the more than 100 programs for mind mapping to be found all over the Internet.
Once a year — as promised when the program was first introduced — iMindMap has a new release that provides many new features and usability enhancements. And unlike others, they produce a great upgrade every year on time. And free from most bugs that live in Cupertino and Redmond.
How good is iMindMap 10?
Click on the mind map (actually mind model in my terminology) below to expand its size. For those of you with no patience or dramatic sense of the big build-up, you can skip directly to the “9” branch. iMindMap is the 8,000-pound gorilla.
As a note, my review was conducted about six weeks after receiving the program and using it exclusively rather than earlier editions. I use a Mac only, and my review was conducted on a 2013 MacBook Pro. I have worked with the program both on an internal 15″ retina MacBook screen and a 27″ external monitor. [I actually like using the MacBook screen rather than the larger desktop monitor.]
Chris Griffiths and his team at OpenGenius have taken the work of Tony Buzan and in the process of developing a program expanded and formalized that conception in a creative way that is brilliant in its overall utility and ease of use. iMindMap 10 is my favorite mind mapping program, but most importantly my favorite and most useful thinking tool. For those of you who do not follow my blog in general, I live with Frontotemporal Dementia and iMindMap has served as a “brain assistance tool” for me since 2010 in daily living and in continuing my professional interests in a creative way. I can accurately say that the various versions of this program “changed my life.”
This is a tool formulated by expensive consultants who want to help corporations make more money while at the same profiting from that help. But the tool has come to greatly exceed the original vision and is intuitive to use and most adults and all children can learn to use the program for free using Internet trainings. Don’t be scared off by all of the publicity about a $3500 training and a certificate signed by a consulting firm (not an accredited educational institution). You do not need a course to learn this program and it is not clear to me that expensive courses help you learn to apply this program in the real world. If you are willing to invest a few hours you can be doing adequate mind maps; if you invest 10-20 hours you can be doing accomplished mind maps.
Get over the hype and realize that you CAN learn this program quickly on your own and even more rapidly if you study examples available without cost at many blogs including this one (Hubaisms.com), a depository of many thousands of mind maps at Biggerplate.com, and many other sites including youtube.com where many training sessions are presented.
While there are four “views” in this program, the primary mind mapping module is the reason for using this program. The other three views are largely alternate ways of looking at the same information and data. While they may be “quicker” ways to collect information together from a lecture or library research, at the end they feed their data into the mind mapping module where the actual thinking work, theory building, model development, and communication is done.
I have a few criticisms of the program, but these criticisms do NOT change my overall rating of the program as A+.
In summary, this is an amazing program that is much more than a program for mind mapping. It is unsurpassed among mind mapping programs. Additionally it is what I call a “visual thinking environment” or VITHEN. My “criticisms” are minor and do not in anyway diminish my overall evaluation of the quality of the program.
My blog at Hubaisms.com on which you are reading this review was designed and “written” largely in “iMindMap.” Most of the mind maps I use to guide my own “complicated” life were developed in iMindMap.
Exemplary job folks at OpenGenius. Version 10 is an additional large step in the evolution of the program and mind modeling.
The mind model (aka mind map) below discusses my vision in developing the dementia focus on this website. I started to build the web site about two years after being diagnosed with a neurodegenerative condition (2012). Thus the entire blog is the work of a developer experiencing dementia while designing and preparing the content for the site. The site discusses my progression through cognitive impairment and decline into dementia. More importantly it discusses how I tried to help myself coordinate and use to full advantage the support and professional expertise made available to me by family, friends, the community, my doctors, and the general world-wide of patients and professionals the major issues.
Nothing in this blog post (or any other on blog post or page on the site) is intended to be, or promoted as medical, psychological, or any other form of treatment. The ideas in this blog are about using some commonsense note-taking and visual thinking methods to possible help you live better with dementia. I tried it on myself (only) and I am encouraged although I freely admit that full scientific study is needed.
These methods and comments will not substitute for medical and other professional treatments. They do not cure dementia. They do not slow down the progress of dementia. For me, at least, the methods have sustained and increased my quality of life and I do spend more time with my family and am more independent and in my opinion think better. But my dementia is not being treated and getting better; what I propose are methods that may make it easier to independently manage selected parts of your life, be in a better mood because you are trying to help yourself, be less of a burden to your caregivers, and report better to doctor what your experiences have been since the last appointment.
Many people are miserable almost all days when they have dementia. If simple, inexpensive cognitive tools can improve some or many of those days, the development of such techniques is a huge step forward.
I hope that others will examine the information here and use it to improve the decisions they, their caregivers, and their doctors and nurses must make about their formal medical treatment.
Here is what appears in the blog posts and elsewhere on Hubaisms.com.
Click on the image to expand it.
Click here to see Part 2 of My Vision in a separate window.
There are many problems that can plague a person with dementia. Some of these are easily detected but others may be “hidden” because of the nature of the major symptoms of the disease or “hidden” because the person with dementia (or caregiver or in some cases family members) is trying to hide some of the problems from outside observers.
For instance physical, psychological, or financial abuse will be hidden by the abuser and perhaps the person with dementia. Memory loss may make it difficult for the person with dementia to accurately report accidents.
It is important that healthcare providers, caregivers, and family members be trained to identify the hidden problems.
To some degree or another, it is likely that most persons with dementia have some of these hidden problems. For instance, I bump against things all day long, usually because I am rushing around or not paying attention because I am trying to multitask. When asked by a family member or friend where the bruise came from, I have to try to reconstruct where the accident must have happened by thinking through a lot of alternatives for a bruise half-way between my ankle and knee.
Click image to expand.
I have been a HUGE fan of the Olympics since I was a very little kid. In 1984 I got to go to the Olympic events in Los Angeles every day for two weeks, on many days with my father. That was the year that the Soviet Union boycotted the games because the USA had boycotted the Moscow Olympics in 1980. Heck, I thought it was great — the USA and East Germany (who came) won all of the gold medals! Months earlier when local pundits in Los Angeles said Los Angelenos were too apathetic to purchase expensive Olympic tickets especially with the Soviets and most of the Eastern Bloc boycotting as it would not be a real sporting event, I had bought as many tickets for the “finals” as I could get my hands on. Later I sold the extra tickets as Los Angeles fell in love with the games. I made so much money that the expensive tickets I had bought for the entire family of 7 that we used ended up were effectively free since the profits covered the cost of the tickets we used. Street enterprise at its best. My tickets became worth more because the Soviets didn’t come as all Americans became Olympic fans the year we won all the golds.
Winning the race to live well with dementia is like running the 10K race at the Olympics. Everybody has to pace themselves at the beginning so that they can learn about their opponents. In the final stages of the race they speed up and sprint their fasted the last 200 meters.
A mind model of the dementia race strategy is shown below. Click the image to expand it.
I think I am winning my race to live life to its fullest while having dementia. I’m getting ready to claim that gold medal. You can win your race too. Think about what you are doing and strategize like a 10K runner. Learn all you can in the beginning and then speed up later as your new knowledge kicks in.
I expect to be adding a lot of posts about (or using) sketchnotes in the next few months to Hubaisms.com. Here is how to find the existing ones and the ones I will add. The information as a sketchnote. Click on the images to expand them.
Click on image to expand. Estimated time to develop for a NOVICE (me) = 15 minutes. The sketchnote was drawn by a person with dementia (me).
[Note. I usually write/draw note panels like this from right to left in sections because I am left-handed and it minimizes the amount of smeared ink. There is no magic in this, so use any organization that works for you.]
This week (and fairly frequently), on the Mac App Store, Apple lists a group of “Apps for Writers.”
I have used (and own) many of those of the apps. Of the apps I have used, here is my shorter list of those I use frequently or would use frequently if I had a project requiring the methods in the application.
These apps are in no particular order.
All of my comments and selections refer to the PAID (unlocked) versions of these apps. The free versions do not usually have all of the features I will use if they are available.
For many years I have been a fan of the iA Writer app that is a streamlined and very fast text creation tool (as opposed to a bloated word proessor). The tool works seamously across the Mac, iPad, and iPhone and files are automatically available on all three Internet connected devices. This is also the only writing app I have found that works brilliantly on all three devices and screen sizes. The iPhone version is the only text creator I have found that really works well on the small screen of the iPhone.
A few months ago, iA introduced Writer Pro, a version that incorporates many new features while simultaneously retaining the simple to use, brilliant features of the original concept. If you are serious about writing text (as opposed to doing a fully formatted version at the time of the first draft), this is the app for you (unless you are stuck with a PC). In my experience, more creative and quality writing can be done more rapidly when you are not distracted by all of the formatting options floating around on the screen.
Writer Pro is simultaneously a 5-star app like iA Writer, a 5-Ferrari app, and a 5-tank app. The developer gets a 5-brain rating.
Warning. This app has a steep learning curve (15 minutes). Unless you are willing to invest the 15 minutes you may not figure out how this new model of writing (with four stages you can jump between) enhances the creative process. On the other hand, you will recover the 15 minutes of exploration during your first 30 minutes of “real” use.
