The United States has not been able to control the covid pandemic. Amazingly to many epidemiologists and physicians, when you tell people to wear a mask and socially distance themselves from one another they do not do so.
This is not a surprise to mental health professionals.
With all of the chaos and psychological trauma and fear from coronavirus and the loss of one’s income and job, it is fairly obvious that people facing so many catastrophic stresses are going to find it difficult to change their behaviors with out support, training, and motivation to do so. Telling people to wear masks and stay home (even when the speaker is America’s favorite grandfatherly, world-famous physician Dr. Fauci) becomes an impossible task when you are worrying about where to get food tomorrow or pay rent or homeschool your child or the health of your aging parents.
Part of a successful response to a pandemic is not only developing a vaccine but also helping people deal with stress, get needed resources to repair their lives, and feel better about themselves and their futures. And then many of them can move their focus to wear a mask and social distance and accept the vaccine when it is available to them.
You know that. The immunologists and epidemiologists and administrators are not people-people but rather laboratory people. We need to get mental health and nursing and social work professionals on the side of those needing interventions to help them deal successfully with the covid pandemic.
As the assault of the pandemic contiunues unabated, I find that I am getting increasingly numb to the causes and the effects. Some call this pandemic fatigue. Others call it trauma. Or overstimulation or shutdown on sensitivity to the continuing clatter. Yeah, I know a vaccine is supposed to save us, but I am so screwed by up by thoughts of what it means that 250,000 souls have been lost in 10 months, I casnnot even envision what it will feel like when 500,000 have died, a marker I think we will hit before the US population has all be vaccinated.
NUMB. No Understanding of the Many Battles.
Why do we fight about whether to wear a mask? The scientific research unequivocally shows masks save lives (including that of the wearer). Will we fight in a few months whether to get vaccinated? Probably so many will refuse that the overall protection for all of our citizens will be limited.
Why do we fight about dealing with the economy? We have far too many people crushed by unemployment. We can create millions of useful jobs that would improve the infrastructure of the country.
Why do we ignore the mental health and psychological processes injured by the ongoing pandemic? I feel crummy from the pandemic, your family and friends do, and you do. We should be able to agree it is a high priority to repair the damage the pandemic is doing to all of us. And, make even more jobs to achieve this.
Why are we so divided as a society? We have brutual political divisions affecting the healthcare and financial systems. We have racism, the denial of equal opportunity, gender and sexual orientation bias, and many other problems that are growing almost as fast as the virus spread.
I am trying hard to get over my own feelings of being NUMB. Maybe you should also try to stop being NUMB.
Dementia is a time that gets extremely complicated for a person with dementia and their spouse, family, friends, new social acquaintances, healthcare providers, and caregivers.
Probably the biggest issue is that those who interact with the person with dementia expect the PWD to communicate in a way that is diminished but still like the way a typical person without dementia communicates just now at a lower level.
It is difficult to communicate with a person with dementia because their own experience of communications is now shaped by the brain changes and other symptoms of dementia. What about your Mom who no longer smiles when you say something she has always liked or when you bring her the pistachio ice cream she has always loved? Ever consider the possibility that she thinks she is smiling but has no control over nonverbal communication such as her smile. Brain damage of various types can cause the loss of nonverbal communication abilities or control of facial muscles.
Why does your friend always get overwhelmed and say something stupid when there are lots of other people around? Perhaps they can’t focus on what you are saying because there is so much noise and motion from distracting sources?
Ever wonder why your friend with dementia comes back with an answer to a question five minutes after you asked the question? Brain changes and damage during dementia may make it hard to retrieve information or think and a loss of a sense of time may mean your friend keeps working on answering the question long after the conversation has moved on.
In dementia, a daydream may be as vivid as something in the real world, and just as distracting. In dementia, you can’t deal with too much information because it distracts you and can’t “fill in the blank spaces” if you receive too little because your “executive functioning” has been destroyed. You tend to get anxious during a conversation not only from unpleasant topics but also from worrying so much about missing a word or forgetting a name or misinterpreting a suggestion as hostile when it was just a normal joke.
The physical and psychological consequences of dementia combine to make it seem that a person with dementia is speaking a different language. They are.
And yes, those 20 or more pills the person with dementia may take daily can affect the ability to speak clearly, pay attention, be sleepy, look like they are bored when they are not, or become even more anxious.
Additional thoughts are arranged on the mind map below.
Click on the image to expand it.
Always try to remember that the person with dementia is often not disinterested or misunderstanding you or too tired to think or extremely distracted in what you think is a peaceful environment.
And if you are a person with dementia, remember that your friend is not trying to mislead you or express hostility and disapproval. They are not trying to trick you or harm you or pick a fight. You might not remember a conversation your caregiver says you had 10 minutes ago, so get over it and trust the other person. Nobody is criticizing you as a person because you can no longer tie your shoelaces or your necktie.
All parties in a conversation with a person who has dementia need to realize that the “rules” for the social encounter have changed because of the disease. Both persons with dementia and their families and friends and caregivers need to realize that is just as hard for all parties to figure out this new “language of dementia.” But it can be done and when mastered can liberate everyone to some degree.
Learn to laugh and smile and enjoy the company of each other again. The positive emotions are still there but they may have to be expressed in different ways. Learn how to express oneself when one or more parties has dementia. It’s worth the time. For everyone.
The #1 thing that I have learned over almost a decade of living with dementia is that thinking in pictures (images, diagrams, doodles, etc.) is much more effective than using words alone. Hedge your bet. Use pictures that associate with words rather than just words. After all, in many types of dementia, you lose your words at the end while the pictures may escape loss.
Try it. You will probably like it. Creating visualizations of important events, ideas, feelings, and other information can be FUN.
I’ve been using visual thinking methods for the past 10 years. They work (for me).
If you have not read the Introduction to this series of posts, it is important that you read it before this post. Click here for the Part 00 Introduction. This post is part of a series of more than a dozen posts.
I worked on understanding health and social service programs, especially for the disabled, poor, disenfranchised, and traditionally underserved as a program evaluator for about 25 years. I was very good at it and worked with hundreds of programs spread over most US states.
In writing about my activities to achieve stability in my dementia and maximize my quality of life, I am going to employ the tools of program evaluation to describe what I was trying to achieve, what I did to achieve my goals, why I did various activities, and which parts of my interventions seemed to help me the most. No, not in this post but in a series of more than a dozen posts.
In this post I will start by describing the activities I designed for myself and did throughout my period of diagnosed dementia over six years of living with the disease. In subsequent posts, especially Posts 02 and 03, I will discuss the outcomes of my activities. After that, I will address some of my activities — and especially those that “worked” extremely well for me — and describe them in depth, show how other individuals might use these methods, and how dementia caregiver and healthcare systems might be built around them.
The image below is a mind map. Should you not be familiar with how a mind map is drawn and read, please search this website for posts on mind mapping using the search box. Or, go to the home page by clicking here and look at the list of pre-defined searches.
A very simple set of rules for reading a mind map is as follows.
Start at the center of the diagram. Each of the topics (ideas or major branches) that come out of the center represents an issue. Important information about the main issues is given as a series of branches. The organization is in an outline or tree where large branches divide into smaller branches and smaller branches divide into even smaller branches.
Think of the map as a clock face and start at the 1 o’clock position (upper right corner). Read outward from the center along the branches and sub-branches to see how ideas and information about the topics can be arranged in a hierarchical or tree structure. [If you could go up a huge fire truck ladder and look straight down, you would see a structure of tree branches that looks like a mind map. When we study or read a mind map, we are looking at a whole tree — set of information — and then seeing how small and more specific information spreads from the trunk.]
Go around the map in a counter-clockwise manner (to 2 o’clock, 3 o’clock, etc.), following the branches down to their branches and their branches and finally to twigs. Remember that we are looking down at a whole idea [or tree] and its branches and their branches in order to understand how the information represented on these branches goes together and what the most important information is.
The mind map is thus a picture of major ideas followed by its major subdivisions or branches and sub-branches. The “big ideas” are attached directly to the central issue.
A mind map is a way of showing in an image how a set of data pieces or ideas go together.
The pictures, color coding, and fonts are used to designate what is the most important information in the mind map. When you are trying to remember or organize or determine priorities, the pictures, color coding, and size of the fonts can help you store information in “visual” parts of the brain and then retrieve it by thinking about pictures, the color coding, or size-importance of the information.
Click on the mind map to expand its size and zoom to various portions of the map.
As you can see, I tested app after app after app on my Mac and iPhone to see which could help me. I read all about how to mindmap and draw sketchnotes and I practiced and practiced. I learned to read “dog” and taught my Newfie to understand “people.” I doodled, watched the news, built a highly-rated social media following of more than 140,000 individuals interested in healthcare, dementia, visual thinking, and 100s of other topics from around the world. I went to concerts, watched movies, and cheered for the two local universities with huge sports programs. I engaged some new parts of my brain. I thought in pictures.
I HAD FUN.
I LEARNED MANY NEW THINGS THAT STRETCHED MY BRAIN INTO NEW CHANNELS.
I BUILT COGNITIVE RESERVE.
I THINK I PROVIDED NEW INFORMATION TO PERSONS WITH DEMENTIA AND COGNITIVE DECLINE, CAREGIVERS, HEALTHCARE PROFESSIONALS, AND THE GENERAL PUBLIC. I FEEL GOOD ABOUT THIS.
A phrase you have heard thousands of times (especially if you have lived in California as I did for 30 years). If you have dementia you may groan or the statement may make you angry or you might make a pointed comment back.
Chill, Dudes and Dudettes.
OK, I get it (well actually have gotten it for a number of years since diagnosis). There may not be a 100% good day for you anymore if you have dementia. But how about a perfect (or even good) 20 minutes having coffee with a friend or an hour solving a puzzle with a grandchild or 100 minutes watching Guardians of the Galaxy 2 complete with a refillable tub of popcorn. Yup, these periods of a good day may be followed by a period of frustration or not being able to remember something or difficulty doing a task of daily living.
Use the Force, Luke.
Good moments can be great moments if you let them be. They may last only for few minutes or an afternoon, but given that your brain is “sick” they are a huge gift and blessing. Focus on what is happening to you now, try to not let the bad upset you unduly, and try to enjoy every moment for every second possible.
You may master the Force. You may feel better. Is there a better use of your time?
Focus on what is, not what was.
Click the image of the mind model (mind map) to expand it.
Trump/RyanCare another draft not submitted to Congress?
Within the extant and mythical healthcare plans, additional dementia care services need to be included. Most are cost-neutral or may actually save money while providing better patient outcomes.
Case Management makes existing healthcare services (doctor visits, medications, emergency care) work better. At a very small cost that should actually SAVE money, case management can provide better total patient care, cut unnecessary emergency room visits, and achieve better medication outcomes. What isn’t there to like?
Dementia Caregivers are most often UNPAID, female family members forced to juggle their own jobs/finances, families, and general lives to care for a loved one. Support is required for Dementia Caregivers in the forms of training, support, advice, and FINANCIAL COMPENSATION for their services. They do the work, they should get paid for their time. An upgraded system of paid family caregivers should make DementiaCare more effective and reduce other costs in the healthcare system to such a degree that it will be cost-neutral. An unnecessary hospital stay or emergency room visit can cost as much as $10,000 — $20,000. A family caregiver could be paid for 500 hours at $20 per hour for $10,000. Train family caregivers, pay them, and you have a cost neutral system. What isn’t there to like?
Mental Health issues often lead to huge patient distress, anxiety, and medical management problems. They can frustrate caregivers and lead to nonadherence to medication recommendations. Therapy and counseling can help patients and caregivers as well as cutting overall medical costs. What isn’t there to like?
Group Adult Daycare can provide needed respite for family caregivers as well as important social and recreational experiences for patients, thus enhancing their lives and to some degree ability to function independently. What isn’t there to like?
The following mind model provides some details. Click the image to expand it.
I get in trouble when I make mind maps about Donald Trump. This is a mind map about processing repetitive TV cable news (on CNN and MSNBC and FOX) about the most televised story — Donald Tackles the USA and the World — at this point in late April 2017.
Mr Trump is just completing the first 100 days of his Presidency having accomplished less — according to the fact checkers from numerous news organizations — than any President since the index has been tracked from the beginning of Franklin Roosevelt’s Presidency in the 1930s. Mr Trump believes he has accomplished more than any president ever studied in his first 100 days.
I am a lover of news stories where the President gets bashed on TV. In the 1970s I watched (and read about) all the hearings focusing on Richard Nixon and Watergate. In the 1980s I watched huge amounts of TV about Reagan and Iran-Contragate. In the 1990s, I watched the hearings about Bill Clinton and the blue dress and impeachment and not inhaling. Nothing of a comparable nature occurred during either Bush presidency or that of Barack Obama. I almost didn’t know what to do with my spare time.
Now, I am watching numerous hours of TV/video on the major USA news channels (including CNN, MSNBC, Fox, CBS News online, New York Times, Washington Post, and of course the best news outlet for all news worldwide, BBC). And even ESPN has had a big Trump story about star players declining invitations to the White House to meet POTUS.
My dementia has been progressing at an ever increasing speed in a downward spiral during the past months. I remember (recall) less from current events and “work” and daily tasks. When I can retrieve information I do so very S—L—O—W—L—Y. Judgments are tougher, understanding sequences are harder, and writing down what I think is very slow as the length of my current journal entries (and al of the wurds nat spelled wrongly or too bigly) is increasing grately. Handwriting does not come with A spel chkr.
The current trend in cable TV news on MSNBC and CNN and others is to have one-hour shows where a moderator/commentator discusses all of the “important” news of the day with 2-5 different “self-styled” experts ranting from all political persuasions.
7 hours of liberal rantings about Trump is available on MSNBC and to a lesser degree on CNN; Fox News has 7 hours of conservative rantings about how terrible it is that the liberals are ranting about Trump.
I have repeatedly argued that inexpensive (or even free) visual thinking/mind modeling methods can help a person with dementia “rewrite the operating system” on that storage device we call the brain and think better, albeit in a different way.
As I was making the following mind model (AKA mind map) about Trump’s first 100 days yesterday, I was struck by how rapidly I could create this fairly complex model. I think it shows that the intrinsic interests and REPEATED exposures to structured, summary information can be well captured using visual thinking methods by a person who has lived with dementia for more than half a decade after diagnosis. While I understand that 40% of USA voters will find the content WRONG because it is very liberal rather than very conservative, I do propose the hypothesis that developing a fairly complex, fact-based mind map of current news shows the value of mind mapping for someone with dementia basing this conclusion only on my own experience. And it works no matter what you think about Trump.
I hope that as many conservatives as liberals will use these methods to study the facts of issues and their own conclusions and evaluate the completeness of what they know.
Examine your memories and conclusions in mind models. Political leanings and party do not matter because your mind model is for YOU as much as my mind model is for ME.
Should you find my political points to be in error, just use this as a template about what you would like to say about, for example, Hillary Clinton or a Democrat in Congress.
But remember that models like the one can be developed by a person living with dementia like me.
And most importantly, I hope that we — whether your political views are similar or dissimilar to mine — can come to an agreement that cognitive methods for supporting thinking for those with or at risk for dementia belong in the next version of ObamaCare or TrumpCare along with training, support, and respite services for unpaid dementia caregivers and especially COVERAGE OF COMPREHENSIVE HEALTHCARE FOR ALL AMERICANS.
Click on the image to expand it.
Oh … and let’s make sure that no President of any party ever uses the nuclear option. I hope we can all agree on that.
The title of this post is the #1 question (comment) I receive on Twitter when I make a post about content on this site.
The answer to the question is a guarded yes. Most (in excess of 85%) cover basic issues in caregiving, healthcare, patient management, note-taking, self description, cognitive issues, case management, family management, and resources within the healthcare system. Some is specific to dementia (mind maps on types, treatments, research, experiences of those with dementia).
My expertise, research and personal interests, and personal theories derive from within the context of dementia in terms of my professional interests, experience as a caregiver for my mother and grandfather, research, test development and personal experiences. So I always present my ideas targeted toward persons living with dementia, their caregivers and medical providers, dementia care/case managers, and those adults concerned with improving and or maintaining their own cognitive skills or preparing for cognitive decline.
There are many applications of my ideas to many chronic and acute healthcare conditions. Caregiving issues are in many cases the same, healthcare management of different conditions may be fairly similar, and nobody has enough resources to do what they actually want to do.
Where I have great reservations in applying (or extending) my ideas about cognitive skills and quality of life is in understanding and intervening in cognitive and the other medical, and mental health issues of children and adolescents. ADHD, adolescent suicide prevention, youthful problem behaviors, dyslexia, and many other conditions require very specialized professional training. Caregiving by family members and paid trained-paid caregivers often requires different skills, knowledge, and emotional supports than it may for adult patients. While many trivialize the issues and state that declining older adults are like children, such a statement makes minimizes (in a way both pathetic and potentially dangers) the very real and large differences in the care of these groups at either end of the age spectrum.
NO posts or mind models in this blog are specialized for the very real unique needs of children, adolescents, and sometimes younger adults.
I was old enough to vote in my first presidential election in 1972 when I was 21 years old. I voted Democratic then and since then I have always voted for the Democratic candidate often as a perceived lesser of two evils. I voted for Hillary Clinton last year not because she was a good candidate or a good person (in my judgment) but she was better than Mr Trump who was the most extreme political presidential candidate since George Wallace and the most “out of it” candidate since Ross Perot. Before I could vote, I lived through the presidencies of Eisenhower, Kennedy, Johnson, and Nixon’s first term.
I have a neurodegenerative condition that makes me almost uncontrollably anxious at times, obsessive-compulsive at others, and not particular good at decision making. But more than ever, I think that Trump’s Fake Populism is a horrible way to run the USA and the World and I am pretty sure that in spite of cognitive decline my perceptions of Trump are accurate.
Trump’s behavior makes me very anxious and deeply concerned about the USA I will be leaving behind soon. A lot of Americans (according to recent polls, the majority) share my concerns that Trump is an extremely bad President.
I would personally feel much better if the USA required its presidential candidates to take non-partisan medical, neuropsychological, and psychological evaluations before assuming office and annually. My belief is that a group of actively practicing medical doctors enlisted in the Uniformed Services of the United States could make an overall assessment of an individual’s fitness to be “the most powerful person on earth” and commander in chief of the world’s largest army and largest biggest nuclear arsenal, as well as the architect and steward of the world’s largest budget. I note that medical doctors and other healthcare professionals in the US Uniformed Services have sworn an oath to uphold the Constitution of the United States. It is reasonable to expect that the medical practitioners of the United States Uniformed Services can use due diligence and state-of-the-art medical skills to ensure that an individual honored with the duties of the President of the United States is physically and mentally fit to deal with the stresses of the job. I also note that 14 members of the 115th US Congress (2017-2019) are physicians (and 2 are Democrats while 12 are Republicans) and that I have confidence that their medical ethics and competence in medicine would permit a nonpartisan panel to oversee such an assessment (even though I vote as a very liberal Democrat). Perhaps Mr Trump has a medical condition affecting his ability to perform the duties of his office or perhaps he is just a bigoted, narcissistic, incompetent jerk who is quite successful at manipulating the voters of the USA, even without the assistance of Mr Putin and his hackers.
Is my cognitive decline causing my perceptions to slip in their accuracy or are my observations accurate descriptions of living for several months in #TrumpWorld?
Click on the image to expand.
Note. None of the 14 physicians in the current Congress has formal training in neurology. Since a neurological assessment is an important part of a medical exam for a 70-year old person, independent neurologists of either political party should also be part of a supervisory and assessment panel.
Want information you created or curated to have the greatest impact? Then put it into a mind map. Not a mono-toned mess of straight lines at right angles but curves with colors and an organic style. A mind map utilizing rules that follow what is fairly well known about visual thinking. A mind map like the one below.
A few years ago I set out — as I have discussed in this blog many times — to “prove” that a person with dementia can use mind mapping in numerous ways to improve the quality of life.
Yes, a big “clinical trial” is the right way to make such a test. But I had no resources to run a clinical trial and even more importantly, no time and energy. And I mean time defined as “productive, predicted remaining life span.”
But I did have a willing participant with dementia (me) and a huge audience on social media. It is now about 4 1/2 years since I first posted a mind map on my blog site. The blog site www.Hubaisms.com now contains more than 1,000 mind maps and more than 700 posts.
Through my blog posts and their observations, usefulness to others, and my medical path, I’ve demonstrated that the technique can by used at least for one person on this planet daily and with results shown on the Internet for all to see.
No one should assume that because I believe that the method has proven effective for me that it will be effective for them. You should consult your own health care providers if you wish to try this for yourself or a person under your care.
There are many, many, many examples of the use of the methods on the blog site. What’s you excuse for not spending an hour reviewing them? My methods are useful with my dementia, but most also apply to — with a few adaptations — many other physical and mental diseases.
NOTE: Version 11 OF iMindMap was released the first week of May 2018. At this time (7-1-18) I have been using the program for about two months. I will have a full review posted within a week or two. As a brief note, Version 11 includes a number of enhancements. The program remains the best one for mind mapping and the updates made from Version 10 to 11 are significant and worth the upgrade price.
I doubt that there are many people expert in mind mapping who would disagree with me that iMindMap is the most feature-laden of the more than 100 programs for mind mapping to be found all over the Internet.
Once a year — as promised when the program was first introduced — iMindMap has a new release that provides many new features and usability enhancements. And unlike others, they produce a great upgrade every year on time. And free from most bugs that live in Cupertino and Redmond.
How good is iMindMap 10?
Click on the mind map (actually mind model in my terminology) below to expand its size. For those of you with no patience or dramatic sense of the big build-up, you can skip directly to the “9” branch. iMindMap is the 8,000-pound gorilla.
As a note, my review was conducted about six weeks after receiving the program and using it exclusively rather than earlier editions. I use a Mac only, and my review was conducted on a 2013 MacBook Pro. I have worked with the program both on an internal 15″ retina MacBook screen and a 27″ external monitor. [I actually like using the MacBook screen rather than the larger desktop monitor.]
Chris Griffiths and his team at OpenGenius have taken the work of Tony Buzan and in the process of developing a program expanded and formalized that conception in a creative way that is brilliant in its overall utility and ease of use. iMindMap 10 is my favorite mind mapping program, but most importantly my favorite and most useful thinking tool. For those of you who do not follow my blog in general, I live with Frontotemporal Dementia and iMindMap has served as a “brain assistance tool” for me since 2010 in daily living and in continuing my professional interests in a creative way. I can accurately say that the various versions of this program “changed my life.”
This is a tool formulated by expensive consultants who want to help corporations make more money while at the same profiting from that help. But the tool has come to greatly exceed the original vision and is intuitive to use and most adults and all children can learn to use the program for free using Internet trainings. Don’t be scared off by all of the publicity about a $3500 training and a certificate signed by a consulting firm (not an accredited educational institution). You do not need a course to learn this program and it is not clear to me that expensive courses help you learn to apply this program in the real world. If you are willing to invest a few hours you can be doing adequate mind maps; if you invest 10-20 hours you can be doing accomplished mind maps.
Get over the hype and realize that you CAN learn this program quickly on your own and even more rapidly if you study examples available without cost at many blogs including this one (Hubaisms.com), a depository of many thousands of mind maps at Biggerplate.com, and many other sites including youtube.com where many training sessions are presented.
While there are four “views” in this program, the primary mind mapping module is the reason for using this program. The other three views are largely alternate ways of looking at the same information and data. While they may be “quicker” ways to collect information together from a lecture or library research, at the end they feed their data into the mind mapping module where the actual thinking work, theory building, model development, and communication is done.
I have a few criticisms of the program, but these criticisms do NOT change my overall rating of the program as A+.
The time map module is really just a Gantt chart of interest to but a few mid-level corporate managers and high level executives who have not yet adopted better ways of team management. As a Gantt chart the module is fine, albeit about the same as most existing software in that area. Unless you are like a friend of mine who manages 10-year projects to send landers to Mars with 10,00 team members, I cannot imagine why you would want to use a Gantt chart.
In my view and that of many other potential users, a “time map” is actually a timeline that incorporates mind map features. While others have tackled this issue (most notably Philippe Packu and Hans Buskes), my formulation was the original. The resulting blog post (click here for a new window) has been the most read one about mind mapping methods on my blog site for FOUR years. I’d urge the iMindMap developers to look at my model of time maps which requires a lot of custom work that I am sure they could easily automate.
For almost all mind map users, the future is using pre-made templates designed by content experts. Purchase a template package and then you can then create your own mind maps by adding your information to the pre-designed expert map for your area whether it be healthcare or project management or writing a term paper or designing a research project or selecting the right clothes for a 5 day business trip. At this time iMindMap does not yet have a way of protecting the intellectual property of template developers which provides little incentive for developing templates as a business and therefore stunts the growth of the mind mapping community.
For this program and all of its competitors, the icon and image libraries are never big enough. On the other hand, you can purchase separate icon and image sets from third-party packagers on the Internet if you have special image needs. iMindMap allows you to use such external pictorial elements extremely easily. My favorite new feature is that you can add icons to their library and size the icons in a custom way. iMindMap’s included images should more fully capture the fact that users of mind maps and their audiences are much more diverse in terms of ethnicity, race, gender, gender-orientation, education, and age than the included image libraries. And hey OpenGenius folks, how about some icons for numbers in colors besides orange and lime so that the color schemes of my mind maps are not destroyed if I number ideas.
More free online trainings would be desirable, and most importantly trainings that do not run at the speed of a bullet train. Two minute presentations that cover 20 minutes of material are somewhat counter-productive. The current videos run too fast for new users and at time for even the most experienced users.
My experience — admittedly infrequent — is that Technical Support is fairly “rigid” in that there are lots of forms to fill out before you get a real chat session going and too many requests to send them esoteric files on your computer. All in all, as technical support goes, while everybody is trying quite hard to be helpful, they ask you to conform more to what is convenient for them than what a confused user can deal with. When I want help or to make a suggestion or make a request for a new feature or default, I want to just compose a short email so OpenGenius can get the right person there in contact with me. I most definitely do not want to complete an overly complicated form. Too much technocracy in that process.
Besides the books of Buzan which are not all that useful for learning the program or how to do real visual thinking in real world applications other than rudimentary management, OpenGenius needs to develop some easier access, very practical books that act as “manuals” and present information in more comprehensive ways than is done now. Old fashioned manuals that are (or can be) printed have a lot of appeal to many.
In summary, this is an amazing program that is much more than a program for mind mapping. It is unsurpassed among mind mapping programs. Additionally it is what I call a “visual thinking environment” or VITHEN. My “criticisms” are minor and do not in anyway diminish my overall evaluation of the quality of the program.
My blog at Hubaisms.com on which you are reading this review was designed and “written” largely in “iMindMap.” Most of the mind maps I use to guide my own “complicated” life were developed in iMindMap.
Exemplary job folks at OpenGenius. Version 10 is an additional large step in the evolution of the program and mind modeling.
Mind modeling (advanced mind mapping) is a method of drawing out ideas so as to facilitate thinking.
I think that mind modeling works well for some people with early and middle stages of dementia. And I think that most people from 6-60 can master this method of visual thinking and memory retention before the onset of cognitive impairment and dementia.
Here is a brief visual summary of this visual method. Click on the image to expand it.
I have frontotemporal dementia. Over years I have not responded well or appropriately when receiving gifts.
So I thought it would be a good idea to put together a mind model of things you might want to consider when purchasing a holiday or birthday gift for a loved one living with dementia.
Here are three mind models (mind maps) on the gift giving process when the recipient is living with dementia or cognitive impairment.
For each of the images, click on it to expand.
The first diagram shows a set of practical considerations you should think about when selecting a gift.
The second diagram is a list of possible gifts that might also help both the person with dementia and the caregiver. Most of these suggestions are relatively inexpensive.
The third diagram shows the primary consideration in gift giving for persons with dementia.
Each of these mind models is derived from my own experience as well as my training in psychology. The models are merely ones that apply to myself and may not fit your situation. Hopefully, though, even if the models do not fit your loved one, these mind maps will get you thinking that a somewhat different approach to gift giving might be appropriate at this time.
My suggestions are focused toward gifts that might help the person with dementia and the caregiver deal with some of the symptoms of the disease.
Do realize that with certain types of dementia, there is a significant possibility that the person with dementia will not respond well to the gift. In that case suggest that you can return it, but don’t rush to do so as the longer reaction after a couple of days may be very favorable.
People who learn to take responsibility for their own actions could save me a lot of money.
have less kids born into families that cannot support them saving me money on social programs
are less likely to contract STDs especially HIV thus saving me money on STD prevention and treatment programs
graduate from high school (and college and grad school) thus qualifying them to be in higher tax brackets and save me from higher tax rates and subsidizing their living costs
live longer because they forgo tobacco and drinking alcohol to excess thus saving the entire health care system from huge wasted services
pick up their garbage and put it in trash receptacles thus saving me having to pay someone to pick up after them
recycle thus cutting the bill for environmental cleanup
The USA should incentivize self responsibility by granting payments to
every student who ever graduates from high school
every student who ever graduates from college
every student who ever earns a graduate degree
every 18 year old who has never had an STD
every 18 year old woman who has never been pregnant
every 18 year old man who has never fathered a child
every 21 year old who has never been convicted of a DUI offense
every 21 year old who has never used tobacco
every 21 year old who has a “normal” weight and is neither obese nor dangerously underweight
every 40 year old who has a “normal” weight and is neither obese nor dangerously underweight
every 50 year old who has never been convicted of a DUI offense
every 60 year old who has a “normal” weight and is neither obese nor dangerously underweight
Incentives would be in the form of one-time tax credits for the individual or the individual’s family. This means that incentives are only paid to workers and their families.
Oh, the government would supply free voluntary services to all residents on birth control methods including condoms freely available to all children old enough to conceive, unlimited voluntary counseling on avoiding self destructive behaviors, unlimited voluntary counseling on leading a healthy life, and unlimited voluntary counseling for reasons of family instability, mental health, child rearing, and birth control. None of these free services would include any components related to any religion. And legitimate and effective education at all levels from preschool through college would be free to any American resident of any age and with support services to ensure anyone can graduate.
If the USA were to provide fairly significant incentives for learning and exercising self responsible behaviors we could produce a citizenry that creates less problems and is less dependent upon social network and support programs for themselves and their children. This will leave a lot of money to spend on those who truly cannot deal with their own medical and psychological problems no matter what they personally do and probably leave some over for lower tax rates.
Wow. Incentives for studying, working hard, becoming a productive member of society, and paying for needed and fully effective programs for all of those who have mental or physical or developmental disease and cannot legitimately assume full responsibility for all aspects of their lives.
I’d love to see a similar set of ways to incentivize healthcare and education workers. Small increases in productivity and job satisfaction among these critical citizens saves a lot of money and produces a much more healthy society.
Oh, I know, I am a dreamer. After all, my proposal could never make it through Congress. Even though it will save lots of money, promote better lives through self responsibility, and leave sufficient resources for those who truly need medical and mental health services because of factors beyond their control, this is truly an anti-American proposal that expects self responsibility and does not let big religion bully small religions, agnostics, or atheists around.
Every once in a while we need a little revolution.
[Musings of a very liberal, very capitalist, individual who believes in self responsibility and taking care of anyone who cannot take care of themselves with first-rate, state-of-the-art programs.]
For those of you who think that the term Dementia Monster is insensitive, do remember that I have one who lives inside of me. Increase my anxiety levels and out he comes. I spend much of my energy trying to limit his ability to feed on the anxiety.
The mind model (aka mind map) below discusses my vision in developing the dementia focus on this website. I started to build the web site about two years after being diagnosed with a neurodegenerative condition (2012). Thus the entire blog is the work of a developer experiencing dementia while designing and preparing the content for the site. The site discusses my progression through cognitive impairment and decline into dementia. More importantly it discusses how I tried to help myself coordinate and use to full advantage the support and professional expertise made available to me by family, friends, the community, my doctors, and the general world-wide of patients and professionals the major issues.
Nothing in this blog post (or any other on blog post or page on the site) is intended to be, or promoted as medical, psychological, or any other form of treatment. The ideas in this blog are about using some commonsense note-taking and visual thinking methods to possible help you live better with dementia. I tried it on myself (only) and I am encouraged although I freely admit that full scientific study is needed.
These methods and comments will not substitute for medical and other professional treatments. They do not cure dementia. They do not slow down the progress of dementia. For me, at least, the methods have sustained and increased my quality of life and I do spend more time with my family and am more independent and in my opinion think better. But my dementia is not being treated and getting better; what I propose are methods that may make it easier to independently manage selected parts of your life, be in a better mood because you are trying to help yourself, be less of a burden to your caregivers, and report better to doctor what your experiences have been since the last appointment.
Many people are miserable almost all days when they have dementia. If simple, inexpensive cognitive tools can improve some or many of those days, the development of such techniques is a huge step forward.
I hope that others will examine the information here and use it to improve the decisions they, their caregivers, and their doctors and nurses must make about their formal medical treatment.
Here is what appears in the blog posts and elsewhere on Hubaisms.com.
Click on the image to expand it.
Click here to see Part 2 of My Vision in a separate window.
I set up the Facebook group Dementia Mind Maps for those who may be interested in using mind maps to aid in dementia care, research, education, prevention, and general information.
If you would like to discuss the topic with persons with dementia, adults aging typically, healthcare professionals, decision-makers, the general public, educator, mind mappers, and curious lifelong learners, please join the group.
I approve virtually everyone who requests to be a member. No scammers, marketers, sexual service providers, and obscene language and images.
Being mindful while developing a mind model (mind map) can produce a map of much greater quality, usefulness, and validity whether the map is developed by an individual or as part of a (brainstorming or other) group. Get calm and focused on the present and devoid of emotional states that may inhibit creative thinking and your map should be much better both after the first draft and after it is edited.
Remember mind mapping is a creative process focused on visualization. Psychologists have known for more than 50 years that visualization is a powerful tool best used when in a relaxed and focused state.
Give this try and you may improve your maps greatly. As I developed the concept of being in a mindful state over several years, I saw the creative process in my own maps become much better and easier to enter.
Click on the image to expand it.
A second post discusses how the act of developing a mind map or mind model can itself help you to become more mindful. Click here to see that post in a new window.
Not the past, not what might happen in the future. Fuzzy, intuitive, today’s emotions. Nonlinear, visual, big picture. Attention flows toward good, bright, happy visualizations.
Opening your mind to nonlinear thinking may provide a cognitive reserve that helps you as cognitive functions start to decline perhaps precipitously into dementia. Neuroplasticity is a mechanism that the brain will use to reassign functional processing from one area to the brain as it is damaged by trauma or disease.
One very good way to encourage the development of cognitive reserve and neuroplasticity is to practice nonlinear thinking methods that can help promote mindful solutions. Should the brain become damaged, it may be able to use nonlinear, symbolic visual thinking to cope, at least for a while. And while you practice you may also experience strength in your resolve and understanding.
Do note that the above comments are speculative. There is NO formal research on mind mapping or other comments about this in the literature (other than my own). Also, this is based only on my own experience and generalizations from my earlier research on daydreaming and imagery. So do not go about thinking that this proven. Rather it is speculative.
While I theorize that mind mapping is related to mindfulness in SOME applications, even if it turns out that it is not — from the results of formal empirical studies — there are other demonstrated benefits from mind mapping, so the actual use of mind mapping should still be encouraged.
Biggerplate.com is a repository of mind maps created by most of the major mind mapping programs. The maps may downloaded without cost for study of the technical issues in making the map and its content.
Biggerplate.com is an important and often-used “library” of mind maps used by the world wide community of mind maps and related tools for visual thinking. It is a potentially a wonderful opportunity to learn more about mind maps.
So how valid is the information? Is it a fact that 32% of all UK residents do X while 39% of all USA residents do Y valid? Are the brain diseases listed correctly in the usual way? Are explicit and implied facts correct? Was the map developed by an expert in using the method of mind mapping to enhance visual thinking? Is the author/developer an expert in the content of the map such as a professor or a recognized expert?
Can you answer any of my questions in the previous paragraph from information presented on Biggerplate.com? ABSOLUTELY NOT. There is no review of the content validity of the maps nor any review of whether the purported mind map meets the standards of an effective use of a tool to improve visual thinking.
Peer review is the gold standard of assessing the quality of intellectual property. In this case peer review is probably not required for 95% of the mind maps on Biggerplate.com where the content is typically commonsense or is information available in accepted textbooks. On the other hand, some information like that in medicine or science or legal opinions or statistics begs out for peer review.
The mind model (aka mind map) below suggests at least a minimally acceptable solution in the cases where peer review is probably not needed. At this time we do not know if a mind map author/developer sees herself as an expert or novice in both the theory of mind mapping and visual thinking as well as content of the map. We should at least ask the author to provide information about his qualifications using self ratings. While not a great solution it is a simple and quick one that would help improve the use of the information archived on the extremely useful website Biggerplate.com.
This mind model (aka mind map) below shows a “Circle of Care” for persons successfully living well with dementia. The ability to access such a network when needed is a goal that the healthcare and social care systems should strive to attain.
While this may appear to be a daunting task, remember that most of these services exist in some form in most places but in most instances are not coordinated nor aware of the contributions of other sources. The key to making the “system work” is successful (care or case management) of the individual.