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social, health, political imagery through the lens of G J Huba PhD © 2012-2021

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The mind model (aka mind map) below discusses my vision in developing the dementia focus on this website. I started to build the web site about two years after being diagnosed with a neurodegenerative condition (2012). Thus the entire blog is the work of a developer experiencing dementia while designing and preparing the content for the site. The site discusses my progression through cognitive impairment and decline into dementia. More importantly it discusses how I tried to help myself coordinate and use to full advantage the support and professional expertise made available to me by family, friends, the community, my doctors, and the general world-wide of patients and professionals the major issues.

Nothing in this blog post (or any other on blog post or page on the site) is intended to be, or promoted as medical, psychological, or any other form of treatment. The ideas in this blog are about using some commonsense note-taking and visual thinking methods to possible help you live better with dementia. I tried it on myself (only) and I am encouraged although I freely admit that full scientific study is needed.

These methods and comments will not substitute for medical and other professional treatments. They do not cure dementia. They do not slow down the progress of dementia. For me, at least, the methods have sustained and increased my quality of life and I do spend more time with my family and am more independent and in my opinion think better. But my dementia is not being treated and getting better; what I propose are methods that may make it easier to independently manage selected parts of your life, be in a better mood because you are trying to help yourself, be less of a burden to your caregivers, and report better to doctor what your experiences have been since the last appointment.

Many people are miserable almost all days when they have dementia. If simple, inexpensive cognitive tools can improve some or many of those days, the development of such techniques is a huge step forward.

I hope that others will examine the information here and use it to improve the decisions they, their caregivers, and their doctors and nurses must make about their formal medical treatment.

Here is what appears in the blog posts and elsewhere on Hubaisms.com.

Click on the image to expand it.

why-i-developed-the-hubaisms-com-focus-on-dementia

Click here to see Part 2 of My Vision in a separate window.

still-crazy-after-all-these-years

I have been a HUGE fan of the Olympics since I was a very little kid. In 1984 I got to go to the Olympic events in Los Angeles every day for two weeks, on many days with my father. That was the year that the Soviet Union boycotted the games because the USA had boycotted the Moscow Olympics in 1980. Heck, I thought it was great — the USA and East Germany (who came) won all of the gold medals! Months earlier when local pundits in Los Angeles said Los Angelenos were too apathetic to purchase expensive Olympic tickets especially with the Soviets and most of the Eastern Bloc boycotting as it would not be a real sporting event, I had bought as many tickets for the “finals” as I could get my hands on. Later I sold the extra tickets as Los Angeles fell in love with the games. I made so much money that the expensive tickets I had bought for the entire family of 7 that we used ended up were effectively free since the profits covered the cost of the tickets we used. Street enterprise at its best. My tickets became worth more because the Soviets didn’t come as all Americans became Olympic fans the year we won all the golds.

Winning the race to live well with dementia is like running the 10K race at the Olympics. Everybody has to pace themselves at the beginning so that they can learn about their opponents. In the final stages of the race they speed up and sprint their fasted the last 200 meters.

A mind model of the dementia race strategy is shown below. Click the image to expand it.

I think I am winning my race to live life to its fullest while having dementia. I’m getting ready to claim that gold medal. You can win your race too. Think about what you are doing and strategize like a 10K runner. Learn all you can in the beginning and then speed up later as your new knowledge kicks in.

race-2-bigger

 

3d-race

 

Blockheads-23

 

This mind map is an enhanced version of a mind map I first published about a year ago. As is well recognized in the literature and discussed previously on this web site, individuals experience the progression of dementia in a number of ways depending upon the specific underlying disease or condition that causes the dementia symptoms to appear, existing psychological resilience factors independent of the neurological issues, and one’s psychological and physical resources.

You CANNOT diagnose yourself as having cognitive decline, cognitive impairment, or dementia from the information in the mind map. People without neurological OR psychological illness, problems, and issues may experience these feelings.

The map does provide an overview of some of the feelings and views that individuals whose cognitive health is declining may feel.

I have certainly had a number of these feelings at times as I have gone through various stages of neurodegenerative disease. But you can fight back and live well with dementia.

Click on the map to expand it.

 

 

Some Feelings During Cognitive Decline to Dementia2

Click on image to expand.

Drum roll please …

Mac Mind Map App Ratings June 2014 g j huba phd ✮✮✮✮✮

 

Notes

  1. Most other web sites that rank mind map apps carry advertising from at least several different producers of these programs while I do not. This may or may not explain my greater willingness to differentiate sharply between the apps.
  2. Your idea of what a great mind map app should be may differ from mine resulting in different ratings. Mine are particularly relevant for scientific, health, education, and personal use rather than corporate outline formatting. In fact corporate outline formatting in “mind map” programs does not really produce true mind maps, but most corporate customers do not know the difference. Learn why Buzan-style mind maps will perform far better than the “formatted outline” maps produced by many of the best selling programs before committing to one model or the other.
  3. The programs continuously change (most copy each new version of iMindMap after its release) and my ratings change fairly often.
  4. I communicate with some of the app developers (as well as other independent reviewers) via email. I try not to let these interactions with nice people and arrogant people and people with crummy business models (and crummy customer support) and development geniuses color my ratings.
  5. These ratings apply only to Mac software. I do not use any of these programs on a PC. After 25 years of 40-80 hours of PC use per week, I switched to a real computer and use Macs exclusively.
  6. I will release separate ratings for iPad apps, but in general those programs that are especially good on the Mac tend to be especially good on the iPad. Note that while I do not believe that the Mac version of Inspiration is a particularly good app, I think that the iPad implementation is among the very best.
  7. The apps I review are full commercial versions. I have yet to find a free mind map app that is even close to the best paid apps in quality and usability.
  8. Virtually all of the paid apps have free evaluation periods. Most periods are 30 days which is plenty of time to form your own judgment. Make use of the opportunities provided by the developers and vendors.
  9. And yes, the three programs that I intend to use 90% of the time or more are iMindMap, iMindQ, and iThoughtsX. My use is about 85% iMindMap and 2.5% each of the others. I spread the other 10% of my usage around, often experimenting with other programs just to see if they better fit specific uses or types of users.

This mind map that follows is the same as that above reformatted for “3D” presentation.

Mac Mind Map App Ratings June 2014 g j huba phd ✮✮✮✮✮ 3d

 

I frequently tweet about neurological diseases, sending out links to US government and major foundation web sites. These tweets are among the most retweeted and favorited of those I distribute.

As you may have inferred as you look at the fact sheets distributed, there are commonalities among many of these diseases above and beyond the fact that these are all diseases of the nervous system.

Very few of these diseases have treatments. Most of these diseases are rare and often not detected by primary care physicians or even related specialists like psychiatrists. Medications are frequently used off-label for controlling symptoms like depression, anger, tremor, and many others but these treatments are rarely effective for a long time, if at all, for most patients. Because these are rare diseases and neurological research itself is quite expensive, a small portion of the US medical research budget is spent looking for cures or effective symptom control.

The following mind map shows some of the commonalities among the neurological diseases. Click on the image to expand it.

neurological diseases features common to many conditions

The next mind map is identical to that above. The formatting has been changed so that you (and I) can judge if an alternate format is more useful for certain audiences.

neurological diseases features common to many conditions2

stop making publicizing your disease your end goal. You and the other 350 or 3,000 or 25,000 or 199,999 people with the disease will hardly be heard above the shouts of those advocating for funds for cancer, coronary disease, diabetes, HIV/AIDs and other diseases affecting many medically and/or politically.

And in the current system of new drug development, Big Pharma is going to be more interested in developing treatments for gastroenterological disease (heartburn), STDs (avoidable), erectile dysfunction, safer birth control, cancer, heart disease, and obesity.

Get smart.

Your 5,000 sufferers should collaborate with the 350 individuals with another disease and the 199,999 with another and all of the rest of them to be a large and huge advocacy group for encouraging change. Your illness group may not be the first to get attention if changes are made, but somebody will be and as treatments are developed for one rare disease they might also be applicable to other related rare diseases.

This is clearly a situation in whch cooperating with those with other rare diseases will ultimately yield better results for all than screaming ME FIRST on the Internet in social media.

The existing laws and administrative rules probably do not go far enough in encouraging drug companies to develop pharmaceuticals for rare and orphan diseases. Advocate for better incentives and decreased bureaucracy for developing new pharmaceuticals to treat a few thousand. Maybe even the staid Nobel Prize committee will even make an award to somebody who makes a huge research contribution that advances the development of treatments for a rare disease and top research universities will create endowed professorships for high talented physicians and others who study a rare disease.

Click image to expand.

ENCOURAGE MORE RESEARCH ON RARE AND ORPHAN DISEASES

There is no reason that scientific papers should take from 4-6 months to review with current management and computer technologies.

Out with the old … bada bing, bada boom!

Click to explode the myths.

 

peer review in science bada bing, bada boom

As of last week, iMindMap 6.2 was the best mind mapping program available from any vendor. As of this week iMindMap 7.0 has blown 6.2 away, making a huge leap forward. The gap between iMindMap and the other mind mapping programs on the market has widened considerably.

iMindMap 7 is much more than a mind mapping program but rather a visual thinking/teaching tool and environment, within which mind maps are a large, but certainly not the only, component. In addition to the best mind maps available, the program can produce flow diagrams, path diagrams, concept maps, visual notes (like sketch notes), and combinations of all of the above.

iMindMap 7 is a visual thinking tool for a complete visual thinking environment. The app expands upon the mind mapping theory of Buzan and presents a much more elaborated environment for visual thinking and visual concept development than has been available before. And, just as importantly, to use apply this theory and use the tools of iMindMap 7 you need not be a “computer wizard,” “a professional mind mapper,” or a long time user of earlier programs and visual thinking theories.

I see the release of this program as the beginning of a period in which visual thinking and visual communication becomes even more important and used. Tony Buzan and Chris Griffiths have done a spectacular job in getting the theory and implementation so far along this path already. I hope they release a new book shortly.

Click the image below to expand and see my formal review. Note that I probably used less than 60 percent of the features of the program in the review map, and there is a lot more to explore in subsequent posts with differing types of information.

iMindMap 7 initial review final

Oh, did I mention that iMindMap has a “presentation mode” which makes PowerPoint obsolete. Here is a video of the review above running in an automatic kiosk mode. There are a number of options for the presentations that can be applied depending upon the type of audience and the map content. And it can be presented in 3D which I chose to do. [For this example, a tiny file size with low resolution optimized for the web was used because the intent is simply to illustrate the feature, not crash the server. Note also that the low resolution does de-emphasize the 3D effect; 3D looks extremely good at HD resolutions. I also included a HD version which may give some servers trouble. Both presentations have the same content.] Click below to start the video (about 3 minutes).

low resolution

high resolution

If you don’t like the timing of the slides or the type of transition or the order, you can easily change these settings and reload the video.

[Footnote: I started programming mathematical algorithms in FORTRAN in 1970, published my first of several computer programs in peer-reviewed journals in 1973, and published an early mathematical algorithm and FORTRAN program in 1984 that was a precursor of what are now called concept maps (under the rubric in statistics of “path diagram” or “structural equations model”). Between 1977 and 1984 I published a large series of “visual mathematical models” of drug abuse etiologies and consequences using the LISREL programming environment. In comparison to all of my former experience with computer usage in real-world applications, this is the finest software application I have used in the 40+ years of my career. I am delighted I have the opportunity to use this app to explain some of my ideas and create new ones.]

The only way I see to develop effective medical treatments and care models for many of the thousands of rare diseases is to pool the RESEARCH resources that individual countries are spending and the data countries are collecting about individual rare diseases and put those research resources under international control for prioritizing research agenda and ensuring public access to ALL results and research data.

Yes, I know the USA (probably the largest resource contributor) Congress will go in front of the television cameras and say that the failure of the United Nations and the disproportionate contributions to a pooled resource fund will ensure failure. They will point to the failure of the world to effectively coordinate collaborative research on HIV/AIDS and point to politics, homophobia, disrespect, and the hatred of American politics by certain national and fundamentalist groups and say we would be wasting our money by letting Africans and Arabs and the Russians and Chinese and Indians and Asians and South Americans collaborate with the USA on research and ensuring that research leads to effective treatments for at least some rare diseases.

Enough already. Let’s rise to the occasion of solving resource limitations in studying rare diseases and get an effective mechanism in place for expanding the impact of admittedly small research efforts by individual countries through international cooperation. I trust the governments of the world to collaborate, contribute as they can, and help us start to get some of these diseases treatable. Disease knows no boundaries.

In the last century we collectively developed very advanced medical research techniques. In this century we need to use these methods to solve all of the medical problems possible by putting aside the nonsense politics and nationalism and individual egos and predatory profits and focus on solving many medical issues and ensuring access to effective treatment world wide.

Here’s a way to start. Any yes, this is a test of our humanity and commitment to universal human rights of which medical treatment is but one. But let’s start somewhere that should be relatively easy to agree on (and let a few hundred angry politicians in the USA know that the world considers them bratty children and cannot tolerate their obstructionist and oppositional behavior).

Click on the image to expand. And let’s start the process of collaboration.

rare diseases time for effective international cooperation

EU rare disease rare disease

Related articles

Mind mapping is a wonderful tool. Many use it to inform others of important facts and make sure those facts are remembered, understood within context, associated as appropriate with other knowledge, communicated well, and result in learning. I endorse the successful use of mind mapping.

Mind mapping is a wonderful tool for informing.

Mind mapping is a wonderful tool for misinforming.

Think about this. If the method makes the learning of “good” information faster and more accurate, it does the same thing for “bad” information, idea garbage, or propaganda.

You need good information to map. You know, the kind that is scientifically proven, well interpreted, important, replicable, unbiased. You know what I mean. (The kind of good information that would never make it onto the Fox Cable network.)

So it is really simple. Show me the source of the information and what evidence supports it. I will decide if it is a diamond or zirconium. Nourishing or poison. Message from heaven or hell. Mac or PC.

Do not tell me you have a map of some important psychological issue when you do not have a single citation to replicable science, or at least well-accepted theory, anywhere in the map or the accompanying text.

The problem of presenting bad information and helping others learn it well is probably the most important when the content is derived from medicine, healthcare, psychology, or education. Personally I care less if a business person hires the wrong management consultant and buys the Brooklyn Bridge, but that is a matter of personal preference and I still would not like to see shareholders hurt. You want to teach it in a way that improves the chances that it is learned? Make sure it is true.

A mind map is a METHOD. The mind map should be used as a METHOD to accurately report correct, important information. A mind map may make information look more valid or important than it is, so the author of the map has to be responsible fully researching the information to be presented BEFORE MAPPING. To map information that you do not fully understand is doing a disservice both to the reader and to your reputation.

Click on the image (twice) to fully expand.

Hypocrisy of Some Mind Map Users

Remember the “gold standard” research paradigm for determining if a medical treatment works: the DOUBLE BLIND, RANDOM ASSIGNMENT EXPERIMENT?

The design has historically been considered the best way to “prove” that new medical interventions work, especially if the experiment is replicated a number of times by different research teams. By the double blind (neither the treating medical team nor the patient know whether the patient is taking a placebo or active medication) design, investigators expect to negate the placebo effects caused by patient or medical staff beliefs that the “blue pill” is working.

A key part of virtually all double-blind research designs is the assumption that all patient expectations and reports are independent. This assumption is made because of the statistical requirements necessary to determine whether a drug has had a “significantly larger effect” as compared to a placebo. Making this assumption has been a “standard research design” feature since long before I was born more than 60 years ago.

2013

Google the name of a new drug in clinical trials. You will find many (hundreds, thousands) of posts on blogs, bulletin boards for people with the conditions being treated with the experimental drug, and social media, especially Twitter and Facebook. Early in most clinical trials participants start to post and question one another about their presumed active treatment or placebo status and whether those who guess they are in the experimental condition think the drug is working or not. Since the treatments are of interest to many people world-wide who are not being treated with effective pharmaceuticals, the interest is much greater than just among those in the study.

Google the name of a new drug being suggested for the treatment of a rare or orphan disease that has had no effective treatments to date and you will find this phenomenon particularly prevalent for both patients and caregivers. Hope springs eternal (which it SHOULD) but it also can effect the research design. Obviously data that are “self reported” from patient or caregiver questionnaires can be affected by Internet “the guy in Wyoming says” or the caregiver of “the woman in Florida.”

OK you say, but medical laboratory tests and clinical observations will not be affected because these indices cannot be changed by patient belief they are in the experimental or placebo conditions. Hhmmm, Sam in Seattle just posted that he thinks that he in the experimental condition and that his “saved my life” treatment works especially well if you walk 90 minutes a day or take a specific diet supplement or have a berry-and-cream diet. Mary in Maine blogs the observation that her treatment is not working so she must be in the placebo condition and becomes very depressed and subsequently makes a lot of changes in her lifestyle, often forgetting to take the other medications she reported using daily before the placebo or experimental assignment was made.

Do we have research designs for the amount of research participant visible (blogs, tweets, bulletin boards) and invisible (email, phone) communication going on during a clinical trial? No. Does this communication make a difference in what the statistical tests of efficacy will report? Probably. And can we ever track the invisible communications going on by email? Note that patients who do not wish to disclose their medical status will be more likely to use “private” email than the public blog and bulletin board methods.

Want an example. Google davunetide. This was supposed to be a miracle drug for the very rare neurodegenerative condition PSP. The company (Allon) that developed the drug received huge tax incentives in the USA to potentially market an effective drug for a neglected condition. The company, of course, was well aware that after getting huge tax incentives to develop the pharmaceutical, if the drug were to prove effective in reducing cognitive problems (as was thought), it would then be used with the much more common (and lucrative from the standpoint of Big Pharma) neurodegenerative disorders (Alzheimer’s, Parkinson’s) and schizophrenia.

Patients scrambled to get into the trial because an experimental medication was better than no medication (as was assumed, although not necessarily true) and the odds were 50/50 of getting the active pills.

Patients and caregivers communicated for more than a year, with the conversations involving patients from around the world. In my opinion, the communications probably increased the placebo effect, although I have no data nor statistical tests of “prove” this and it is pure conjecture on my part.

The trial failed miserably. Interestingly, within a few weeks after announcing the results, the senior investigators who developed and tested the treatment had left the employ of Allon. Immediately after the release of the results, clinical trial participants (the caregivers more than the patients) started trading stories on the Internet.

Time for getting our thinking hats on. I worked on methodological problems like this for 30+ years, and I have no solution, nor do I think this problem is going to be solved by any individual. Teams of #medical, #behavioral, #communication, and #statistical professionals need to be formed if we want to be able to accurately assess the effects of a new medication.

Click on the image to expand.

Clinical Trial Double-Blind Treatment Evaluation in the Era of the Internet

I have been advocating for visual thinking, visual communication, and visual collaboration through mind mapping on this blog for several years.

I would summarize my experience using mind mapping to move to a more visual and nonlinear and successive approximation thinking style as the #CODER Model.

Here it is. Click on the image to expand it.

CODER Algorithm for Mind Mapping

Divvy is a wonderful free data visualizer program for the Mac. The program permits a number of data reductions using highly informative transformations, cluster analysis, and plots.

Indispensable for exploring data. Free. VERY fast.

Click on images to expand.

Click here to go to the Divvy web site.

DIVVY DIVVY

Divvy Cluster

As I age (and have time during my retirement), I have been reading a lot about the neurodegenerative diseases (Alzheimer’s, Parkinson’s Lewy Body Dementia, FTLD) and upcoming crises in the healthcare system as people live longer and are more likely to experience one of these conditions. At the same time, I have reading about the absolutely brilliant work being done in neuroscience and medicine (neurology) on the functions of the brain. I am totally in awe at the quality of the science going into brain research.

As a consequence, I am starting this page of citations to publish bibliographies of basic science articles that provide possible mechanisms for studying the efficacy of mind mapping and other visual information techniques in neurodegenerative conditions (Alzheimer’s, Parkinson’s, Lewy Body Dementia, Frontotemporal Dementia or FTD or FTLD, CBD, PSP, and other conditions).

Searches of medical databases tend to produce a highly technical bibliography. NONE of the articles proves a neurogenesis mechanism is stimulated by mind mapping or even that one exists. NONE of these articles proves that mind mapping is effective. What the articles do is to present a selected bibliography of research into brain plasticity and neurodegenerative conditions. Science is all about reviewing prior work (original research, summaries, meta-analyses, theory) and seeing where we go next. Translational research is about taking the results of basic research and developing better treatments, diagnosis methods, and care management.

My own belief is that after degeneration the brain is probably still somewhat plastic and can recode information into alternate forms. Visual learning methods may be helpful to stimulate or guide recoding and shifting functions to less affected areas of the brain. Visual learning methods CANNOT treat a brain disorder, but they may be valuable assistive aids to slow the degeneration of the individual’s quality of life and independence even though they will never be a treatment to slow actual brain deterioration. I believe that it is possible to stimulate relatively less affected areas of the brain to take over some of the functions of those areas that are shrinking. Visual learning and data re-organization (with mind maps being a primary method) probably help to slow the slide of individual patients into stages where they are highly dependent on a caregiver and cannot participate in many formerly enjoyable interactions and activities. NONE of the studies in the articles in my literature searches proves that I am right.

We have learned a huge amount in the past THREE years about how the brain works. This is just the beginning. Until such time as there are truly effective medical treatments (developed from research) that can prevent or “fix” neurodegeneration, well-established, visual cognitive tools may provide help in slowing the fall in the individual’s quality of life. And in future decades we will have a much better understanding of the synergistic roles of formal medical treatment for neurodegeneration and visual methods of learning, memory retrieval, and decision making.

This is going to be a cumulative set of database searches. I will periodically add searches of public access (free) medical databases. At those times I will republish the page with the date of revision and version number.

The results of the searches are not medical treatment advice. The results are not suggestions for future research. The results are not exhaustive. No guarantee of the quality of individual research articles is made or implied by inclusion in these searches.

Search PubMed for information on human research on brain plasticity neurodegenerative

Literature Search 1

Help support the continuing evolution of our understanding of the brain, medical treatments, and useful visual learning and cognitive methods for slowing the deterioration of quality of life by learning about the scientific research going on. (And yes, I support stem cell research.)

I guess it’s just me … I search Google for sites with “psychology mind maps” and I get lotsa pages returned. Of course very FEW of these pages let you know where the ideas, recommendations, and organization comes from. That makes me pretty pissed off.

I have a simple rule for evaluating psycho-pop, psycho-babble, psycho-art, and psycho-schmaltz: if the author (artist, developer) cannot prove to me that the information came from a credible source and is being communicated by a credible source, I assume it is psycho-fantasy and just walk (actually run) away.

Here’s a few things to ask about before you go ahead and change your job, spouse, running shoes, or haircut because somebody gives you some magic MBTI letters, a number on a test published in a self-magazine, or advice that must be right because it appears in a pretty mind map.

I love great psychology content conveyed in an easy to understand manner. I hope I produce some. Most do not produce anything except profits. Know what you are buying (and staking your life on) when you get information from a book, TV, the Internet, text, or a graphic.

Please click on the diagram to zoom in.

Don't Believe a Psychology (Self Help) Mind Map Unless it Tells You

Irv Oii is known to many international news organizations and researchers as a star data journalist. Being a home worker (although home may be the UK, Ohio, the Middle East, Central Africa, Hong Kong, or Antartica) and a fairly reclusive person, nobody seems to have met Irv. Some speculate that he might be a Jewish Asian-American. Others believe Irv is short for Irvelina, a Russian immigrant physician who went to Ohio (or was it Ojai, California) when the Soviet science programs collapsed and turned into the lower funded Russian collaborative efforts with the EU and USA. The collapse of the Soviet Union resulted in the closing of her laboratory in Minsk. Some even think Irv Oii is an acronym.

Irv is thus an enigma and no pictures of her/him seem to exist. An artist’s conception (mine) based on the writings and consultations of Irv Oii on healthcare breakthroughs is shown below. My belief is that a portrait of Irv should hang over the desk of every data journalist and researcher.

Please click the image to zoom.

Irv Oii

Please click on the graphics to zoom.

it's program evaluation, not research, dummy

 

3

evaluationmap

researchmap

Note: November 2015

I started writing about the importance of the content in the mind map — facts and important information well researched — back in November 2012. For the next few weeks I am intending to repost some of these posts with my updated thoughts about Mind Mapping 3.0 and what I would now call Mind Mapping 4.0. I will introduce Mind Mapping 4.0 after reviewing some of my views about Mind Mapping 3.0.]

It’s fine to put your own notes or feelings or ideas into a mind map that will be for your use or one which will be clearly labelled as you opinion. But, if you want to put ideas into general circulation as “facts,” you need to have done your homework and tie the information in the maps to established research, clinical findings, and expert opinion (and document whose expert opinion it is, whether that of someone else or yourself). Mind Mapping 3.0 was the introduction of high-quality data into this useful method of thinking.

George Huba

I would categorize the pioneering efforts of Tony Buzan and others to introduce and popularize the method of mind mapping as Mind Mapping 1.0 and the parameterizations and resulting computer programs by ThinkBuzan, Topicscape, Mindjet, and others as Mind Mapping 2.0.

[As I saw it in 2012 and continue to view it in 2015] Mind Mapping 3.0 is the integration of computer-assisted mind mapping methods, artistic sensibility to enhance visualization, AND MOST IMPORTANTLY, substantive, creative, well-documented valid and reliable content of great importance.

Click on the figure to expand.

Mind Mapping 3.0

There are a number of things that can be done to cut the cost of healthcare while, at the same time, freeing doctors and others to do their jobs better. These improvements cost almost nothing to implement [if all of the constituencies and politicians do not compete to be King Kong].

Visiting legislator who stumbled across this web page? Here’s your chance to act like a grown-up and represent the people of the world, not drug companies nor major research universities nor individual “researcher” egos and retirement funds.

Click on images to expand.[almost free] strategies to improve healthcare

Cartoon Rabbit - Giving A Thumbs Up

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Click on the images to zoom.

The fictional detectives would have been great program evaluators. All looked at all types of data. Miss Marple was a model of pleasantry who could work her way into an organization or group and see it as it was without changing anything by observing. Holmes and Watson — whether in the original books and movies, the Ironman version of the movies, their current BBC incarnation in 21st Century London, or their CBS incarnation in 21st Century Manhattan with Dr John Watson now Dr Joan Watson (for the better) — use Holmes’ razor sharp mind and Watson’s intuitiveness and questioning. Sam Spade, wise cracks, an iron fist, and underlying sensitivity.

Program evaluation is not about conducting research, randomly assigning participants to conditions, or using quasi-experimental designs. Program evaluation is about understanding why programs produce certain outcomes, intended or not, positive or not, unique or not. To truly understand a program quantitative and qualitative data needs to be collected with great attention to the sensibilities, needs, risks, and potential confidentiality breaches of data of program participants, program staff, program administration, funders, and other stakeholders.

I love program evaluation. Every program is unique and at the same time representative of certain classes of human service organizations.

Be a detective. Look carefully and understand the beauty of a well-running program and how to help staff improve a program that is not working as well as it could.

evaluation detective work

The Program Evaluator's Tool Kit

Measure, Find Relationships, Communicate

image image

image image
Ask the Big Questions and Study How the Answers Relate to One Anotherimage

Decode Events and Naturally Occurring Data

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Examine in Detail

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Listen
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Find Patterns
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This analysis, that analysis, yesterday’s analysis, tomorrow’s analysis, Uncle Izzy’s analysis … is there anything that is a not a form of analysis? Create your own bullshit anagram and bullshit detector. And then see how well it applies various politicians, political claims, the cable news stations, and others. You’re on your way to become a walking, human bullshit analyzer.

So without much further ado, a new form of analysis. And a make your own anagram template.

bullshit analysis

The Old …

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The Current …

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And the Ideal

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  • Click on images to zoom.
  • Note that both the placement of the circles AND the front to back placement are significant and intentional.

This is the first of a series of posts I am making about program-organizational (and individual) evaluation. Much of what I will discuss is not in the mainstream of traditional program evaluation methodology.

My approach is different. It works.

In this first section the point is — obviously — that evaluation is iterative and nonlinear. This led to my first model that EVALUATION IS DETECTIVE WORK several decades ago. [Perhaps that explains my current obsession with all versions of Sherlock Holmes, whether in the original, present London, present New York, or by Iron Man.] At any rate, it seems ELEMENTARY to me that instead of thinking of program evaluation as a linear research experiment with a fixed design (a metaphor that works at best imperfectly), it is more important to treat evaluation as detective work where good rules of evidence must be followed and the evaluator is at fault if all outcomes are not found.

My initial development of the Detective Model in 1992 came from my observation that in much traditional program evaluation the evaluator applies a flawed “research” experimental model and the insensitivity of this approach means that a program looks worse than it is because the evaluation methodology is in error. Who pays for this problem? The program, of course, since the evaluator walks away saying that the “program sucks” and not that the evaluator screwed up. In the Detective Model, applied iteratively and nonlinearly, the evaluator and the program are partners, and it is clear what the responsibilities and level of success each has.

Seems ELEMENTARY to me.

As usual click on the image to zoom.

Evaluation is an Iterative, Non-linear Process

Content is Queen. The ultimate point of any mind map is to use and present information clearly in a way that communicates conclusions  that are valid, reliable, and important.

Some examples. Are all of those mind maps floating around showing psychological variables and purporting to illustrate major findings and theories actually using valid information? (Guessing what all people feel like or how they learn and thinking it must be valid since, after all, you are a human, is probably not an indication that you are using highly valid data.) What is the expertise of the individuals who generated the information portrayed in the mind map? Was the information based on empirical studies, well-established theory, the musings of a pop psychology writer, what your Mom taught you, what your best friend thinks, what you saw in a movie? Did you (as a student or casual reader) just read a popular psychology book and accept what that person wrote on how you can be more rich, famous, happy, socially connected, sexy,and thin?

Much attention in mind mapping goes into the “artistic presentation” aspects of the maps, the colors, the rules, the images. And yes, prettier, neater, more original, and more creative maps are probably better received than those that use none of the great tools of visual thinking. But the reality is that the clothing does not make the person nor does the artistry of the map make the content more valid or reliable or important.

The first mind map below shows some of my thoughts and suggestions about how mind maps should be reviewed by experts in the content areas being addressed if the map will be used for purposes other than personal learning or process documentation or as art. That is, if the point of the map is to present facts, then the purported facts really need to be checked by someone who is an expert in the content area. In most cases, I have no problem with authors being responsible for their own work so long as they clearly state their own expertise levels and where the data for the mind maps originated. I have a big problem with someone who is not a trained mental health professional telling the world how to diagnose depression or ADHD. If the author of the map is not an acknowledged expert presenting her or his own work, then the source and limits of the information in the mind map need to be stated, and in some cases, independently evaluated.

Evaluating Mind Maps with Expert Content

The second mind map is actually just the first one produced in iMindMap exported into the alternative computer program MindNode Pro. Is the first map prettier than the second? Sure seems so to me. Is the first map more valid? No. It contains identical information. Does the first map communicate better than the second? Sure seems so to me.

Keep in mind that the goal of most mind mapping is to present valid, reliable, and important information in way that is easily understood, easily remembered, and easily communicated. Using this criterion the first map is probably significantly better.

iMindMap5 Map

The third mind map is identical in content to the two maps just considered but was generated using default options in the program XMIND. The style of the mind map is similar to that of another program (Mindjet AKA MindManager), and is that many argue is the best for presenting information to those in business.

XM Evaluating Mind Maps with %22Expert Content%22

Hopefully by the time you read this, you will have looked carefully at the actual content of the mind map in one or more of the variations. Content is Queen; it is all about the ideas. In the process of mapping, we need to incorporate references to the source of the information displayed. Pretty is good and memorable, but is not more important than the information presented. Content is Queen, although she does look better in a nice dress or business suit.

Keyword Boardtopics and sub-topics: evaluating mind maps with “expert content” criteria information accurate source stated authoritative recognized cited by others opinion? state adult learning multi-channel non-hierarchical non-linear iterative approximations successive small steps link existing knowledge experience emotions cultural memory consensus neuroscience “catchy” style serious disease disaster war human toll horror funny often many topics “lighter” facts graphic usually images fonts colors this opinion mine g j huba phd @drhubaevaluator © 2012 all rights reserved based professional judgment experience 15 years healthcare professionals researchers physicians nurses psychologists social workers others administrators no science citations but read dr seuss really early lexical mind mapper organic style tony buzan thinking flexible suggestions discussion @biggerplate quick notes iteration 1 imindmap mac written on limited to content purportedly expert reproducible empirical “textbook” peer review? content content content content most important meaningful valid reliable educational goals objectives audience mind maps uniqueness used color fonts non-linearity “artistic” memorable by established experts content visual thinkers other concerns mission critical data good empirical public never present as perfect examples medical safety criminal justice financial mental health reproducibility mind map logic data logic education logic expert knowledge conclusions

This figure shows my current core set of apps. I use these about 90% of the time when I am on the iPhone (in addition to the built-in apps). This set of apps permits you to do some pretty advanced calculations, manage tasks, write longish memos, clean up your pictures, use social media, show movies, take notes, and store web pages for later reading.

Who woulda thought in 1967 that tricorders would exist during the lifetimes of my high school friends and I; cell phones did not become available for another 20 years, and the original scientific calculator was released about 1974.

Now half of the adults around me in a college town look like Spock staring into his beloved tricorder (about 8 times the size of an iPhone). A lot of them seem to have about the same degree of social intelligence as Spock as they stare at the machines in restaurants with their friends.

Without further ado, a look at what is on my iPhone.

iphone 5 apps daily core set

Keyword Board

iphone 5 apps: daily core set photography perfectly clear media amazon instant video youtube netflix mind mapping imindmap social media tweetbot pinterest tweetings word press blog task management due clear magazine zite pocket © 2013 g j huba other scan myscript calculator calcbot wolfram alpha notes draft skitch fastfinga3 evernote ia writer day one

BIG Data is coming (or has already come) to healthcare. [It is supposed to usher in new eras of research, economic responsibility, quality and access to healthcare, and better patient outcomes, but that is a subject for another post because it is putting the carriage before the horse to discuss it here.]

What is a data scientist? A new form of bug, a content expert who also knows data issues, an active researcher, someone trained in data analysis and statistics, someone who is acutely aware of relevant laws and ethical concerns in mining health data, a blind empiricist?

This is a tough one because it also touches on how many $$$$$ (€€€€€. ¥¥¥¥¥ , £££££, ﷼﷼﷼﷼﷼, ₩₩₩₩₩, ₱₱₱₱₱) individuals and corporations can make off the carcass of a dying healthcare system.

Never one to back away from a big issue and in search of those who value good healthcare for all over the almighty $ € ¥ £ ₨ ﷼ ₩ ₱, here are some of my thoughts on this issue.

Click image to zoom.

who is a health data scientist

Content knowledge by a well-trained, ethical individual who respects privacy concerns is Queen. Now and forever.

Keyword Board

topics and subtopics: who is a “health” data scientist? trained in healthcare? methodology research databases management information systems psychology? psychometrics other public health? epidemiology other medicine? nursing? social work? education? biostatistics? medical informatics? applied mathematics? engineering? theoretical mathematics? theoretical-academic statistics? information technology? computer science? other? conclusions must know content 70% methods 30% must honor ethics 100% laws practice privacy criminal civil federal state other greatest concerns correctness of results conclusions ethical standards meaningfulness validity reliability privacy utility expert in content field data analysis data systems ethics and privacy other member? association with ethics standards licensed? physician nurse psychologist social worker other regulated? federal hipaa state other insured? professional liability errors and omissions continuing education requirements? ethics renewal of licensure regulatory standards insurer commonsense laws go away if not well trained content field data analysis not statistics committed clean data meaningfulness subject privacy peer review openness ethics ethics ethics are arrogant narrow-minded purely commercial primarily motivated $$$$$ blind number cruncher atheoretical © 2013 g j huba