Click the mind model to expand it.
Search results for dementia
There are many kinds of dementia, but in many types, one huge change is that you lose partially or fully the ability control your facial expression, body posture, and other physical movements that indicate to another person how you feel, how attentive you are, sudden joy, fear, and especially empathy.
Since my diagnosis of FTD (and several years before that), I have heard statements like these from strangers, friends, and family members. Many people think I am angry, disinterested, or not listening to them.
“You never smile.”
“We’re waiting for you not to frown so we can take the selfie.”
“You don’t care what I think, all you do is look at me with a smirk on your face.”
Well, most of the time I am happy and/or neutral although I am sometimes depressed to varying degrees. I am usually interested in what most people are saying. Sometimes I have to break into conversations multiple times to say that I am confused. That confusion is, for me, more likely to indicate that I cannot decode your words because I am losing language skills, not because I was not paying attention to you. I slouch a lot, I often walk looking directly down because I easily trip over over cracks in the pavement and that sometimes leads to falls (I am currently typing using my left thumb on the spacebar because I broke my right thumb in a fall a month ago).
You cannot judge how I am feeling physically or mentally by looking at me unless you are part of my core family and see me very often and sometimes not even then.
Much of how we feel about people is based on their nonverbal gestures and facial expressions. Somebody like me who can barely smile gives people the impression they don’t like what is being said or are annoyed or distracted.
Most people infer negative things from my posture and face and staring that are simply not true.
This is probably a huge factor in how miscommunications often occur among persons with dementia and those they interact with. Even people who interact with me regularly and know my medical problems often misinterpret me.
The following mind model shows some issues in communicating with persons with dementia and possibly misinterpreting what they are thinking and feeling because they look at you with unintended disinterest, never smile, and look distracted. People have often misinterpreted my attempt to smile as smirking.
And if you are a person with dementia, look at yourself in the mirror or in recent photographs and see if you can make some improvements in facial expressions and posture. And if not, when you talking to people, especially friends and family, remind them that you not in complete control of your facial expressions and that sometimes when you think you are smiling or even grinning, the other person just sees a blank face. You can also make a joke out of the situation.
Click on the mind model image below to expand it.
Have a good day.
A phrase you have heard thousands of times (especially if you have lived in California as I did for 30 years). If you have dementia you may groan or the statement may make you angry or you might make a pointed comment back.
Chill, Dudes and Dudettes.
OK, I get it (well actually have gotten it for a number of years since diagnosis). There may not be a 100% good day for you anymore if you have dementia. But how about a perfect (or even good) 20 minutes having coffee with a friend or an hour solving a puzzle with a grandchild or 100 minutes watching Guardians of the Galaxy 2 complete with a refillable tub of popcorn. Yup, these periods of a good day may be followed by a period of frustration or not being able to remember something or difficulty doing a task of daily living.
Use the Force, Luke.
Good moments can be great moments if you let them be. They may last only for few minutes or an afternoon, but given that your brain is “sick” they are a huge gift and blessing. Focus on what is happening to you now, try to not let the bad upset you unduly, and try to enjoy every moment for every second possible.
You may master the Force. You may feel better. Is there a better use of your time?
Focus on what is, not what was.
Click the image of the mind model (mind map) to expand it.
When I try to more than I can, I often get myself into trouble. You should try to do as much as you can but never at the expense of your family, caregivers, friends, and healthcare providers. Elite athletes call this “staying within yourself” while I call it plain common sense. At any rate, your experience of dementia can be made much better by staying within your CURRENT limits, not those of prior times before you started cognitive decline.
Click the image to expand it.
Cognitive (Brain) Training Versus Using New/Alternate Methods of Thinking for #Dementia and Typical Aging
Nothing in this blog post is intended as medical or psychological advice. Should you wish to understand the issues in cognitive training as they pertain to you, consult with your doctor, psychologist, or another licensed healthcare provider. I am neither suggesting that you use cognitive (brain) training or alternate methods of thinking although I have made such a choice for myself. The intent of this post is that you understand the issues with these methods should you be making a choice.
In the past three decades, methods of cognitive training have been developed by many companies. Services are offered by online companies, individual healthcare professionals, and some psychological testing companies.
The developers-owners of cognitive training methods make many claims about how these methods can improve or maintain GENERAL cognitive (brain) functioning for typical adults, those starting cognitive decline, and those entering the faster decline of dementia.
In most cases, costs associated with receiving cognitive training — especially under the supervision of a licensed professional — can be quite high.
As the term is used, cognitive training consists of repeatedly taking cognitive tests developed usually in psychology research studies and typically presented on a computer. Look at a complex picture flashed on the screen rapidly and say where a selected object (thing, person) was shown on the screen. Look for sequences of numbers and letters. Ignore distracting stimuli when looking at the computer screen. In many cases, these tests look like “old time” computer games like Tetris.
These cognitive training procedures are supposed to make you better at thinking by training your brain in certain types of ways that then improve the ability to do a very general and large set of tasks in attention, judgment, planning, and other cognitive processes. It is assumed that learning to perform well ON THESE SPECIFIC TASKS will help you think better in a general way. Unfortunately, it appears after decades of studying cognitive training, it is found that the training on a test will help you get somewhat (and it is a small somewhat) better at taking THAT TEST ONLY and not in similar cognitive tasks more related to day-to-day activities. Yes, you might get better at identifying flashing letters when they appear on the screen, but there is little, if any, replicable evidence that becoming good at the test generalizes into being good at exercising attention in real world situations.
Just what you always think when you think about psychology. Psychologists study “dumb” tasks that look little like real world situations and then claim that getting good at those tasks will change your life. You usually laughed when you read this stuff in news outlet stories. Nonetheless, cognitive training continues to sell and expand and advertise. Money can be made selling cognitive training to individuals concerned with their current and future ability to think well and remember and maintain independence. Many claims are made that the methods work and the glossy, high-priced advertising is convincing, but the statistics are not. And yes, the companies that sell cognitive testing products claim that the training works if THEY conduct the experiments and evaluate their own products. However, ongoing INDEPENDENT RESEARCH suggests this is NOT the case.
Did you really expect the ethics of cognitive training companies to exceed those of pharmaceutical companies? The false claims to be less? Big money, big pressure to prove that these things work.
Independent psychologists who evaluate the effectiveness of programs and assertions of others do not find much if any, effect of cognitive training on improving general cognitive functioning, thinking, and performance in real-life situations faced by aging adults.
The most important INDEPENDENT EVALUATION appears in a journal of the Association for Psychological Science of which I am a Fellow. APS is one of the two major psychological associations in the USA and designation as a Fellow comes only after a thorough peer evaluation of competence.
Click here to see a short summary of the research that examines all of the research over several decades on cognitive training. The full report is 83 pages. I still understand most of the mumbo-jumbo in the full report. You will have to pay to purchase the full report if you are not a member of APS. My judgment is that the summary is very accurate in presenting the results of this research through what is called a meta-analysis and I doubt that most people need read more than the 1-page summary.
OK then, so cognitive training probably will not turn out to be the big fix for what ails your thinking as you age or you have a neurodegenerative (neurological) disease. Maybe improvements will be made in future decades but right now the effects appear to be tiny at best.
What’s the alternative?
I have argued for a number years that learning alternate ways of thinking and expanding the types of information your brain can effectively process can be very useful throughout your life. While learning such strategies in childhood is best, you can keep learning new ways to think up until the day you die and expect to get some significant return for your work.
What kinds of activities have been shown to increase brain function? Learning additional languages, studying a musical instrument, learning math, creating art or stories, and many others to which we all have access, typically with a minimum expense. These are real-world activities and many are a lot of fun.
As I progressed through cognitive decline and dementia I have come to believe that learning what are called visual thinking methods — arranging information into pictures that organize major ideas and show the “big picture” — can help you in many ways I have documented throughout this blog (Hubaisms.com). Of course, my findings are based only my own observations of myself and not on formal studies. I note, however, that sometimes observations are better sources of information than research studies, especially from individuals touting products they have invested millions of dollars in developing.
I think that the fuzzy research on cognitive training and the fact that mind mapping is seen as effective at most Fortune 500 corporations, many universities worldwide and by millions of users worldwide at this time suggests that learning alternate WAYS TO THINK probably is much more effective than cognitive training (akin to playing a 1980s computer game).
My suggestion is that if you are concerned that your ability to think will decline or you are already experiencing cognitive decline, you take some time (1-8 hours will help you evaluate this) and determine if visual thinking is useful for you. You can read my work on this blog or work created by Buzan when he popularized mind mapping in business and education or look at many other authors who write on this topic such as Nast. Major summaries and videos are available online. If you would like to see someone with dementia use mind mapping, you can click here to watch a number of short videos of my mind mapping process in a new window.
Alternate visual thinking methods that I find useful are SKETCHNOTES, doodles, cartoons, and graphs.
You can try mind maps, sketchnotes, doodles, cartoons, and graphics with a few pencils or pens you already own and a piece of paper (A4 or 8.5×11 in landscape mode).
Later you can buy computer apps to make the visual thinking look better if you want but you need not do so.
Look at the image below to show the way I think about the information in this post visually using a mind map.
If you want me to understand something or remember it, DRAW ME A PICTURE. I’m a lot smarter than you might think if you just talk to me. Oh, and you need not be artistic at all to use the techniques in visual thinking so don’t use the excuse that you have no “talent.”
Click on the image to expand it.
Trump/RyanCare another draft not submitted to Congress?
Within the extant and mythical healthcare plans, additional dementia care services need to be included. Most are cost-neutral or may actually save money while providing better patient outcomes.
Case Management makes existing healthcare services (doctor visits, medications, emergency care) work better. At a very small cost that should actually SAVE money, case management can provide better total patient care, cut unnecessary emergency room visits, and achieve better medication outcomes. What isn’t there to like?
Dementia Caregivers are most often UNPAID, female family members forced to juggle their own jobs/finances, families, and general lives to care for a loved one. Support is required for Dementia Caregivers in the forms of training, support, advice, and FINANCIAL COMPENSATION for their services. They do the work, they should get paid for their time. An upgraded system of paid family caregivers should make DementiaCare more effective and reduce other costs in the healthcare system to such a degree that it will be cost-neutral. An unnecessary hospital stay or emergency room visit can cost as much as $10,000 — $20,000. A family caregiver could be paid for 500 hours at $20 per hour for $10,000. Train family caregivers, pay them, and you have a cost neutral system. What isn’t there to like?
Mental Health issues often lead to huge patient distress, anxiety, and medical management problems. They can frustrate caregivers and lead to nonadherence to medication recommendations. Therapy and counseling can help patients and caregivers as well as cutting overall medical costs. What isn’t there to like?
Group Adult Daycare can provide needed respite for family caregivers as well as important social and recreational experiences for patients, thus enhancing their lives and to some degree ability to function independently. What isn’t there to like?
The following mind model provides some details. Click the image to expand it.
I get in trouble when I make mind maps about Donald Trump. This is a mind map about processing repetitive TV cable news (on CNN and MSNBC and FOX) about the most televised story — Donald Tackles the USA and the World — at this point in late April 2017.
Mr Trump is just completing the first 100 days of his Presidency having accomplished less — according to the fact checkers from numerous news organizations — than any President since the index has been tracked from the beginning of Franklin Roosevelt’s Presidency in the 1930s. Mr Trump believes he has accomplished more than any president ever studied in his first 100 days.
I am a lover of news stories where the President gets bashed on TV. In the 1970s I watched (and read about) all the hearings focusing on Richard Nixon and Watergate. In the 1980s I watched huge amounts of TV about Reagan and Iran-Contragate. In the 1990s, I watched the hearings about Bill Clinton and the blue dress and impeachment and not inhaling. Nothing of a comparable nature occurred during either Bush presidency or that of Barack Obama. I almost didn’t know what to do with my spare time.
Now, I am watching numerous hours of TV/video on the major USA news channels (including CNN, MSNBC, Fox, CBS News online, New York Times, Washington Post, and of course the best news outlet for all news worldwide, BBC). And even ESPN has had a big Trump story about star players declining invitations to the White House to meet POTUS.
My dementia has been progressing at an ever increasing speed in a downward spiral during the past months. I remember (recall) less from current events and “work” and daily tasks. When I can retrieve information I do so very S—L—O—W—L—Y. Judgments are tougher, understanding sequences are harder, and writing down what I think is very slow as the length of my current journal entries (and al of the wurds nat spelled wrongly or too bigly) is increasing grately. Handwriting does not come with A spel chkr.
The current trend in cable TV news on MSNBC and CNN and others is to have one-hour shows where a moderator/commentator discusses all of the “important” news of the day with 2-5 different “self-styled” experts ranting from all political persuasions.
7 hours of liberal rantings about Trump is available on MSNBC and to a lesser degree on CNN; Fox News has 7 hours of conservative rantings about how terrible it is that the liberals are ranting about Trump.
I have repeatedly argued that inexpensive (or even free) visual thinking/mind modeling methods can help a person with dementia “rewrite the operating system” on that storage device we call the brain and think better, albeit in a different way.
As I was making the following mind model (AKA mind map) about Trump’s first 100 days yesterday, I was struck by how rapidly I could create this fairly complex model. I think it shows that the intrinsic interests and REPEATED exposures to structured, summary information can be well captured using visual thinking methods by a person who has lived with dementia for more than half a decade after diagnosis. While I understand that 40% of USA voters will find the content WRONG because it is very liberal rather than very conservative, I do propose the hypothesis that developing a fairly complex, fact-based mind map of current news shows the value of mind mapping for someone with dementia basing this conclusion only on my own experience. And it works no matter what you think about Trump.
I hope that as many conservatives as liberals will use these methods to study the facts of issues and their own conclusions and evaluate the completeness of what they know.
Examine your memories and conclusions in mind models. Political leanings and party do not matter because your mind model is for YOU as much as my mind model is for ME.
Should you find my political points to be in error, just use this as a template about what you would like to say about, for example, Hillary Clinton or a Democrat in Congress.
But remember that models like the one can be developed by a person living with dementia like me.
And most importantly, I hope that we — whether your political views are similar or dissimilar to mine — can come to an agreement that cognitive methods for supporting thinking for those with or at risk for dementia belong in the next version of ObamaCare or TrumpCare along with training, support, and respite services for unpaid dementia caregivers and especially COVERAGE OF COMPREHENSIVE HEALTHCARE FOR ALL AMERICANS.
Click on the image to expand it.
Oh … and let’s make sure that no President of any party ever uses the nuclear option. I hope we can all agree on that.
The title of this post is the #1 question (comment) I receive on Twitter when I make a post about content on this site.
The answer to the question is a guarded yes. Most (in excess of 85%) cover basic issues in caregiving, healthcare, patient management, note-taking, self description, cognitive issues, case management, family management, and resources within the healthcare system. Some is specific to dementia (mind maps on types, treatments, research, experiences of those with dementia).
My expertise, research and personal interests, and personal theories derive from within the context of dementia in terms of my professional interests, experience as a caregiver for my mother and grandfather, research, test development and personal experiences. So I always present my ideas targeted toward persons living with dementia, their caregivers and medical providers, dementia care/case managers, and those adults concerned with improving and or maintaining their own cognitive skills or preparing for cognitive decline.
There are many applications of my ideas to many chronic and acute healthcare conditions. Caregiving issues are in many cases the same, healthcare management of different conditions may be fairly similar, and nobody has enough resources to do what they actually want to do.
Where I have great reservations in applying (or extending) my ideas about cognitive skills and quality of life is in understanding and intervening in cognitive and the other medical, and mental health issues of children and adolescents. ADHD, adolescent suicide prevention, youthful problem behaviors, dyslexia, and many other conditions require very specialized professional training. Caregiving by family members and paid trained-paid caregivers often requires different skills, knowledge, and emotional supports than it may for adult patients. While many trivialize the issues and state that declining older adults are like children, such a statement makes minimizes (in a way both pathetic and potentially dangers) the very real and large differences in the care of these groups at either end of the age spectrum.
NO posts or mind models in this blog are specialized for the very real unique needs of children, adolescents, and sometimes younger adults.
Click on the image to expand.
I was old enough to vote in my first presidential election in 1972 when I was 21 years old. I voted Democratic then and since then I have always voted for the Democratic candidate often as a perceived lesser of two evils. I voted for Hillary Clinton last year not because she was a good candidate or a good person (in my judgment) but she was better than Mr Trump who was the most extreme political presidential candidate since George Wallace and the most “out of it” candidate since Ross Perot. Before I could vote, I lived through the presidencies of Eisenhower, Kennedy, Johnson, and Nixon’s first term.
I have a neurodegenerative condition that makes me almost uncontrollably anxious at times, obsessive-compulsive at others, and not particular good at decision making. But more than ever, I think that Trump’s Fake Populism is a horrible way to run the USA and the World and I am pretty sure that in spite of cognitive decline my perceptions of Trump are accurate.
Trump’s behavior makes me very anxious and deeply concerned about the USA I will be leaving behind soon. A lot of Americans (according to recent polls, the majority) share my concerns that Trump is an extremely bad President.
I would personally feel much better if the USA required its presidential candidates to take non-partisan medical, neuropsychological, and psychological evaluations before assuming office and annually. My belief is that a group of actively practicing medical doctors enlisted in the Uniformed Services of the United States could make an overall assessment of an individual’s fitness to be “the most powerful person on earth” and commander in chief of the world’s largest army and largest biggest nuclear arsenal, as well as the architect and steward of the world’s largest budget. I note that medical doctors and other healthcare professionals in the US Uniformed Services have sworn an oath to uphold the Constitution of the United States. It is reasonable to expect that the medical practitioners of the United States Uniformed Services can use due diligence and state-of-the-art medical skills to ensure that an individual honored with the duties of the President of the United States is physically and mentally fit to deal with the stresses of the job. I also note that 14 members of the 115th US Congress (2017-2019) are physicians (and 2 are Democrats while 12 are Republicans) and that I have confidence that their medical ethics and competence in medicine would permit a nonpartisan panel to oversee such an assessment (even though I vote as a very liberal Democrat). Perhaps Mr Trump has a medical condition affecting his ability to perform the duties of his office or perhaps he is just a bigoted, narcissistic, incompetent jerk who is quite successful at manipulating the voters of the USA, even without the assistance of Mr Putin and his hackers.
Is my cognitive decline causing my perceptions to slip in their accuracy or are my observations accurate descriptions of living for several months in #TrumpWorld?
Click on the image to expand.
Note. None of the 14 physicians in the current Congress has formal training in neurology. Since a neurological assessment is an important part of a medical exam for a 70-year old person, independent neurologists of either political party should also be part of a supervisory and assessment panel.
Click on the mind map to expand it.
I have been living with dementia since formal diagnosis in 2010 [and the reality that it started a number of years before that].
Objectively, there is no cure for the neurodegenerative condition I have and generally progression constant.
Subjectively I feel much better now than I did when I was diagnosed.
Over the years, I learned much from other persons living with dementia who live WELL. A number of them write about their experiences in blogs and in groups on Facebook.
I’ve tried to integrate the observations and successes with my training in psychology and practice over 35 years.
I feel better now than I did six years ago. I have medications that do not cure but do help control the symptoms I found most troublesome. I reprioritized my life and focus my energy on those activities most important to me, my family, and others. Even when others cannot fully understand why I do certain things, I take solace in the fact that I have concluded that there is a higher power in the universe and that it is my responsibility to try to understand her and convey what I believe I understand to others.
Click on the image below to see some of the ways I believe one can redirect feelings of anger and despair into living well with dementia and minimize the stress on family and friends.
Click the mind model (map) to expand it.
I love mornings. I wake up with the rush of energy and clarity.
Mid-day, ugh. By 6 PM (dinner) things can be dismal if I did not take a NAP in the afternoon. The most useful naps seem to be those take after lunch.
Evenings can be mundane or great. Certainly not as bad as the afternoons. I need to be careful that I do not stay up too late. If I do, tomorrow afternoon could be worse.
These are MY daily rhythms. They may not be yours (or those of the person in your care). But do watch and see if the time of the day tends to relate to moods and concentration levels and creativity and social skills. When mine get bad, I try to take a nap.
Click on the mind map to expand it.
and here is a “fancier” version (content is identical).
Since 2012, this blog has tried to help persons with dementia and their caregivers learn to use mind maps and other visual thinking tools to simplify the journey through dementia and lessen some of the burdens placed upon caregivers and persons with dementia.
Mind mapping and other visual thinking tools are ways of representing ideas and communicating through pictures and diagrams. In addition to mind maps, other useful visual thinking tools are sketchnotes, doodles, diagrams, and photography.
I focus on mind maps because that is what I primarily use, but sketchnotes and other ways of representing information are also good.
Note that while I use computer programs, you can draw any of these diagrams with a piece of typing paper (if this is not big enough for you, tape a few pieces together), a pencil or pen, and a little care to print legibly. It is best to use a few colored pencils to make the diagram a little clearer but not necessary.
The important part of the diagrams is the organization and the words (ideas) you express.
The mind map below shows some of the people who might benefit from your diagrams including the person with dementia and YOU. Mind maps are a very powerful way of presenting information to others and organizing and remembering your thoughts.
Virtually any kind of information can be presented in a diagram. Here are some examples. As you collect such information you can make it available to others.
Persons with dementia benefit from knowing their schedules and what is coming up. It cuts anxiety. Doctors can absorb information from you rapidly, in context, and accurately. My internist and neurologist like to see them. Family members will like to see what is going on, and this is a way to manage and increase their own involvement in care. Mind maps about what the person with dementia likes and behaves can make your job an easier one for others to assume so that you can have some well-needed respite. Care notes can help everyone know what has been going on for the person with dementia.
Whether these notes are made by a family caregiver and loved one or made by a paid caregiver, they can be invaluable both for maintaining the quality of care and informing others the best ways they can help
Click on the image to expand it.
My dementia is starting to get to the point where I have a lot of trouble remembering how to spell a lot of words. I am also having increasing difficulty writing a sentence that uses the rules of grammar correctly (not that I was ever really proficient in grammar but once upon a time I wasn’t this bad).
I have been trying the program Grammarly which is a grammar and spelling checker far more sophisticated than anything inside any word processing program (notably Microsoft Word and Apple Pages) that I have used. It also can be used with your blog, Twitter and other social media posts, and lots of other programs on the Mac or PC.
To use Grammarly you must be logged into the Internet. It is also fairly necessary to have a subscription instead of using the trial, free version. Subscriptions are about $12.50 per month depending on how you pay (monthly, quarterly, annually). I think it is well worth it for me. Hopefully, the program will help me trick you into believing that I am maintaining spelling and grammar levels even as I know they are fading without the computer assist.
The bulk of the posts in this blog document my experiences using mind mapping (and more generally, visual thinking) as a way to deal with my own dementia. My own history of using these techniques is briefly summarized HERE.
Since I starting using mind maps for this purpose in 2010, my use of the mapping techniques has shifted somewhat. More and more I use the mapping methods for helping remember to take medications (and more importantly to avoid double doses if I forget that I have already taken the red pill).
Here are some of the ways I am most often using mind maps in 2017 as my dementia progresses. Please click the image to expand it.
The most important of these uses are the creative ones given in the branch at the bottom labeled “creative.” These uses are the ones that keep me interested and feeling like my contributions can be meaningful each day.
A few years ago I set out — as I have discussed in this blog many times — to “prove” that a person with dementia can use mind mapping in numerous ways to improve the quality of life.
Yes, a big “clinical trial” is the right way to make such a test. But I had no resources to run a clinical trial and even more importantly, no time and energy. And I mean time defined as “productive, predicted remaining life span.”
But I did have a willing participant with dementia (me) and a huge audience on social media. It is now about 4 1/2 years since I first posted a mind map on my blog site. The blog site www.Hubaisms.com now contains more than 1,000 mind maps and more than 700 posts.
Through my blog posts and their observations, usefulness to others, and my medical path, I’ve demonstrated that the technique can by used at least for one person on this planet daily and with results shown on the Internet for all to see.
No one should assume that because I believe that the method has proven effective for me that it will be effective for them. You should consult your own health care providers if you wish to try this for yourself or a person under your care.
There are many, many, many examples of the use of the methods on the blog site. What’s you excuse for not spending an hour reviewing them? My methods are useful with my dementia, but most also apply to — with a few adaptations — many other physical and mental diseases.
Click on the image below to expand it.
Mind modeling (advanced mind mapping) is a method of drawing out ideas so as to facilitate thinking.
I think that mind modeling works well for some people with early and middle stages of dementia. And I think that most people from 6-60 can master this method of visual thinking and memory retention before the onset of cognitive impairment and dementia.
Here is a brief visual summary of this visual method. Click on the image to expand it.
Click on the image to expand it.
The key principle is “That was then, THIS IS NOW.”
I have frontotemporal dementia. Over years I have not responded well or appropriately when receiving gifts.
So I thought it would be a good idea to put together a mind model of things you might want to consider when purchasing a holiday or birthday gift for a loved one living with dementia.
Here are three mind models (mind maps) on the gift giving process when the recipient is living with dementia or cognitive impairment.
For each of the images, click on it to expand.
The first diagram shows a set of practical considerations you should think about when selecting a gift.
The second diagram is a list of possible gifts that might also help both the person with dementia and the caregiver. Most of these suggestions are relatively inexpensive.
The third diagram shows the primary consideration in gift giving for persons with dementia.
Each of these mind models is derived from my own experience as well as my training in psychology. The models are merely ones that apply to myself and may not fit your situation. Hopefully, though, even if the models do not fit your loved one, these mind maps will get you thinking that a somewhat different approach to gift giving might be appropriate at this time.
My suggestions are focused toward gifts that might help the person with dementia and the caregiver deal with some of the symptoms of the disease.
Do realize that with certain types of dementia, there is a significant possibility that the person with dementia will not respond well to the gift. In that case suggest that you can return it, but don’t rush to do so as the longer reaction after a couple of days may be very favorable.
Happy Holidays and special occasions to all.
Click on the image to expand it.
For those of you who think that the term Dementia Monster is insensitive, do remember that I have one who lives inside of me. Increase my anxiety levels and out he comes. I spend much of my energy trying to limit his ability to feed on the anxiety.
Click on the mind model (mind map) to expand it.
Click here to see Part 1 of My Vision in a separate window.
The mind model (aka mind map) below discusses my vision in developing the dementia focus on this website. I started to build the web site about two years after being diagnosed with a neurodegenerative condition (2012). Thus the entire blog is the work of a developer experiencing dementia while designing and preparing the content for the site. The site discusses my progression through cognitive impairment and decline into dementia. More importantly it discusses how I tried to help myself coordinate and use to full advantage the support and professional expertise made available to me by family, friends, the community, my doctors, and the general world-wide of patients and professionals the major issues.
Nothing in this blog post (or any other on blog post or page on the site) is intended to be, or promoted as medical, psychological, or any other form of treatment. The ideas in this blog are about using some commonsense note-taking and visual thinking methods to possible help you live better with dementia. I tried it on myself (only) and I am encouraged although I freely admit that full scientific study is needed.
These methods and comments will not substitute for medical and other professional treatments. They do not cure dementia. They do not slow down the progress of dementia. For me, at least, the methods have sustained and increased my quality of life and I do spend more time with my family and am more independent and in my opinion think better. But my dementia is not being treated and getting better; what I propose are methods that may make it easier to independently manage selected parts of your life, be in a better mood because you are trying to help yourself, be less of a burden to your caregivers, and report better to doctor what your experiences have been since the last appointment.
Many people are miserable almost all days when they have dementia. If simple, inexpensive cognitive tools can improve some or many of those days, the development of such techniques is a huge step forward.
I hope that others will examine the information here and use it to improve the decisions they, their caregivers, and their doctors and nurses must make about their formal medical treatment.
Here is what appears in the blog posts and elsewhere on Hubaisms.com.
Click on the image to expand it.
Click here to see Part 2 of My Vision in a separate window.
I set up the Facebook group Dementia Mind Maps for those who may be interested in using mind maps to aid in dementia care, research, education, prevention, and general information.
If you would like to discuss the topic with persons with dementia, adults aging typically, healthcare professionals, decision makers, the general public, educator, mind mappers, and the curious lifelong learners, please join the group.
The group is an open one.
This is the link for joining the group.
Not the past, not what might happen in the future. Fuzzy, intuitive, today’s emotions. Nonlinear, visual, big picture. Attention flows toward good, bright, happy visualizations.
Opening your mind to nonlinear thinking may provide cognitive reserve that helps you as cognitive functions start to decline perhaps precipitously into dementia. Neuroplasticity is a mechanism that the brain will uses to reassign functional processing from one area to the brain as it is damaged by trauma or disease.
One very good way to encourage the development of cognitive reserve and neuroplasticity is to practice nonlinear thinking methods that can help promote mindful solutions. Should the brain become damaged, it may be able to use nonlinear, symbolic visual thinking to cope, at least for a while. And while you practice you may also experience strength in your resolve and understanding.
Do note that the above comments are speculative. There is NO formal research on mind mapping nor other comments about this in the literature (other than my own). Also this is based only on my own experience and generalizations from my earlier research on daydreaming and imagery. So do not go about thinking that this proven. Rather it is speculative.
While I theorize that mind mapping is related to mindfulness in SOME applications, even if it turns out that it is not — from the results of formal empirical studies — there are other demonstrated benefits from mind mapping, so the actual use of mind mapping should still be encouraged.
This mind model (aka mind map) below shows a “Circle of Care” for persons successfully living well with dementia. The ability to access such a network when needed is a goal that the healthcare and social care systems should strive to attain.
While this may appear to be a daunting task, remember that most of these services exist in some form in most places but in most instances are not coordinated nor aware of the contributions of other sources. The key to making the “system work” is successful (care or case management) of the individual.
Click on the image to expand it.
You aren’t getting any younger. Someday you might find that having nicely formatted, engrossing, memory-enhancing, motivational pages of notes to look at and remember your life is a godsend.
Mind modeling (mapping)!!!
You are not getting any younger. You may face later cognitive decline and dementia.
Do a little work now to have a contingency plan if cognitive impairment becomes part of your daily routine, as it has for me.
If you do not know to read a mind map, look at this first one. Start at #1 on the map. If you are comfortable with reading mind maps you can skip this refresher.
Click on the following mind model (map) to increase it size.
I’m 65, and my neurodegenerative disease is continuing to get worse.
But today is Halloween, one of the great children’s holidays, and one I love. I made up a mind map this morning to help dredge up some of my memories I have of Halloween since I first started participating in the annual ritual of collecting chocolate bars around 1956.
I don’t recall as much as I did last year about this time in my life although I do recall a lot as I go through the memory retrieval exercise needed for an autobiographical mind map. Had I made this map a year ago I would have greater access to my memories now. Had the map been made 15 years ago before the memory damage symptoms became significant, I probably could have written down very much I loved about the holiday.
The basic point is simple. If you anticipate neurocognitive problems (or have them now) you can increase your enjoyment of the future by recording (in a list, a mind model/map, a video, pictures and captions) your memories and feeling about Halloween past and future. It does not take long, does not cost much, and you probably will want it even if you do not have significant memory loss and dementia but rather just have typical aging memory issues.
In my opinion, mind maps are the best way to document your life using visual thinking methods. There are many other ways. Pick one that works for you.
Click on the mind model/map below to expand it.
In many cases a person with dementia expresses herself with what she believes to be a very logical thought pattern that appears to a caregiver to be quite illogical. But if a person with dementia is expressing himself in a consistent but bizarre way, it might very much be indicative of a logic which — while unintelligible or not able to be decoded by a caregiver — has a consistency and repeatability that means that a person is communicating in a personally meaningful way.
A few thoughts in a mind model (AKA mind map) created by my own demented brain. The process of mind modeling is for me an alternate way of thinking and communicating that later permits me to translate the ideas and my (but possibly not your) logical network into words you might understand.
Please click on the image to expand it.
There are many problems that can plague a person with dementia. Some of these are easily detected but others may be “hidden” because of the nature of the major symptoms of the disease or “hidden” because the person with dementia (or caregiver or in some cases family members) is trying to hide some of the problems from outside observers.
For instance physical, psychological, or financial abuse will be hidden by the abuser and perhaps the person with dementia. Memory loss may make it difficult for the person with dementia to accurately report accidents.
It is important that healthcare providers, caregivers, and family members be trained to identify the hidden problems.
To some degree or another, it is likely that most persons with dementia have some of these hidden problems. For instance, I bump against things all day long, usually because I am rushing around or not paying attention because I am trying to multitask. When asked by a family member or friend where the bruise came from, I have to try to reconstruct where the accident must have happened by thinking through a lot of alternatives for a bruise half-way between my ankle and knee.
Click image to expand.