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social, health, political imagery through the lens of George J Huba PhD © 2012-2019

Posts tagged Borg

There are many kinds of dementia, but in many types, one huge change is that you lose partially or fully the ability control your facial expression, body posture, and other physical movements that indicate to another person how you feel, how attentive you are, sudden joy, fear, and especially empathy.

Since my diagnosis of FTD (and several years before that), I have heard statements like these from strangers, friends, and family members. Many people think I am angry, disinterested, or not listening to them.

“You never smile.”

“We’re waiting for you not to frown so we can take the selfie.”

“You don’t care what I think, all you do is look at me with a smirk on your face.”

Well, most of the time I am happy and/or neutral although I am sometimes depressed to varying degrees. I am usually interested in what most people are saying. Sometimes I have to break into conversations multiple times to say that I am confused. That confusion is, for me, more likely to indicate that I cannot decode your words because I am losing language skills, not because I was not paying attention to you. I slouch a lot, I often walk looking directly down because I easily trip over over cracks in the pavement and that sometimes leads to falls (I am currently typing using my left thumb on the spacebar because I broke my right thumb in a fall a month ago).

You cannot judge how I am feeling physically or mentally by looking at me unless you are part of my core family and see me very often and sometimes not even then.

That sucks.

Much of how we feel about people is based on their nonverbal gestures and facial expressions. Somebody like me who can barely smile gives people the impression they don’t like what is being said or are annoyed or distracted.

Most people infer negative things from my posture and face and staring that are simply not true.

This is probably a huge factor in how miscommunications often occur among persons with dementia and those they interact with. Even people who interact with me regularly and know my medical problems often misinterpret me.

The following mind model shows some issues in communicating with persons with dementia and possibly misinterpreting what they are thinking and feeling because they look at you with unintended disinterest, never smile, and look distracted. People have often misinterpreted my attempt to smile as smirking.

And if you are a person with dementia, look at yourself in the mirror or in recent photographs and see if you can make some improvements in facial expressions and posture. And if not, when you talking to people, especially friends and family, remind them that you not in complete control of your facial expressions and that sometimes when you think you are smiling or even grinning, the other person just sees a blank face. You can also make a joke out of the situation.

Click on the mind model image below to expand it.

Look around at the restaurant or on the subway or on airplanes or at bicycle riders (yup, see it a lot around here) or at store workers or person in the car next to you at the red light or in television shows and at businesspeople, teens, tweens, older adults, hospital patients, hospital doctors,  athletes, the disabled, those wearing the most trendy clothes and those dressed in all black with black hats/scarves. Data is streaming into all of their lives: email, texts, videos, music, e-magazines and e-newspapers, web sites world wide, Twitter, Facebook, Instagram, and the local restaurant’s menu. Netflix, iTunes, Amazon Prime, your bank, your doctor, your pharmacy, your local fast food purveyor, extra news and feeds from the sporting event you are attending, the latest Kardashian kamikazi komedy.

The video game is the work of the Devil.

With the exception of an increasingly small percentage of individuals with unlimited data because they were early adopters and have not changed their cellular plans, most of us are paying by the gigabyte. Those with free plans are throttled so that they really cannot use an unlimited amount of data for a fixed price so the fixed prices will go away soon.

Drop data prices, streaming will expand exponentially, the phone companies will make even more money, you will never see your friends in the flesh anymore, family dinners as we knew them in 1960 or even 1980 will be dead and replaced by family members sitting at the same table eating junk food and each watching their own data stream, and no one will want to go to the movie theater or red box anymore. Even the Columbian cocaine lords may go out of business.

Data overload will lead to data addiction and probably result in humanity evolving into the Borg Collective.

Borg

We need to make some changes before Skynet and the Terminators become inevitable.

skynet


terminators

I think the human race has no more than 30 years to evolve before the bytes take over. It will make the “War on Drugs” seem like the good old days and war with the Cylons inevitable. If you thought Big Pharma was going to control your life by promising the end to pain and disease, think again. Big Wireless will be even more insidious and the way Big Pharma has increased healthcare costs significantly will turn out to have been smaller than wireless when the historians look back in 100 years. Wireless data streaming is already starting to become the crack of the next decades.

Turn the Devil’s toys off when you: go home, go to dinner, watch TV, are in a meeting, are in a class, are in a place of religious observances, go on vacation, go to bed, take a shower, go into the bathroom (yup, your screaming boss may be in a toilet stall at DFW or ORD), or go to a friend’s home. Get out of the habit of pulling your cell phone out to take a picture of your family and then checking your email or Twitter account while you are at it. And stop modeling the “cellular data comes before everything else” lifestyle to your kids.

Even Spock turned the data stream off sometimes. Do so and “Live Long and Prosper.”

Aaahhh… GiGo (garbage in/garbage out). The GiGo phenomenon haunts data analysts, statisticians, researchers, theorists, and someone who loses their identity.

So these huge [health] datasets we keep hearing about … who controls them? what is their validity? reliability? utility? who else gets to see them?

And the data mining algorithms… proprietary or public? based on which tests and algorithms? who developed? who validated? are the methods valid? reliable? have utility?

And the results coming out of big data and proprietary data mining algorithms… reliable? valid? useful? clearly interpreted? limitations stated? misinterpreted?

Is big data and data mining about using world-wide data to find solutions to some of the world’s problems or to sell more books, videos, and cola?

I don’t think anyone really understands the big data sets and their limitations. I doubt that more than a small percentage of the data mining algorithms are valid. I sure as hell do not want somebody blindly using these algorithms on data they do not understand and then helping the government limit healthcare visits for high need, low resource individuals (sound familiar to anyone?).

An experienced statistician-data analyst-methodologist knows that when analyzing a large data set you must spend 98% of your time looking at (and fixing if possible) bad data points. The final 2% of your work is then much more likely to show something that is reliable, valid, and useful.

Big Data may save us, or it might kill us first. Or it might make us Borg or batteries.

Right now the analysts are reticulating splines.

No mo …. GiGo. [Is Nicki Minaj available to record this mantra?]

splines