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social, health, political imagery through the lens of George J Huba PhD © 2012-2019

Search results for Hubaisms

The title of this post is the #1 question (comment) I receive on Twitter when I make a post about content on this site.

The answer to the question is a guarded yes. Most (in excess of 85%) cover basic issues in caregiving, healthcare, patient management, note-taking, self description, cognitive issues, case management, family management, and resources within the healthcare system. Some is specific to dementia (mind maps on types, treatments, research, experiences of those with dementia).

My expertise, research and personal interests, and personal theories derive from within the context of dementia in terms of my professional interests, experience as a caregiver for my mother and grandfather, research, test development and personal experiences. So I always present my ideas targeted toward persons living with dementia, their caregivers and medical providers, dementia care/case managers, and those adults concerned with improving and or maintaining their own cognitive skills or preparing for cognitive decline.

There are many applications of my ideas to many chronic and acute healthcare conditions. Caregiving issues are in many cases the same, healthcare management of different conditions may be fairly similar, and nobody has enough resources to do what they actually want to do.

Where I have great reservations in applying (or extending) my ideas about cognitive skills and quality of life is in understanding and intervening in cognitive and the other medical, and mental health issues of children and adolescents. ADHD, adolescent suicide prevention, youthful problem behaviors, dyslexia, and many other conditions require very specialized professional training. Caregiving by family members and paid trained-paid caregivers often requires different skills, knowledge, and emotional supports than it may for adult patients. While many trivialize the issues and state that declining older adults are like children, such a statement makes minimizes (in a way both pathetic and potentially dangers) the very real and large differences in the care of these groups at either end of the age spectrum.

NO posts or mind models in this blog are specialized for the very real unique needs of children, adolescents, and sometimes younger adults.

Click on the image to expand.

 

 

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The focus of the blog is on the issues shown below. If you click on the image, it will expand.

hubaisms

Click Links Below for Selected Posts

Dementia

Healthcare

Healthcare Reform

Mind Maps/Mapping/Models

Huba’s Integrated Theory of Mind Modeling/Mapping

Writing in Mind Map

Case Management

Self Care

Caregiving

Mental Health

Visual Thinking

Computer Program Reviews

Frontotemporal Dementia

Alzheimer’s Disease

Cognitive Decline

“Normal” (Typical) Aging

HIV/AIDS

Big Data

Statistics

Politics

Personal Story (g j huba phd)

Universal Human Rights

Stories from a Lifetime

Hopes and Wishes

Personal Favorites

Hubaisms Blog – WHY?

ALL

The mind model (aka mind map) below discusses my vision in developing the dementia focus on this website. I started to build the web site about two years after being diagnosed with a neurodegenerative condition (2012). Thus the entire blog is the work of a developer experiencing dementia while designing and preparing the content for the site. The site discusses my progression through cognitive impairment and decline into dementia. More importantly it discusses how I tried to help myself coordinate and use to full advantage the support and professional expertise made available to me by family, friends, the community, my doctors, and the general world-wide of patients and professionals the major issues.

Nothing in this blog post (or any other on blog post or page on the site) is intended to be, or promoted as medical, psychological, or any other form of treatment. The ideas in this blog are about using some commonsense note-taking and visual thinking methods to possible help you live better with dementia. I tried it on myself (only) and I am encouraged although I freely admit that full scientific study is needed.

These methods and comments will not substitute for medical and other professional treatments. They do not cure dementia. They do not slow down the progress of dementia. For me, at least, the methods have sustained and increased my quality of life and I do spend more time with my family and am more independent and in my opinion think better. But my dementia is not being treated and getting better; what I propose are methods that may make it easier to independently manage selected parts of your life, be in a better mood because you are trying to help yourself, be less of a burden to your caregivers, and report better to doctor what your experiences have been since the last appointment.

Many people are miserable almost all days when they have dementia. If simple, inexpensive cognitive tools can improve some or many of those days, the development of such techniques is a huge step forward.

I hope that others will examine the information here and use it to improve the decisions they, their caregivers, and their doctors and nurses must make about their formal medical treatment.

Here is what appears in the blog posts and elsewhere on Hubaisms.com.

Click on the image to expand it.

why-i-developed-the-hubaisms-com-focus-on-dementia

Click here to see Part 2 of My Vision in a separate window.

still-crazy-after-all-these-years

I expect to be adding a lot of posts about (or using) sketchnotes in the next few months to Hubaisms.com. Here is how to find the existing ones and the ones I will add. The information as a sketchnote. Click on the images to expand them.

 

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I started this blog in the Fall of 2012. At the time I began, I was looking for something intellectual to do in retirement, wanted to talk about what I had learned over 35 years of evaluating health and social programs, and wanted to present many of my thoughts in mind maps.

And I had a hidden agenda.

In late 2009 I had been diagnosed preliminarily as having a neurodegenerative disease, probably progressive supranuclear palsy (PSP) or frontotemporal dementia (FTD); this was formalized in early 2010.  In the years since my initial diagnosis, both working original diagnoses have been put in a related category of frontotemporal lobar degeneration (FTLD) with a number of other neurodegenerative diseases.My own dementia exhibits features of several of the FTLD disorders, something reported by both my own neurologist and a number of peer-reviewed publications as a common occurrence.

Over the years,I blogged, I spouted off about inequities and the denial of basic human rights. There was interest and my related Twitter following skyrocketed as I retweeted and commented about health-related issues and introduced the posts appearing on my blog.

I did not disclose that I had neurodegenerative disease and had progressed into dementia. I did not disclose that I had great difficulty writing without the mind maps and other visual thinking methods to support the generation of words. I did not disclose that I had neurodegenerative disorder for two reasons. First, I simply was not ready to disclose this for my own sake and that of my family. Second, as a psychologist, I was curious to see if anything would change when readers realized that I was writing while having the dreaded Big D that most readers equated with total mental disintegration and Alzheimer’s in its very advanced stages.

I kept plugging along at about 20 posts a month and gaining several thousand Twitter followers each month who also receive regular updates about my blog posts.

At the beginning of 2015 I started to write about my neurological problems, diagnosis, and what I felt and how I perceived things. I started to emphasize that my prior writings about mind mapping in a theoretical way designed to illustrate a useful tool were in fact descriptions of how the blog was written and how the methods helped me.

My hypothesis that some professionals who had regularly retweeted my work before the disclosure of dementia would stop doing so after I disclosed my medical status. I understand that as many may be concerned with identifying with my positions. That’s OK, my ideas are no more or less valid than they were in 2014 in the absence of compelling empirical studies. A lot of individuals with dementia and their caregivers as well as healthcare providers have at the same time discovered my work and provided feedback that the information and methods are useful to them.

Had you asked me 2012 what I expected for the blog I would have estimated 100-200 posts in total and that by 2016 I would either be dead or “cognitively dead.” I believe that neither is true and that I have many hundreds of posts left. I am aiming for 1000 before before I stop. Because of the acts of producing the blog, and the support of the blogging and tweeting communities, and critical visual thinking tools pioneered by Buzan, Rohde, and others, I think I might hit that goal and I feel calmer and more centered and more productive than I did in November 2011 when I retired. My focus is now more narrow and I am channeling my energy into talking about what what I have learned about the experience of dementia and how to use tools that might allow you to live well with dementia.

The most important thing I have learned since 2012 is that you can live well WITH dementia if you can force yourself to stop denying the dementia or fighting to be like you were before dementia and instead focus on the reality of dementia and how to live the most productive, joyful, and useful way possible during that stage of life. Life does not stop at dementia if you acknowledge it, change how you approach life a little, and then go ahead and enjoy all the good things available to you.

The methods I present in this blog are revolutionary and evolutionary. While many claim to have invented or otherwise codified the pretty pictures of mind mapping, none have developed systematic ways of presenting, communicating, and understand healthcare and medical information that can be productively used by patients, caregivers, and care providers of many types. Along the way, I have modified a number of the methods (especially by greatly extending, clarifying, and revising the work of Buzan and correcting many mistakes) based not only on my experiences as a psychologist with dementia who has studied literally hundreds of healthcare facilities over three decades, but also as one who has studied cognitive psychology and cognitive neuroscience, especially in the past five years.

As usual, here is a mind map. Please click on the image to expand it.

And, THANK YOU.

The presentation contains a random assortment of images from the blog. These images are the best way I know to communicate knowledge in a way that is accessible to most.

This slideshow requires JavaScript.

As of today this blog has almost 500 posts. Since I usually employ mind maps to make major points, there are considerably more than 1500 on the site and the number is growing very rapidly.

If you see an interesting post (or mind map) when you follow a link to the site, use the search button on the site to find related posts.

Keywords which will turn up dozens of posts include #caregiver, #dementia, #cognitiveimpairment, #mentalhealth, #neurodegenerative, #neurological, #psychology, #neuroscience, #HIV, #drugabuse, #socialjustice, #disenfranchised, and dozens of others.

The search box is located near the links to my book on Amazon and iBookstore on the left margin of each page.

Also note that the book, released in early 2015, has a number of mind maps and issues which are not discussed on the web site including long justifications of why I think the mind mapping methods I propose will work well for many (although not everyone) as a means of improving quality of life.

There is a lot more on the site and in the book than just what is in my past dozen posts.

Please explore my ideas with the search box on the site. Oh … and of course please buy the book.

Thanks,

George

And … I am glad to report that the wizard, bandaid man, Frank, geek boy, the sage, superboy, R2D2, the turtle who won the race, and my dog Sabra all agree with me. Donald Trump does not.


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Or,

  • I sometimes use the words your kids hear hourly (partially, but only partially, concealed under the scratch sounds) on your local Pop/HipHop radio stations.
  • I sometimes discuss topics often portrayed but not named on Prime Time broadcast television.
  • I sometimes use the slang words for fornication and excrement (as applied to government, especially in the USA) that your children probably learned at home or in first grade. They probably learned to use these words to describe government from you.
  • I often use rare words and phrases like LEARN, TAKE RESPONSIBILITY, READ, and NEWSPAPER. Your child might ask you what these words mean.
  • I make it clear that even if you don’t like it, you need to EAT VEGETABLES, GO TO COLLEGE AND GRAD SCHOOL, VOTE, RESPECT DIVERSITY, EXERCISE, and stop worrying about Kardashians, Bieber, and Miley. I frequently endorse Lady GaGa, Miles Davis, John Lennon, and the Swedish Millenium (Dragon Tatoo) Film series as well as Yo-Yo Ma and Chris Thile. And although I think Obamacare is flawed (in that it does not go far enough), I continue to strongly endorse it.
  • There may be discussion and pictures of the human breast, vagina, and penis was well as brain scans, tooth decay, politicians, the effects of smoking, the destruction of the environment, and income disparities and poverty. I avoid the use of words like boob (for politicians and the breast), prick (for politicians and the penis), and asshole (for politicians and the anus), although your children may be more familiar with the slang than the proper anatomical terms or politicians’ names and responsibilities.
  • I support all religions that respect diversity and humanity and do no try to harm or forcibly convert those who practice other faiths.
  • Research has “proven” that gender, sexual orientation, race-ethnicity, skin color, place of origin, and organized religious group are NOT correlated with human kindness, human intelligence, human ethics, human fairness, human acceptance of other viewpoints, the search for peace, and the willingness to experience new cultures, knowledge, and friendships. The only people I rant about are those in the US government because observation make it clear that many (but I hasten to add not all) US politicians do not aspire to the ideals of kindness, intelligence, ethics, fairness, diversity, and peace. I also scream about lack of healthcare, mental health services, food, safety, peace, education, and respect for all groups in all countries. And I believe that all abusers of children, elders, minorities, and women should be housed in a special corner of Hell next to those who build or use weapons of mass destruction against anyone and those leaders who have attempted “ethnic cleansing.”

Please plan accordingly.

There are many ways mind maps can be customized including images and fonts and colors and size. Judicious use of these factors can produce a pretty mind map but not necessarily a compelling one.

Compelling mind maps present information effectively, promote creative thinking and the development of solutions, communicate well, and aid in memory.

There are many ways good design can be used so that effective and compelling mind maps result. Here is how I rate the importance of various features that can be customized in the most flexible mind mapping program — iMindMap. Click here to see my review of the most recent Version 11.

I looked at this application when it first came out a couple of years ago.

It has improved significantly.

This is easier to use than my favorite program iMindMap. It is also a lot less expensive.

[Do not confuse this app with Xmind 8, which is the more complete but harder to use version. Xmind 8 is much more expensive. Xmind ZEN produces more attractive maps and works MUCH better on small screens (mobile phone, pads).]

I will continue to use iMindMap 11 because of its status as the very best mind mapping app and I use all of its features. If you do not need all of the fancy options, this is a very good program for a beginner (and expert).

Click on the mind map to expand it.

Xmind ZEN

The “data” of mind maps are ideas. The map itself is a tool to support the manipulation and process of idea processing, idea communication, and idea use. The map organizes ideas and provides a means of showing their places within a hierarchical display. New theories or applications or insights can result from placing ideas into the mind mapping tool.

Come up some ideas by yourself or in a brainstorming group or by examing the previous ideas of others through reading books and research journals and interviewing observers of the idea development or use. Take the ideas you generate and collect and put them into the form of a mind map, whether computer-assisted or hand drawn.

Then the magic happens and you see how all of the ideas relate to one another.

The mind map below illustrates how a mind map helps to explore and understand ideas.

Click on the mind map to expand its size.

How Mind Mapping Supports Better Idea Processing, Ideal Communication, and Idea Use

I have been writing a lot on this blog about apathy during the past months. It has been an increasing annoyance and in some ways debilitating symptom. Where is the off switch? I’ve been looking for it for a long time. I cannot find a personal way within my control to turn apathy on and off, even though I do cycle through periods of greater and less apathy all week, often during the same day.

Help.

A mind map shown below discusses my dilemma. Click on the image to expand it.

my brain with dementia apathy condition

 

Click here for other posts on apathy.

It’s the elephant in the room.

elephant small

This is my review of the iMindMap application, Version 11. Since I started reviewing programs for creating mind maps, I have always rated iMindMap as the best of the lot. I have further gone on to say that iMindMap is the best application I own for promoting, improving, motivating, and perfecting visual thinking. With this version, iMindMap continues to evolve while it retains its position as the leader in mind mapping software.

In a way, iMindMap is no longer a mind mapping program in a narrow way. Rather it is the very best program for creating mind maps of any I have ever used. But, in addition to being the best mind mapping program, it contains 6 additional integrated modules that make it into the best integrated visual thinking product on the market.

What is a VIsual THinking ENvironment (VITHEN)? Click here to find out.

The most important way that iMindMap transcends a traditional mind map is that the tools provided for mind mapping almost automatically push you into thinking about your topic in a more sophisticated and complete way. It promotes better classifications of ideas, priorities, impact, outcomes, mediating steps, and theories in a way that is so intuitive it is almost like magic. That is, what you know about mind mapping and how to use it effectively, will automatically “in the background” evolve to an even higher level of visual thinking.

The iMindMap program includes a total of 7 interrelated modules that can be used in combination to understand ideas and produce documents that easily communicate your findings. The iMindMap program also includes dozens of tools and techniques that extend the usefulness of the programs.

While the Mind Map module is the central focus and will be the entry point for almost all, other modules supplement input, idea presentation, and specialized applications. It is the overall interaction of these modules that create the thinking environment.

My position is that mind maps are a powerful tool for creating, clarifying, and presenting THOUGHTS. So, I’ve always presented my reviews as mind maps in the past. I continue that tradition here.

Please click on the image to increase its size and see a classification and evaluation of the overall thinking environment including the best mind mapping module available.

This program is a brilliantly conceived thinking system and environment. While the app will continue to evolve over time as it has annually since the beginning of the century through tweaks to current procedures and new breakthroughs, iMindMap as it currently exists is the premier product for supporting innovative and creative thinking and communication.

Several more points.

  1. I strongly believe that the iMindMap program will help promote better quality thinking for most of those of all ages over 12.
  2. I also strongly believe that mind maps and visual thinking environments will be extremely useful for at least some individuals with declining cognitive skills, especially if they start mind mapping before the onset of cognitive decline or during early stages. I base that conclusion on my own experience in using this program and others to extend the period of minimal cognitive decline that occurs during a neurological disease, as a consequence of trauma, or other myriad problems. I have neurological disease and dementia.
  3. When I first started mind mapping using iMindMap, I was in an early-mid stage of dementia. My early reviews of the program (more than 5 years ago) took me approximately 2-4 hours to mind map and write the accompanying text. In later years, it took more time over more days. I spent at least 8-12 hours working on the mind map here and writing this review over more than a month. The production of the review was slowed down by my own feelings of not having energy and feeling apathy to various degrees. BUT, I was still able to produce a full review of comparable quality to my own reviews of the past after so many years have passed. That is a better outcome than I had expected when I started in 2010. All of the blog posts I have made and all of the mind maps I have developed over the years occurred when I was in cognitive decline and all are on this blog site. The timeline on the left of each web page will allow you to compare the mind maps I could produce years ago with those I now produce. All current mind maps since July 2018 were developed with iMindMap 11.
  4. Over the years I have used virtually all of the competing mind map products both on the Mac and on an iPad. I could not have developed my own mind maps with the other programs and achieved the same outcomes.
  5. While everybody hopes that the software they need to use is provided for free, iMindMap is far beyond any free or low-cost software. It is also as suitable a way to learn mind mapping for the first time as it is as a professional tool. I see the programs current pricing as appropriate for the high value of the thinking environment.
  6. This review used the Mac version of iMindMap 11.

What I have been achieving with mind maps during cognitive decline? Click here for more information.

To access all of my prior reviews of iMindMap (since Version 3), click here.

 

Now that’s a cryptic title for a blog post, isn’t it?

When you move into later stages in dementia, there are some additional challenges to deal with.

  • Apathy (A) like you have never felt apathy before.
  • Anxiety Avoidance (A+A) where the primary experience is often trying to stay away from events, people, and situations that cause you anxiety, to a large part because the experience of anxiety gets harder and harder to cope with.
  • The Bursting Bubble (B+B) phenomenon wherein strategies you have used successfully in earlier stages of dementia to maintain quality of life no longer work so well.
  • Confusion (C) as a daily part of everything you do increases 10-fold.
  • Communication (C) becomes less automatic, more idiosyncratic to you, much harder because words disappear on the way in and on the way out, slower, ambiguous, more frustrating to you and those you are communicating with, and possibly without any memory of things you said 5 minutes, 5 hours, 5 days, or last Thanksgiving.
  • A(A+A)(B+B)CC

Sounds like a recipe for disaster to me unless you take active (and hard) steps to maintain quality of life under different conditions you have encountered before.

The following mind map shows the problems involved with moving into later stages of dementia and some solutions that might work for you. Skills and techniques you learned at early and middle stages of dementia will be helpful but not sufficient to fully deal with the continuing challenges of maintaining quality of life.

Can it be done? Yes. Is it easy without a plan? No. Does a plan help? Yes.

Here are some explanations of what might be happening to you (or an individual under your care) as dementia progresses. Click on the image to expand it.

A few solutions for each problem are also suggested. Note that these are general suggestions and NOT medical or psychological advice. For more help, see your healthcare provider(s).

The A(A+A)(B+B)CCs of Later Stages in Dementia

 

 

A few years ago, I introduced the term VIsual THinking ENvironment to describe applications that provide a number of visual thinking tools like mind maps, concept maps, flow charts, diagramming, statistical graphics, and visual representations of models, theories, and new knowledge in an integrated way within a single application.

As I used and experimented with new (or newly revised) mind mapping applications every year, I noticed how they were evolving from mind mapping to thinking environments by continuing to implement new and easier ways to process diagrams, figures, photography, sketches, doodles, and logic models together and build integration among tools that permit input visualization and visual output.

The best (and right now the only) evolving mind mapping application to include related new or adapted visual information processing methods is iMindMap 11. It is the only application that provides a well-conceived suite of techniques to form a Visual Thinking Environment (VITHEN). I believe that iMindMap should be rated A++ as a mind mapping program and A as an evolving VITHEN. I fully expect the entire iMindMap 11 suite to be as useful and developed as the mind mapping module within an iteration or three.

So, what is a VITHEN? The following mind map (created in iMindMap 11) incorporates my definition. A fully developed VITHEN not only will produce mind maps and other graphics but most importantly encourages intelligent use in model and theory building and optimizing creativity and effective knowledge development and presentation.

Click on the image to expand it.

What is a Visual Thinking Environment or VITHEN

The next posts include a “formal review” of iMindMap 11, examples of advanced mind maps (which I characterize as MIND MODELS), and an analysis of advantages of a VIsual THinking ENvironment over traditional mind mapping and other graphic thinking tools.

Click here for a full review of iMindMap, Version 11.
Review posted 10-28-18.

Want your dementia care and final life experiences to be good ones? Take a series of “final stands” where you continue to express what you want. Your friends, family members, caregivers, and healthcare providers cannot read your mind. Try to communicate with them through written words, conversations, or visual diagrams.

Before dementia becomes too advanced you need to make some decisions about how you wish to be treated as your cognitive, emotional, and social skills get worse. And you need to make sure that those who care for you, help you, and are important parts of your life know what you want.

I’ve shown a few topics you might want to consider along with your family, friends, caregivers, and healthcare providers in the mind model (map) below.

Click on the image to expand it.

Do your homework and express what you hope to experience and achieve in the final stages of your dementia. Even as dementia causes increasing problems, you can still enjoy life and lead one of high quality.

Plan, enjoy, communicate, live a high quality of end-of-life experiences, and work to achieve your goals with others. Stay as independent as you can, be nice, cooperate, negotiate, and plan.

 

Early Friday morning Hurricane Florence is going right over my house. The predicted storm center path this for Category 4 hurricane (150 mph) is directly over my town near Raleigh, North Carolina. Expected rainfall is between 10 and 20 inches. Some areas will get 48 inches.

About one year ago, Hurricane Maria went over Puerto Rico, a part of the United States. All the lights went out. All of them. Most of the island was destroyed. And there was no fresh, safe water.

A few days after the storm President Trump announced that 65 people had died. The US government and especially President Trump still cites that number as evidence he does “the best job in the history of the United States” in disaster relief.

Independent studies by two major university Departments of Public Health have shown that 3,000 US citizens in Puerto Rico died. One year later (an hour ago), President Trump continues to tweet that his relief efforts in Puerto Rico were about perfect. The statistics of that relief effort shows that the aftermath of Hurricane Maria was one of the most incompetent relief efforts in USA history.

Just watch the video. And consider that parts of Puerto Rico do not have drinkable water or electricity after a year. And people were drinking drain water from a nuclear waste site for months in Puerto Rico.

I know I will be OK. President Trump says so.

[This morning, the computer predicted path models for the eye of the storm have been revised. The hurricane might go somewhat south of my home, although the path is still quite unpredictable. But there is no victory in that. The new predicted path has the storm going over two major US cities: Atlanta, Georgia, and Charlotte, North Carolina. Death tolls could be event high if the path changes.]

I know I will be OK. President Trump says so.

Trump

I know I will be OK. President Trump says so.

Trump

 

Trumpgate is now running at full speed.

Will Trump EVER stop tweeting?

Will Trump EVER stop lying on Fox TV?

Will even one of the senior Republican elected officials in the United States come out and state how dire the situation is?

Will even one of the senior officials in the religious organization supporting Trump finally come out and state that Trump’s behavior has been immoral?

Where’s the org chart for the Trump crime family?

Where’s the org chart for the Putin crime family? How are the two families interlinked?

Which of the positions in the Trump administration are filled by Russian spies?

When will the overall US Government take the US nuclear codes away from Trump?

by George J Huba PhD (Psychology)

Have dementia? It makes no sense to obsessively ruminate about what you have lost.

It makes a lot of sense to focus on now and then try to maximize your quality of life.

Focus not on what you lost but rather on what you have left and how to maximize how you can have the best quality of life possible. That’s how a deal with cognitive decline.

As dementia has progressed for me, apathy has become a bigger concern as the disease progresses.

Something needs to be done now? Chill dude.

Ask someone else to do something to help you? Happens more and more each day.

Just don’t care about deadlines? Yup.

You need to try to deal with apathy early and later in the course of dementia.

Apathy is a trap.

If you become apathetic, you anger your family and friends and others who can help you.

If you become apathetic, you can miss many important and enjoyable parts of life.

If you become apathetic, you can feel helpless and hopeless.

If you become apathetic, your remaining life can be depressing and limited.

If you become apathetic, your quality of life and that of your family and friends can be adversely affected.

Click the mind map below to expand its size.

dementia? now deal with ...